Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,981 members•3,236 posts

All posts for August 2017

Exhaustion

So Ive slept 19 hrs a day for the last 3 days... it's becoming more often and is really affecting family as I can't take my boys out 😱. Tomorrow is a 7am...

So Ive slept 19 hrs a day for the last 3 days... it's becoming more often and is...

•7 years ago

Just Checking In!!

Hi Everyone, Just Dropping in to say Hi and to see how your all doing? Ive got a start of a cold, sore throat and running nose... Weather not helping, One...

Hi Everyone, Just Dropping in to say Hi and to see how your all doing? Ive got a...

•7 years ago

Research into FND

Great research done by Massachusetts General Hospital reference brain structural changes linked to physical, mental health in FND patients...

Great research done by Massachusetts General Hospital reference brain structural...

•7 years ago

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Undiagnosed yet

Wanting to know if anyone has both real seizures and "functional" or non epileptic seizures? I have a video EEG in December. I haven't had a seizure during a...

Wanting to know if anyone has both real seizures and "functional" or non epilept...

•7 years ago

No gallbladder

Hey everyone long time since been on had so much going on lots more test , anyway long story short now recovering without a gallbladder yes that's right no...

Hey everyone long time since been on had so much going on lots more test , anywa...

•7 years ago

Local to me

Hi All I have fibro,fnd, anxiety and depression I have not been out much in the last 3 years and now don,t drive which makes it harder. I live near morrisons...

Hi All I have fibro,fnd, anxiety and depression I have not been out much in the ...

•7 years ago

Dr Jon Stone webinar

Hi All, you probably know this already, that Dr Stone is giving another webinar on Tuesday 29th August at 9pm. His last one on 25th July had no sound! So maybe...

Hi All, you probably know this already, that Dr Stone is giving another webinar ...

•7 years ago

Inflamed oral nerve-help

I went to the oral surgeon this morning thinking I had an impacted wisdom tooth, but it is my nerve running through my jaw that is inflamed and possibly...

I went to the oral surgeon this morning thinking I had an impacted wisdom tooth,...

•7 years ago

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foot wear needed....any ideas

Hi, I currently have no movement in my left foot... this comprises the rest of my body... ....are there any website out there , where I can purchase foot...

Hi, I currently have no movement in my left foot... this comprises the rest of...

•7 years ago

Babinski reflex

Hey guys... ok so I keep getting in my left foot a spasm thing where the big toe lifts up and the rest fan out... very very ouch... a good friend said checkout...

Hey guys... ok so I keep getting in my left foot a spasm thing where the big toe...

•7 years ago

Lishman Unit

Hi all I was diagnosed with FND 3 years ago. I have been on a waiting list to go into the Lishman Unit at Maudsley Hospital. I was wondering if anybody has...

Hi all I was diagnosed with FND 3 years ago. I have been on a waiting list to go...

•7 years ago

Help I feel so alone sometimes

hi I have functional weakness for a year and a half now. It start will a numb arm and within 3 months I couldn't move my legs. I've had all the tests done and...

hi I have functional weakness for a year and a half now. It start will a numb ar...

•7 years ago

Disabled/Recently Diagnosed with Functional Movement Disorder

I am 42. I live with Fibromyalgia, severe mental health issues, and was recently diagnosed with functional movement disorder. I need support. Right now, I feel...

I am 42. I live with Fibromyalgia, severe mental health issues, and was recently...

•7 years ago

LGBT on FND Webinar

Join us for a LGBT on FND Webinar tomorrow for your chance to get involved in FND https://zoom.us/webinar/register/098efc418af8691466858a512be5123a

Join us for a LGBT on FND Webinar tomorrow for your chance to get involved in FN...

•7 years ago

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NEAD Research

Tasha Cullingham Trainee Clinical Psychologist would like your help in participating in ‘Psychological Mechanisms in Non-Epileptic Attack Disorder’ research...

Tasha Cullingham Trainee Clinical Psychologist would like your help in participa...

•7 years ago

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A little about me

I was diagnosed with fibromyalgia in 2003. I fought that diagnosis and refused to believe it was all in my head. In 2009 my pain got better. I was sleeping and...

I was diagnosed with fibromyalgia in 2003. I fought that diagnosis and refused t...

•7 years ago

Diagnosis of FND and chronic migraine

Hi after years of symptoms which were ignored, my 18 year old daughter has been paralysed on two occasions this year. She has now got a diagnosis of FND and...

Hi after years of symptoms which were ignored, my 18 year old daughter has been ...

•7 years ago

Hello another try

Hi all I was a member about a year ago for a short time but due to one member who seemed to be a member of every community on health unlocked upset me a bit. I...

Hi all I was a member about a year ago for a short time but due to one member wh...

•7 years ago

My 11 year old daughter has FND

Hello I've visited this site a few times but this is my first time posting. At first I was apprehensive about asking for help for my daughter because some of...

Hello I've visited this site a few times but this is my first time posting. At ...

•7 years ago

Want my life back

I've got so angry today cause I'm not working and yes I want my son to have everything I'm a single mom yes I'm starting to feel the pressure and doctor keeps...

I've got so angry today cause I'm not working and yes I want my son to have eve...

•7 years ago

Help !!!!!!

Hi all I've been bothered with like ms symptoms for over 9 months now.so finally got to see a neurologist and he suggested a spine and brain scan.got a letter...

Hi all I've been bothered with like ms symptoms for over 9 months now.so finally...

•7 years ago

Not sure what to do.

Well, I'm new to all this. I've only been researching FND/CD for a week or so. Here's my story though. In 2012, while driving home from work my legs just...

Well, I'm new to all this. I've only been researching FND/CD for a week or so. H...

•7 years ago

Really feels like i am taking more steps backwards then forward!

Well its been 8 weeks since i returned to work but after moving up to 6 hours a day i have now returned to 5 hours a day. It is very disappointing that i...

Well its been 8 weeks since i returned to work but after moving up to 6 hours a ...

•7 years ago

19 and scared of functional disorder.

Hi I was diagnosed with a functional disorder in May. It started when i experienced involuntary movement in my foot, it was on a loop and would not stop, i...

Hi I was diagnosed with a functional disorder in May. It started when i experie...

•7 years ago

Just want to give up

Im wheelchair bond just got my first hospital bed and houist whating on my custom made wheelchair cant sleep it hard as the bed im over eveyone has to help me...

Im wheelchair bond just got my first hospital bed and houist whating on my custo...

•7 years ago

can't talk for almost a year

Hello I am I my end 30's I had a work injury last juli, resulting a fractured finger tissue damage. After 10 weeks i was booked in for a manipulation under a...

Hello I am I my end 30's I had a work injury last juli, resulting a fractured ...

•8 years ago

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