Thank you for all your posts so far they really help.
My partner has Bechet’s and generally fights it really well (in my opinion) but gets flare ups and just crashes sometimes for days with so much pain. I suffer with Depression and Anxiety and whilst generally ok, can have massive downwards spirals that are hard to get out of. The issue we have is that stress is the main trigger for both of us so set us both off making it harder for each of us worrying about the other. Plus neither having energy to support the other and lift back up.
I do what I can and my partner keeps asking how to help me, so am hoping you guys can give me advice on how I can help him.
This week he has had the biggest flare up I have seen and whilst at times seems ok, I don’t know how to help for best. He avoids hospitals due to previous issues getting stuck there with incorrect treatment given, refused pain killers, plus becoming a Guinea pig to doctors who’ve not experienced Bechet’s. Also he tells me why he eats such varied food in intense quantities depending on his cycle of medication but I wonder if there is some advice I could get to help with a nutrition plan. Finally due to his joint pain he wears cushioned insoles to assist but would love to start going for walks again, can anyone recommend footwear insoles etc that may reduce joint pressure/pain.
I know that’s a lot but I love the bones of him and want to help, plus it’s his daughters birthday this week so want to get him as well as possible for her.
Love and peace to you all