Any more misdiagnosis statements would be very... - Behçet's UK

Behçet's UK

5,391 members4,391 posts

Any more misdiagnosis statements would be very much appreciated

Herbiv4 profile image
0 Replies

Well, I am still making slow progress and my MP is taking a more solid interest now.

I was recently sent a link to a Multiple Sclerosis forum about the misdiagnosis of "CFS/ME" when MS is the correct diagnosis.

mssociety.org.uk/forum/new-...

I have joined their forum to ask for help from anyone there affected as we have been here.

I had another e.mail at the weekend from an anonymous person saying that I should take this issue all the way to the European Court of Human Rights but I would of course need to find a solicitor.....

I am also putting together a letter to the Chief Medical Officer but I will not send it until I have collated any more anonymous statements to illustrate my arguments.

This is all difficult work for me as I am not well and have to push myself up a virtual 1 in 3 hill every day having only had a few hours sleep due to pain.

However, the more I learn the more determined I am to keep going with this project.

Many thanks to those who are also supporting this initiative.

Written by
Herbiv4 profile image
Herbiv4
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Were you clinically misdiagnosed before Behçet's?

Apologies if you have seen this question posted on my blog page by mistake..... Hello there...
Herbiv4 profile image

Writing to the ME Association

Hello there everyone, I thought I'd give an update about my misdiagnosis project. Since I...
Herbiv4 profile image

Misdiagnosed before Behçet's?

Hello there everyone, I was misdiagnosed for 12 years before I was finally re-diagnosed as...
Herbiv4 profile image

12 months on and still waiting for a diagnosis...any help, advice or just a 5 minute yarn would be greatly appreciated....

Hi - this is Jay, I'm 41 and live on the Suffolk / Essex Borders. I have been unwell for 12 months...
ferris profile image

A double misdiagnosis and the dangers of Chronic Fatigue Syndrome

Hello there everyone, Yesterday I went to my local hospital to see an endocrinologist because my...
Herbiv4 profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.