I suffer with headaches that last for days, sometimes they are so bad I could cry or I get sick, I have yet to find effective pain relief can any one reccommend any?
Can any one recommend pain relief for headache... - Behçet's UK
I suffer from migraine and it sounds like you may also be affected, considering the length of attacks and the sickness. I was referred to a migraine clinic by my doctor and they tried all sorts to prevent and also counteract the pain. I am now on triptans that I take as soon as symptoms occur, and a range of pain relief, starting with codeine building up to voltarol suppositories when the sickness and pain are both acute. The voltarol is 100mg, so very strong but it does work when all else fails and keeps me away from the doctor call outs and inevitable injections. I hope you get your pain properly managed. Wishing you lots of luck.xxx
Headaches are pretty common with Behects and Dr Kidd the neurologist for the Behects Society has written this factsheet which might help you and they can manifest like migraine
other than that you can read some other posts from the past that have been discussed by typing the word "behcets" followed by "headaches".
Hope this helps as I know they can be really debilitating.
All of the above.. and can I just add a couple of things.
1.Cocodamol (prescription strength codeine and paracetamol), buccastem for nausea is ok and then Imigran (a triptan) which you can now get OTC here if you were looking to step up from relief to actually going to the heart of the problem. Triptans are not to be taken lightly though so read up before you take them.
2. I find eating carbs prolongs the situation. No bread, potatoes, rice or pasta no matter how good it makes you feel on consuming it.
3. Lavender oil - pop it in a burner and breath in relaxing vibes as your drugs kick in.
4. Consider your head/neck/shoulder area....ditch your bra for a bra top when you get an attack - I personally seem to get stress build-up there and ditching my regular bra for a softer bra "top" type thing seems to help take the situation out of gear..
I get bad migrain-ish type headaches and light sensitivity. Sometimes headaches can be a result of dehydration due to my Diabetes Insipidus and weather changes. Sometimes my headaches are linked to nausea and still light sensitivity with my dilated pupils. Sometimes my headaches are due to poor posture, or sleeping awkwardly, or my neck position and bones.
If my headache is due to lack of water, then I will drink to keep hydrated and to be honest, medication for even a severe migraine can sometimes exacerbate the migraine and lying in a dark room for a couple of days is the answer.
If my headache is due to posture and neck ache, I try to make sure that I use my Tempur pillow, to avoid stiff neck and headache.
If my headache is a result of nausea etc, then I have a Cyclizine injection to counteract the nausea and the headache will fade.
More often than not, the headache is a real head splitter and I have no idea how it came and have to use a combination of all treatment options, and other times I just have to ride it out.
Re suggestion above for Triptan. I took that once for a migraine, then snoozed, then I woke up and it was a living hell of hallucination and confusion and would not settle until the drug had worn off. You might find that in some cases, a migraine is best left alone to ride it out because meds might make it worse, especially if you are sensitive like me.
Getting an xray of the neck area is a good idea for back or side of the head headaches. An MRI or scan is always a good option too.
There are many different reasons why you may be having the headaches and light sensitivity, as you may know aseptic meningitis is prevalent in BD and is only one possibility. With regard to my headaches and light sensitivity what works for me is Amitriptyline, speak to your GP or consultant.
The drug that has worked well for over the last 8 years is Pizotifen. Your GP will be the one who prescribes it. There is an article on the BSS website about Primary Headaches and Pizotifen gets a mention as a treatment. If Pizotifen fails to deal with a "breakthrough" headache then I also have Zolmitriptan but those are for emergencies only.
I hope this had been useful.
All the Best,