Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,635 members • 2,940 posts

All posts for October 2018

Hey y'all, it's me again <3 Can I get a lil love?

I'm sure you fine folks can tell by now that I try to stay positive in every way. I strive to be a ray of sunshine even after scrolling past post after post...

I'm sure you fine folks can tell by now that I try to stay positive in every way...

Heartofgold

•5 years ago

21 Replies

Gabapentin issue

Hi all, I am currently taking gabapentin for nerve pain (prescribed by my pain management Dr) but it does not seem to be helping as much lately. My Dr. said I...

Hi all, I am currently taking gabapentin for nerve pain (prescribed by my pain m...

dbar126

•5 years ago

9 Replies

Introduction

As a 44 year old Mom/StepMom of 6 amazing kids, ages 21 to 3, I simply Don't have time to let my Young Onset Parkinson's control my life. It tries... Oh how it...

As a 44 year old Mom/StepMom of 6 amazing kids, ages 21 to 3, I simply Don't hav...

MamaOliDol

•5 years ago

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What to do when your pain is bad

Hello, I’ve had a rough couple weeks lately and I really need something that helps with the pain or at least distracts me from it, do you have any ideas?

Hello, I’ve had a rough couple weeks lately and I really need something that h...

Green_panda

•6 years ago

7 Replies

Anyone else lose sensation in their skin?

If I touch my hair, face, stomach and neck, I have trouble feeling what it is I'm touching and the temperature of it - like I'm numb... anybody else? And if...

If I touch my hair, face, stomach and neck, I have trouble feeling what it is I'...

Heartofgold

•6 years ago

16 Replies

Oxford FND Peer Support Group

FND Hope UK have organised its 1st Peer Support Group in Oxford (UK) at the John Radcliffe Hospital. We have 4 guest speakers@ Prof Mark Edwards, Glenn...

FND Hope UK have organised its 1st Peer Support Group in Oxford (UK) at the John...

DawnFNDHope

Moderator•6 years ago

4 Replies

Periphal Neuropathy Symptoms, most likely damage from nitrous oxide use, and shoddy doctors

Hi all, hope youre well. this is going to be a bit of a story but i’m a bit angry and upset right now so bare with me. i’m 18 years old, just finished school...

Hi all, hope youre well. this is going to be a bit of a story but i’m a bit angr...

WilfriedZaha

•6 years ago

2 Replies

Losing hope

Has anyone got heald from FND or know someone who has?

Keeponfighting

•6 years ago

11 Replies

AND has same triggers as Epilepsy

Our son has FND and his triggers are as follows 1. Sick with a flu virus or infection such as strep - Triggers a NES 2. Does not get adequate sleep or over...

Our son has FND and his triggers are as follows 1. Sick with a flu virus or infe...

Moses4

•6 years ago

6 Replies

Let's Share A Laugh

What is the funniest thing that has happened to you because of your condition (FND)?

What is the funniest thing that has happened to you because of your condition (F...

Heartofgold

•6 years ago

16 Replies

Another car accident

Good day all, I haven't been on here in a while. I have been so occupied in dealing with injuries from the first car accident that I was involved in last year...

Good day all, I haven't been on here in a while. I have been so occupied in deal...

Blessings48

•6 years ago

2 Replies

Help, No Diagnosis

Hello everybody, I've been dealing with chronic fatigue for over a year, doctors haven't been able to find what is wrong, I would like to hear some...

Hello everybody, I've been dealing with chronic fatigue for over a year, doctor...

Hidden

•6 years ago

7 Replies

Still can't find a doctor in Rochdale

Still can't find a doctor in Rochdale that dosent think nfd is a mental illness who trains these idiots past two mental health test clean bill of health but...

Still can't find a doctor in Rochdale that dosent think nfd is a mental illness ...

Sparticas123

•6 years ago

7 Replies

Bailey09

Hi can fnd run in the family

Bailey09

•6 years ago

7 Replies

Private message from a stranger ??

Hi guys did anyone else get a message from a woman supposedly with a week to live ? Some sort of scam not sure what ! I'm a little bit angry that people could...

Hi guys did anyone else get a message from a woman supposedly with a week to liv...

