Suffering with BD: Hi, I was diagnosed... - Behçet's UK

Behçet's UK

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Suffering with BD

Irish-gal profile image
6 Replies

Hi, I was diagnosed 3 yearsago and today in on home injections of humira. It seems to be working well.... but I get headaches.... boy... do they hit home. I'm greatful I found this page. I hope too my experiences can help someone starting on their plan.

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Irish-gal profile image
Irish-gal
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6 Replies
NerdyChristina profile image
NerdyChristina

Welcome! I was on Humira for a bit as well. It was nice being able to inject medicine and know I could absorb it despite my irritable gut!

Alex97 profile image
Alex97

I was on humira for about 3 months but it wasn t helping with the flare up of skin and eye problems so rheumy started me on daily injections of anakinra. I didn t mind doing the humira as it was in pen form but these are syringes and are very painful! But if it can control my flared it's a small price to pay. Glad the humira is working for you.

Stm252 profile image
Stm252 in reply to Alex97

Have you had any relief yet?

Alex97 profile image
Alex97 in reply to Stm252

Not really seen any benefits as yet. Had another flare in eyes last week so it's been hospital appoints all weeks and having more amniotic membranes put into eyrs tomorrow. They want me to continue on the anakinra as they Don t think it has had a chance to work yet. Thank you for asking, hope you are well.

Stm252 profile image
Stm252 in reply to Alex97

Seeing you good vibes and hoping it works. I heard it's very painful. I did read that it can work very fast so keeping my fingers crossed for you. I am sorry about your eyea I donhope they get this managed asap. All the best.

LindsG59 profile image
LindsG59

I've been on Humira for 10 months and it definitely has helped to reduce flare ups and control symptoms. But like you I get terrible headaches and sinus pain! It's still worth taking though.

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