Hi everyone just looking for some advise as feeling let down and confused.
I was diagnosed with Bechets 20 years ago with the following symptoms arthritis, genital and mouth ulcers. I am currently under a rheumatologist and dermatologist (who as interest in Bechets). In trying to get my treatment right the dermatologist referred me to the Liverpool Centre of Excellence. I have now attended two times and on my last visit took in photo's of my symptoms. The lead professor took one look at my genital ulcer photos and said they are not ulcers and straight away sent me to the gynacologist. He had a look and said they look like small cysts (he gave it a really long name which i cannot remember), he carried out an examination too. He advised that if I was his patient he would perform a vulva biopsy so see what they were exactly. He is writing it all up in notes to send back to my doctor.
I am left confused because these are the symptoms I have been getting in my vulva area for a long time but I have been classing them as ulcers. No one as checked when I have had them they just write it down that I have genital ulcers in my notes.The gynacologist at Liverpool couldn't believe that I had not been checked since my first diagnosis 20 years ago. I think the team at Liverpool are querying the Bechets diagnosis although not out-rightly saying it but instead saying at the moment I probably have Bechets and this is another issue running alongside it. We don't know exactly how long I have had it either which is concerning.
My question is to all you out there that suffer with genital ulcers is how often do you have them physical checked or do your doctors just go on what you say?
Any help and advise greatly appreciated
Ps my name is Catherine (not gizzy but Catherine's all seem taken for logins)