Posts - MPN Voice | HealthUnlocked

MPN Voice

10,512 members • 14,507 posts

All posts for March 2018

Apixaban

Is the blood thinner Apixaban effective when taken alongside hydroxycarbomide?

Leonardo

•6 years ago

3 Replies

Sweats

Hi I am early stage PMF and only take antihistamines for really bad itching following Shower/bath. I have recently started getting some night sweats but not at...

Hi I am early stage PMF and only take antihistamines for really bad itching foll...

Skye333

•6 years ago

5 Replies

Best holiday insurance for PV

Hi all Going on my first foreign holiday since being diagnosed and was wondering if anyone can recommend a decent company for travel insurance? Thanks in...

Hi all Going on my first foreign holiday since being diagnosed and was wondering...

PT99

•6 years ago

16 Replies

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Gout

Hi Grinz I was put on a drug called alluprinol when first put on hydroxycarbamide as a side effect of hydroxycarbamide is gout I was only on it for a short...

Hi Grinz I was put on a drug called alluprinol when first put on hydroxycarbamid...

Scottishterrier

•6 years ago

2 Replies

increase in itchy after 5yrs

i have pv for 5 years. latley i have very bad iching. even when not useing water. what can i do to get rid of it please?

i have pv for 5 years. latley i have very bad iching. even when not useing wate...

Dianadors

•6 years ago

15 Replies

hydroxyurea can increase uric acid?

Its really frustating me, my gout seems to be worst when im taking up hydroxyurea, is there a connection with it, hydroxyurea increase my uric acid? Thanks

Its really frustating me, my gout seems to be worst when im taking up hydroxyure...

Gringz_

•6 years ago

19 Replies

Interferon injection sites

Could anybody advise where I am able to inject my Interferon? I am currently doing it into my stomach but I am injecting every other day at present and my skin...

Could anybody advise where I am able to inject my Interferon? I am currently doi...

Poppy112

•6 years ago

10 Replies

Changing from Pegasys to peginterferon

Need to halve my dose from 90 to 45mcg due to abnormally high liver tests. Anyone made the switch? Will it be as easy to take as Pegasys has been?

Need to halve my dose from 90 to 45mcg due to abnormally high liver tests. Anyon...

MaryELWoods

•6 years ago

3 Replies

PV on Pegasys, now with high liver studies

How common is this? My doc said to “cut back” on alcohol....I drink a glass or two of wine a week, so I guess I should stop altogether? I appreciate your...

How common is this? My doc said to “cut back” on alcohol....I drink a glass or t...

MaryELWoods

•6 years ago

18 Replies

Lilly1958

Hi, my name is Lilly, I live in Melbourne , and have MPN ET for 26 years, but from September 2017 , I have PV too, start with venosection monthly and...

Hi, my name is Lilly, I live in Melbourne , and have MPN ET for 26 years, but f...

Lilly1958

•6 years ago

15 Replies

Colchicine- is it safe to take it if you have post PV Myelofibrosis?

My husband’s gout has been well controlled by Allopurinol for three years but he’s had a flare up for three days. ( He has post Ploycythaemia Myelofibrosis...

My husband’s gout has been well controlled by Allopurinol for three years but h...

Fika500

•6 years ago

5 Replies

Jak 2 positive ET

Hi all you lovely, wonderful people, hesitantly I wish to join and ask somequestions. I was diagnosed with JAK 2 positive Essential Thrombothaemia last August...

Hi all you lovely, wonderful people, hesitantly I wish to join and ask somequest...

MaggieMagpie49

•6 years ago

18 Replies

Links to latest research

I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting. I’ve run out of time to find the...

I thought it would be easier if I grouped all the links I’ve posted into one thr...

Paul123456

•6 years ago

19 Replies

Live Better With Cancer Books

I stumbled across this site whilst googling a book for a friend and what a great site for books related to cancer....

I stumbled across this site whilst googling a book for a friend and what a great...

Hidden

•6 years ago

3 Replies

TAlk by Kettli Mazzoco on burden of symptoms of ET

I wonder if anyone saw the lecture by Kettli Mazzoco some time ago. I have bloomed for it on line but cannot trace it. It was given during a range of talks...

I wonder if anyone saw the lecture by Kettli Mazzoco some time ago. I have blo...

Garden987

•6 years ago

11 Replies

Surity of confirmation of policythemia Vera by mution test.Wheather a patient of mutation resulted negative be a patient of policythemiavera

All my mutation test are negative.Am I a patient of policythemia Vera?

chsurchand

•6 years ago

2 Replies

Bruising

Good afternoon guys and gals, Yesterday I woke up with a bruise on my back, hot to touch, painful to touch, sore when I walk, sit, stand. I’m not really sure...

Good afternoon guys and gals, Yesterday I woke up with a bruise on my back, hot ...