123lisa

•6 years ago

6 Replies

Wheelchair exercises

What exercises do you do to stay fit even if you are wheelchair bound?

strongerinthisfight

•6 years ago

3 Replies

Does anyone else have absent dorsiflexion?

I have no dorsifelxion in both feet and no reflexes. Does anyone esle have this too?

I have no dorsifelxion in both feet and no reflexes. Does anyone esle have this ...

acalandra995

•6 years ago

2 Replies

The brain in movement disorders

Given the lack of awareness and help for this alleged condition, I am keen to try and understand (as far as is possible), what is happening in my brain! Here,...

Given the lack of awareness and help for this alleged condition, I am keen to tr...

Mic67

•6 years ago

1 Reply

Just an update and multi-diagnosis

I was recenty hospitalized for two weeks and was told it was FND after a stomach virus. However, I had my follow up Friday and he thinks there is a multi...

I was recenty hospitalized for two weeks and was told it was FND after a stomach...

acalandra995

•6 years ago

7 Replies

Does anyone suffer from skin sensitivity (allodynia)?

Lately my skin hurts to be touched even lightly but only in certain areas, does anyone else suffer from this and if so, how do you treat it?

Lately my skin hurts to be touched even lightly but only in certain areas, does ...

dbar126

•6 years ago

4 Replies

This book > Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery

Hi all, Thought some may find this book interesting, and empowering. I have this on order and have read a lot of reviews since its release. It is split into 3...

Hi all, Thought some may find this book interesting, and empowering. I have thi...

Mic67

•6 years ago

2 Replies

Acceptance?

Has anyone found that while reading about their symptoms/FND, they become worse? I have purchased a few books which have been recommended for understanding my...

Has anyone found that while reading about their symptoms/FND, they become worse?...

Nicoleblack123

•6 years ago

6 Replies

Diagnosis help

Hi im new here and have just been told my mri scan is clear. In my letter from my neurologist he says and also in person told me before the clear scan i have...

Hi im new here and have just been told my mri scan is clear. In my letter from m...

Jessdonna

•6 years ago

25 Replies

One step forward, two steps back...then forwards again : )

Hello I just wanted to add an update on my FND journey, in the hope that it may help some of you here. I personally find that I benefit a lot from reading all...

Hello I just wanted to add an update on my FND journey, in the hope that it may ...

Kittilyn

•6 years ago

7 Replies

Bailey09

Hi I'm new to this as I found out that I have fnd .I had mri scan and ct scan and more test, they' couldn't find anything . I have trouble walking ,...

Hi I'm new to this as I found out that I have fnd .I had mri scan and ct scan an...

Bailey09

•6 years ago

43 Replies

Recent FND diagnosis

I have joined this forum to try to discover more about FND. My beautiful 35 year old daughter has been diagnosed with FND last week. It is a frightening time.

I have joined this forum to try to discover more about FND. My beautiful 35 year...

Grannycook

•6 years ago

15 Replies

FMRI Question?

Hi, Has anyone had success in getting an FMRI to help their brain function better? Upon my most recent re-surfacing of FMD after 2 years in remission, I’ve had...

Hi, Has anyone had success in getting an FMRI to help their brain function bette...

Junebeatle

•6 years ago

11 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for October 2018

Hey y'all, it's me again <3 Can I get a lil love?

Gabapentin issue

Introduction

What to do when your pain is bad

Anyone else lose sensation in their skin?

Oxford FND Peer Support Group

Periphal Neuropathy Symptoms, most likely damage from nitrous oxide use, and shoddy doctors

Losing hope

AND has same triggers as Epilepsy

Let's Share A Laugh

Another car accident

Help, No Diagnosis

Still can't find a doctor in Rochdale

Bailey09

Private message from a stranger ??

Wheelchair exercises

Does anyone else have absent dorsiflexion?

The brain in movement disorders

Just an update and multi-diagnosis

Does anyone suffer from skin sensitivity (allodynia)?

This book > Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery

Acceptance?

Diagnosis help

One step forward, two steps back...then forwards again : )

Bailey09

Recent FND diagnosis

FMRI Question?

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive