Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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I am aware that some people think that David Tuller is a 'FND Troll' but I can assure you that he has huge empathy for people with this ...

... condition, especially when their diagnoses have not been made accurately or communicated clearly. He has also gained support from David Putrino and is...

... condition, especially when their diagnoses have not been made accurately or...

•3 months ago

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Sorry for the short notice but this webinar for World Brain Day (22 July) may be of interest to people here.

Join us on World Brain Day for a public webinar about #BrainHealthandPrevention. Register here👉 https://bit.ly/41HCCfn

Join us on World Brain Day for a public webinar about #BrainHealthandPrevention....

•6 months ago

As some of you here know, David Tuller does great work for people with M.E. and, now, Long Covid. He also questions the data re the ...

... assumed prevalence and incidence of FND/'Medically Unexplained Symptoms' vs the actual prevalence and incidence. He's also posted FND Portal's Cadenza and...

... assumed prevalence and incidence of FND/'Medically Unexplained Symptoms' vs ...

•1 year ago

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Re USA psychiatrists wanting to keep FND in DSM so they can claim their fees via the DSM codes ... according to DSM there are no DSM codes.

I just found this in DSM and it predates the last FND meeting by several years so Prof Stone did not need to cave in to the American psychiatrists regarding...

I just found this in DSM and it predates the last FND meeting by several years ...

•1 year ago

Update re FND podcasts via Neurology Journal and request for info re the dx of Functional Cognitive Disorder ...

... apparently the next two episodes of the FND Roundtable discussions have already been recorded and will be available sometime during the next 4 - 5 weeks....

... apparently the next two episodes of the FND Roundtable discussions have alre...

•1 year ago

This may be of interest to people here, particularly those in the UK.

Dave & Amanda #BackThe1in6, calling on the government to create a UK-wide Neuro Taskforce. Prompt and accurate diagnosis of neurological conditions is needed...

Dave & Amanda #BackThe1in6, calling on the government to create a UK-wide Neuro ...

•2 years ago

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Interesting discussion about the prevalence of FND and the validity of the Hoover's sign going on ...

... here: https://virology.ws/.../trial-by-error-questions-about.../

... here: https://virology.ws/.../trial-by-error-questions-about.../

•2 years ago

If you're in the UK please consider signing this petition from The Neurological Alliance before midnight tonight.

https://tinyurl.com/BackThe1in6 #FND2023 I signed for everyone with migraine, Mal de Debarquement Syndrome and other rare neurological conditions (there are...

https://tinyurl.com/BackThe1in6 #FND2023 I signed for everyone with migraine, M...

•2 years ago

As some of you may know, the investigative journalist, David Tuller, has been looking into the varying reports of the prevalence of FND ...

... since there are some discrepancies in the various different reports about it. He also looks into 'Medically Unexplained Symptoms' which is one of the many...

... since there are some discrepancies in the various different reports about it...

•2 years ago

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FND hope virtual conference

just in case you do not know next weekend October 9-10 there is a 2 day virtual conference! Oct 9 &10 from 9:00 AM -4PM EDT FND Hope welcomes you to...

just in case you do not know next weekend October 9-10 there is a 2 day virtual ...

•3 years ago

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A Letter to Our Doctors (advocacy for mobility aids)

Hello all! In my last post, I asked if anyone would be interested in participating in a day where we send our neurologists and doctors letters/emails...

Hello all! In my last post, I asked if anyone would be interested in participat...

•4 years ago

Interesting article here about neurological symptoms in COVID-19

It's the second one down in the 'most popular' section, referring to collaborative efforts between neurologists in Italy and the US. www.neurologytoday.com

It's the second one down in the 'most popular' section, referring to collaborati...

•5 years ago

Change to the UK law regarding being sectioned

Since the outbreak of COVID-19 the UK laws about being sectioned under the Mental Health Act have changed and mean that only one doctor is needed to section...

Since the outbreak of COVID-19 the UK laws about being sectioned under the Ment...

•5 years ago

Happy Brain Awareness Week

Something you might want to be aware of is that neuro-psychiatrists in the UK are at liberty to send different a different 'copy' of notes to patients than...

Something you might want to be aware of is that neuro-psychiatrists in the UK ar...

•5 years ago

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WORLD FND WEEK 7TH TO 13TH APRIL - AWARENESS CAMPAIGN FOR DND

HEY GUYS!! It’s WORLD FND WEEK 7th to 13th April. Here is the webpage page with links to t-shirts and warriors applications!! There will be lots of webinars...

