Suffering with BD: Hi, I was diagnosed... - Behçet's UK

Behçet's UK

5,391 members4,391 posts

Suffering with BD

Irish-gal profile image
6 Replies

Hi, I was diagnosed 3 yearsago and today in on home injections of humira. It seems to be working well.... but I get headaches.... boy... do they hit home. I'm greatful I found this page. I hope too my experiences can help someone starting on their plan.

Written by
Irish-gal profile image
Irish-gal
To view profiles and participate in discussions please or .
Read more about...
6 Replies
NerdyChristina profile image
NerdyChristina

Welcome! I was on Humira for a bit as well. It was nice being able to inject medicine and know I could absorb it despite my irritable gut!

Alex97 profile image
Alex97

I was on humira for about 3 months but it wasn t helping with the flare up of skin and eye problems so rheumy started me on daily injections of anakinra. I didn t mind doing the humira as it was in pen form but these are syringes and are very painful! But if it can control my flared it's a small price to pay. Glad the humira is working for you.

Stm252 profile image
Stm252 in reply toAlex97

Have you had any relief yet?

Alex97 profile image
Alex97 in reply toStm252

Not really seen any benefits as yet. Had another flare in eyes last week so it's been hospital appoints all weeks and having more amniotic membranes put into eyrs tomorrow. They want me to continue on the anakinra as they Don t think it has had a chance to work yet. Thank you for asking, hope you are well.

Stm252 profile image
Stm252 in reply toAlex97

Seeing you good vibes and hoping it works. I heard it's very painful. I did read that it can work very fast so keeping my fingers crossed for you. I am sorry about your eyea I donhope they get this managed asap. All the best.

LindsG59 profile image
LindsG59

I've been on Humira for 10 months and it definitely has helped to reduce flare ups and control symptoms. But like you I get terrible headaches and sinus pain! It's still worth taking though.

Not what you're looking for?

You may also like...

My experience with BD

I feel horrible most of the time! I know my family is tired of my complaining, so I keep it to...
Shari1218 profile image

BD Progression

I was reading the American lady's site http://www.behcetsdisease.com/about.html where they seem to...

10 years of BD

Hi there new to the site, 10 years ago I started suffering with problems with my right eye blurred...
ostrea profile image

Bd & Fibromyalgia

Hi guys just to follow on from the lovely joint BD & Fibromyalgia I am interested to know if anyone...
nearysandra profile image

Urticaria and BD

Is there any connection between BD and urticaria? I've been suffering from hives for the past six...
alfredo884 profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.