About a month ago I had quite a bad flare which took me to the doctors and resulted in being signed off work for 2 weeks. I see a rheumatologist privately but after my diagnoses I felt like giving up as I didn't feel like he knew to much about the condition and just felt like no one could help me so I asked my GP for a referral to the behcets Center of excellence at the royal free hospital London. My GP said I had to be referred to a rheumatologist before hand (nhs) and they would have to decide to refer me if they couldn't find anything to help me. I've had so many test and tried so many medications which haven't helped me what so ever so I'm thinking what can they do that the doctor ive already seen hasn't done? I've had to wait 14 weeks for the appointment and I've still got another 7 weeks to go yet I don't know what to do. I feel so alone I feel like I'm not getting anywhere! My pain is just ridiculous and just genuinely feeling unwell. I've started getting bad anxiety where it's affecting work and social life. I haven't felt myself for years I don't remember a normal life without this. What can I do!! I'm so sick of living like it.