Has anyone made a link with HPV vaccine and th... - Behçet's UK

Behçet's UK

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Has anyone made a link with HPV vaccine and the onset of Behcet's symptoms? My daughter had first ulcers appear 3 wks after last injection.

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blueskythink
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mark3D profile image
mark3D

I've not had it.

deus777 profile image
deus777

A vaccine is deactivated bits of virus, which triggers an immune response. My guess is that if you are going to see an adverse reaction you would likely see it within a week, 3 weeks is more likely to be co-incidence. If she has had multiple injections then the first should be enough to trigger whatever might happen.

Lara1 profile image
Lara1

Hm.. I am pretty sure I had a worsening of symptoms and new ones after the 3rd dose of the hep B vaccine. My theory is that vaccines do not cause BD but they may trigger new symptoms or make older symptoms worse or more apparent. The problem is you may not know you have it before having the vaccine, at least I didn't. Had I known I would have definitely stayed away. Doctors say it has to be live vaccine but the reality is they don't really understand how the immune system works..so I think it's better to stay on the safe side and not play with unstable immunity. Sounds a like shoulda woulda coulda but..yeah.. That's my current opinion on the topic of vaccines and BD..

cags2606 profile image
cags2606

Hi blueskythink,

So sorry to hear about your daughter - I hope she's doing OK now. My daughter was also adversely affected by the HPV vaccination. She has POTS and is still undergoing investigations to try to find out what's going on with her and what's underlying her POTS.

We now have an Association for UK families with girls adversely affected by the HPV vaccination - AHVID or Association of HPV Vaccine Injured Daughters. We're in the process of setting up a website but in the meantime, I can be contacted (as secretary of the Association) at: caronryalls2025@gmail.com or via Facebook: facebook.com/caronryalls. Anyone who suspects their teenager has been adversely affected by the HPV vaccination is welcome to contact me.

I've sent you a private message blueskythinks - hope it finds you!

Caron x

PS. Symptoms showing 3 weeks following vaccination is certainly NOT outside the timeframe for a vaccine reaction, particularly for an autoimmune condition x