Hi, my name is Jean and I have recently been appointed as Health Care Support Worker with the Bechcet's Syndrome Society, and will based in the London Centre of Excellence. I am really excited about this brand new role and look forward to providing non medical advice and support to patients, families and carers, living with Behcet's disease.
I began my post on 11 March and have spent much of this time reading about and researching Behcet's disease. The forum has been a great way, for me, to gain insight from a patients point of view as to what it is like living with Behcet's. I am really impressed with the support you all provide to one another!
I will regularly be attending the clinic in London where I will be providing advocacy and support to patients at the centre. I will be able to assist with benefits advice and claim forms and letters of support.
I can also accompany patients in discussions and appointments with other healthcare professionals and social services when necessary. I am planning to start up support groups for newly diagnosed and existing patients, here in London and the surrounding area, where lifestyle support and information on the disease can be shared.
I've got a lot of work ahead of me, but I am very much looking forward to this brand new role and learning more about the disease from your shared stories and experiences.
Thank you and please feel free to contact me with any suggestions and or comments or if you have interest in joining a support group.