HEY GUYS!! It’s WORLD FND WEEK 7th to 13th April. Here is the webpage page with ...

•6 years ago

Who Are You?

'Who are you?' Asked the Caterpillar 'I hardly know at present, at least I know who I was when I got up this morning, but I think I must have been changed...

'Who are you?' Asked the Caterpillar 'I hardly know at present, at least I know...

•6 years ago

Take the #LetsTalkFND Pledge - Its as easy as 1-2-3

1. SPREAD AWARENESS Share the Awareness Day Flyer Make someone FND aware by printing or emailing the Awareness Day flyer and sharing it with healthcare...

1. SPREAD AWARENESS Share the Awareness Day Flyer Make someone FND aware by ...

•7 years ago

WE NEED YOUR HELP

FND Hope UK NEEDS YOUR HELP We need 10,000 signatures for our petition called 'Improve Availability of NHS Services for FND Sufferers' by 12th March 2018 in...

FND Hope UK NEEDS YOUR HELP We need 10,000 signatures for our petition called 'I...

•7 years ago

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April 13 International FND Awareness Day

We need your help. We are kicking off the week with lots of ways to spread FND awareness for International FND Awareness Day. Please take a moment check our...

We need your help. We are kicking off the week with lots of ways to spread FND ...

Administrator•8 years ago

Recovering from FND

I was diagnosed with non-epileptic seizures/conversion disorder in 2011. I am now healthy, while having FND is still a concern in my life, I no longer have...

I was diagnosed with non-epileptic seizures/conversion disorder in 2011. I am no...

•8 years ago

Recap of Awareness Day

FND BEYOND BORDERS UPDATE: THANK YOU to all the volunteers, bloggers, donors, and participants who tweeted, added a Twibbon, Facebooked, shared their stories,...

FND BEYOND BORDERS UPDATE: THANK YOU to all the volunteers, bloggers, donors, an...

Administrator•9 years ago

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At last!

It is AMAZING to find that I am not alone with this FND! Spent months or more feeling that Im crazy and that I have no control over my body ... turns out I...

It is AMAZING to find that I am not alone with this FND! Spent months or more fe...

•9 years ago

Information FND

Hi! there is a great community of people on the Australian site of FND Hope, it really depends on where you are. The moderators have put together a list of...

Hi! there is a great community of people on the Australian site of FND Hope, it ...

•9 years ago

The Persistent Theme

Hi there, I have noticed that there is a persistent theme when reading other people's stories. The theme is that the people treating people with FND somehow...

Hi there, I have noticed that there is a persistent theme when reading other peo...

•9 years ago

Exaggerated claims about treatment effectiveness

A lot of doctors will tell patients with Chronic Fatigue Syndrome, and also those with FND that Graded Exercise Therapy (where exercise is gradually increased...

A lot of doctors will tell patients with Chronic Fatigue Syndrome, and also thos...

•9 years ago

Article on functional movement disorders: successful treatment with physical therapy rehab protocol

Please send me the article with the video of dr thompsons program. I am at mayo clinic now and the want us to come back in the spring for this program. Was not...

Please send me the article with the video of dr thompsons program. I am at mayo ...

•9 years ago

Insurance not helping for treatment of FMD/FND

I would love to know if anyone in the U.S is having problems getting their insurance to approve treatment for Functional Movement or Neurological Disorder. My...

I would love to know if anyone in the U.S is having problems getting their insur...

•10 years ago

Make FND a matter of importance to health professionals, vote for the FND video at the Neuro Film Festival 2015!

Dear FND sufferers, We have only a few hours left for voting to tell the American Academy of Neurologists that FND deserves more research attention. 1. Click...

Dear FND sufferers, We have only a few hours left for voting to tell the Americ...

•10 years ago

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The Hidden World of FND

We also have entered a short film into the NeuroFilm Festival. PLEASE follow this link: http://patients.aan.com/go/about/neurofilmfestival and then scroll...

We also have entered a short film into the NeuroFilm Festival. PLEASE follow th...

Administrator•10 years ago

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Be part of the change!

We are trying to apply for charity status this year (2015) in the UK. However, we must first have £5000. We are doing a penny drive to obtain these funds. We...

We are trying to apply for charity status this year (2015) in the UK. However, w...

Administrator•10 years ago

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