Hi Everyone, I saw a Rheumatologist yesterday as I’ve been having a flare up of symptoms recently as per my last post.
I was a little worried as hadn’t seen this particular Dr before as mine was on leave. Lucky for me she was familiar with Bechets and had been on a talk on it the day before!
She was very good, spent a lot of time going through all of my symptoms. I took a list of all my records of headaches and mouth ulcers over the last 7 months, and it was clear things have got progressively worse for me recently. For my mouth ulcers she has prescribed me Colchicine 500 micrograms to take twice a day - this should prevent any mouth ulcers forming, but if they do I’ve also been prescribed Beclometasone that is an inhaler, this will coat the inside of my mouth and reduce any inflammation.
Something interesting came up at my appointment, I was asked if I’d had any blood when going to the toilet, which I had a few months ago - I saw a pathologist but they didn’t seem to think it was anything to worry about. At the time I didn’t link this with Bechets, but apparently bleeding is a symptom from the inflammation!
She is going to speak to my usual consultant when he returns next week, a decision will then be made to start me on any immunosuppressant treatment, or if I need to be seen by a specialist at CofE in London.
Just want to say how helpful this page has been for me. To know others are also experiencing this helps us all know we are not alone xx