Hi, I feel a bit out of it on here as I haven't been diagnosed yet but given it can take years I figured you wouldn't mind me asking your ad

[joham]

[billi]

Hi Joham, what is it you would like to know and also what Re your symptoms. This is a good site fro general advice, tips and just chatting. We are friendly but remember we can't give medical answers. So you have taken the first step, hopefully you will see this and respond. Huga and Smiles

Billi

[joham in reply to billi]

I wrote much more detail than is shown above so perhaps I should be writing larger amounts as a post not question?

[joham]

Hi Billi, was wondering if the burning sensation on my scalp was something anyone else experience s? Since my last post I have been asleep or dosing (36 hours) this isnt normsl for me so could this be one of Bechets symtoms also?

[billi in reply to joham]

Yes Joham I too get this and we all get the fatigue and lethargy. Sometimes a week but sometimes for months. Although not a painful symptom it really does make one feel miserable and unable to deal with the simplest tasks and certainly affects your work. It is not a pleasant illness to have but with the right docs, meds and help you can manage and even have remissions. Also there is so much more known about the disease now and lots more help available and research. So be strong. I have suffered with BD for 27 years and it took 12 years to get a diagnosis whereas now the average seems to be 2 years, definite,y getting better.

Take care

Billi

[joham in reply to billi]

Thanks so much for that Billi x

[andreafm]

Hi joham....you don't have to be diagnosed to have a chat or ask questions. We come in many shapes and sizes here and you will see that there are lots of people here who haven't been diagnosed yet.

I don't know if you have searched through some of the previous posts but if you type the word "behcets" followed by "diagnosis" in the search box. Or any other word that applies to the information you want......the search box is just above on the right hand side on the green banner.

Just make sure you type the word "behects" before the word because you will get all the different conditions answers come up and not just the behcets ones.

This is a good place to start but apart from that just fire away and we will do our best to answer.

Hope this helps and look forward to getting to know you

Andrea

[joham in reply to andreafm]

Thank you Andrea, will do x