Hi is anyone taking mycophenolate if so has anyone had a side effects from them my neurologist just started me on them x

[Jackamo]

[tamirra]

My daughter has been on them for quite a while now, but i don't think she has side effects from them but i do know that she has had to increase the dose as the lower dose did not work too well, but even after highering the dosage she still gets very bad flares like she is at the moment, mouth and genital ulcers, but everyone reacts differently. x x

[Jackamo in reply to tamirra]

Aww I hope she feels better soon yh there going to higher mine after 28 days I'm glad she isn't experiencing to many problems x

[tamirra in reply to Jackamo]

Thank you Jackamo, and i hope your meds work for you. Much love. x

[rosshi]

hello Jackamo,

I have been taking mycophenolate mopetil approx 15 years and to my knowledge I have not suffered any side effects, I would point out though; in case you or anyone reading this doesn’t know, regular blood test are essential as mycophenolate mopetil can effect the liver, so your LFT blood test (Liver Function Test) must be done regularly; once a week to begin with, then fortnightly and then once a month; for as long as you are on mycophenolate mopetil…

I hope this information is useful and I hope your treaatment plan works out for you.

kind regards,

Paul

[Jackamo in reply to rosshi]

Thank you Paul its just they said there were so many side effects an I weren't to b exposed to sun and I had to give work up for now I'm hoping that wont b for 2 long though yh I have to ave bloods every week x

[Godles]

Hi Jackamo.

I've been taking mycophenolate for 12 months now and I've had no side effects that I know of. It's really controlled the symptoms well for me. I was on 500 twice daily to start but the dose had to be increased to 1000 twice daily.

I couldn't work for a year while I was diagnosed and found the right treatment. I'm back at work full time now and determined to stay fit, well and working.

I've never been good in the sun but I do make sure I use spf15 on my face daily and keep covered up.

Hope you feel better soon.

Godles.

[Jackamo in reply to Godles]

Thank you for your reply its gd to know that there's not many people who's had side effects yh I'm going on 1000 twice daily now I'm glad u were able to go bk to work that is my aim to and I'm so happy ur benefiting from them x