Site probs: Just to let you all know I have sent... - Behçet's UK

Behçet's UK

5,347 members4,373 posts

Site probs

billi profile image
4 Replies

Just to let you all know I have sent an email to the site managers stating our probs and that the site is supposed to be for us, and dealing with an illness is bad enough without not being able to contact people or vice versa, plus all the ones who have already given up and left the site. Hope they will listen and do something. I did ask them to reply in a post so that all of us who can will see it. Hugs and Smiles to all

Billi

Written by
billi profile image
billi
To view profiles and participate in discussions please or .
4 Replies
andreafm profile image
andreafm

well done Billi...I have also been reporting problems and stated that I didn't think the new website was very user friendly particularly for people who are ill/disabled....I know I am having problems but don't want the forum we all built up between us go down the pan because of the difficulties using it.

Hopefully some of this will help

I will let you know if I get a reply to mine as well

Andrea

That was a good idea. It is so sad that people have stopped using the site.

Hugs Clare x x

billi profile image
billi in reply to

Yes it is very sad as I think the contact with others is so important and for some a lifeline. Lets hope it will be resolved and if we stay and try to encourage others Maybe eventually our missing friends will return.

Love

Billi

in reply to billi

Fingers crossed. C x x

Not what you're looking for?

You may also like...

new to this site

hi everyone i was diagnosed with bd last sept after 8 yrs of on and off illness.The doctor i was...

New to site

Hi I have joined the site to gain more info on alternative medicine to help with bechets . Both my...

does very Behcets patient have a specialist??

Iv been having a nosy at blogs and questions etc, and the one thing I keep coming back to is that...

Is there a comprehensive up-to-date list anywhere of Behcet's symptoms...

I know the information at the Society is excellent - when I was first diagnosed I don't know what I...

Food allergies and BD?

Hi everyone, I'm a new member here and was diagnosed with BD in February of this year....