Being in a wheelchair

[Jazzy21]

Hi Guys I am finding my problems with my knees and now spine meaning I need to be thinking about being in the wheelchair more and more. Anyone in this situation as I feel I am sinking.

[billi]

Jazzy I am so sorry you are not feeling to well but we won't let you sink. I don't know your circumstances with your knees and spine. Ican only tell you that I have been suffering BD for 27 years and back in the early nineties still ungiagnosed I was in a terrible way. My children had to get me out of bed, washed, dressed and fed. I could hardly stand let alone walk and was lucky with some good friends. Eventually I got help with home aids, bath seat, walking frame etc. this most horrible period in my life lasted about 18 months from start to beginning of getting better. I was in a lot of pain and often didn't want to wake up in the morning. Then I got referred to Hammersmith hospital and got my diagnosis and after many drugs and trial and error some treatment that really worked for me. I was in remission for about 10 years but over the last 4/5 the dreaded BD has been creeping back into my life and I have recently had to have a few scans tests and will be seeing my prof at the end of this month to talk through results and possible meds. My point being, DO NOT give in or give up. Go back to the docs let them know how bad it is and how it is getting you down. What about other meds, treatments etc

I wish I could help you more but I am sure you already know the oly person that can help is ourselves with a little help from our friends....pun intended!!!!

Take care, keep with the site I'm sure you will get help from others here,

Hugs and Smiles

Billi

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[Roxybaby in reply to billi]

Hi Billi who do you see at Hammersmith and what date do you go?

Love Tracey

[goodlife]

Jazzy I know its easy to say, but don't let using aids get you down.

I was so embarrassed to use a mobility scooter but it was my salvation and enabled me to re-connect with the world and that is vital.

I am working hard at my health and fitness and trying hard to lose weight but we are not always well enough to exercise so I now accept its better to accept aids and get out than rot in the house.

All the best Jill x