Chelle_

•6 years ago

11 Replies

From Pegasys to Hydroxycarbamide

From Pegasys to Hydrea (Hydroxyurea- Hydroxycarbamide) Hi !! I would love to hear from someone who has gone from using Pagasys --and to using Hydrea tablets....

From Pegasys to Hydrea (Hydroxyurea- Hydroxycarbamide) Hi !! I would love to hea...

yarrowleaf

•6 years ago

4 Replies

"Damn Foreign Food", spluttered Biggles indignantly! Hydroxyurea the first 10 days

There he was at 4000 feet, not a care in the world, when suddenly..... Biggles performed a desperate falling leaf manoeuvre, and expertly side-slipped his...

There he was at 4000 feet, not a care in the world, when suddenly..... Biggles p...

stillkicking

•6 years ago

17 Replies

Vertigo and stomach acid

I’m on Pegasus and aspirin. I had 2 venesections one month apart. Since this second one I haven’t been well. My blood’s are all low normal. May all be a...

I’m on Pegasus and aspirin. I had 2 venesections one month apart. Since this sec...

EleanorPV

•6 years ago

25 Replies

Fun

Well I feel like I’m never going to have fun anymore. Diagnosed with ET in January Spending winter in Florida and am on hydroxy. Had a sip of wine got sick...

Well I feel like I’m never going to have fun anymore. Diagnosed with ET in Janua...

Petsch

•6 years ago

29 Replies

PV and sport

Hello all, i'm 58, suffer of PV discovered 10 years ago, and I'm on hydroxicarbamide in last year 2times be done flebotomie because overpassed limits of...

Hello all, i'm 58, suffer of PV discovered 10 years ago, and I'm on hydroxicarb...

cata

•6 years ago

12 Replies

Essential Thrombocytopenia ive been having a lot of bone pain lately is this normal or new?

Essential Thrombocytopenia Neoplasms

ALynnJohnston

•6 years ago

15 Replies

Pegasys and Hair Loss

Can anything be done to prevent hair loss with Pegasys? I’ve been on weekly 90mcg injections since the beginning of November and I’ve really noticed the hair...

Can anything be done to prevent hair loss with Pegasys? I’ve been on weekly 90mc...

MaryELWoods

•6 years ago

6 Replies

Tired after eating?

Does anyone else suffer from tiredness after eating? I have noticed it increasingly often recently, and today it hit whilst I was having lunch in a restaurant...

Does anyone else suffer from tiredness after eating? I have noticed it increasin...

Ovingite

•6 years ago

16 Replies

Consultants results

Hi friends aside from the slight rise in platelets i have also a mild macrocytosis , what ever that means , im also low on salt again even though i have uppes...

Hi friends aside from the slight rise in platelets i have also a mild macrocytos...

catwoman2015

•6 years ago

10 Replies

Hydroxy. Wonder pill!

I know that there are others who, like me, have just started on Hydroxy. And that many MPNers have expressed concerns and anxieties about commencing drug...

I know that there are others who, like me, have just started on Hydroxy. And tha...

Ebot

•6 years ago

13 Replies

Thoughts on PV/ET

There are a lot of new posters here (I’ve been here 3 months and feel like an old hand!) who are understandably nervous and worried. The dreaded cancer word...

There are a lot of new posters here (I’ve been here 3 months and feel like an ol...

Paul123456

•6 years ago

15 Replies

Achy feeling with Hydrea

Hi hope you are all well. Just a wee question please. I started Hydrea and Allopurinal 2 weeks ago. I take all 3 in the evening ( started of taking...

Hi hope you are all well. Just a wee question please. I started Hydrea and Allo...

mjfin72

•6 years ago

8 Replies

Heart palpitations

Hi everyone, I am getting more and more heart palpitations and pressure sensation in my face/ head. Have been ill with one of these nasty viruses all of...

Hi everyone, I am getting more and more heart palpitations and pressure sensati...

Bridie123

•6 years ago

7 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for March 2018

Apixaban

Sweats

Best holiday insurance for PV

Gout

increase in itchy after 5yrs

hydroxyurea can increase uric acid?

Interferon injection sites

Changing from Pegasys to peginterferon

PV on Pegasys, now with high liver studies

Lilly1958

Colchicine- is it safe to take it if you have post PV Myelofibrosis?

Jak 2 positive ET

Links to latest research

Live Better With Cancer Books

TAlk by Kettli Mazzoco on burden of symptoms of ET

Surity of confirmation of policythemia Vera by mution test.Wheather a patient of mutation resulted negative be a patient of policythemiavera

Bruising

From Pegasys to Hydroxycarbamide

"Damn Foreign Food", spluttered Biggles indignantly! Hydroxyurea the first 10 days

Vertigo and stomach acid

Fun

PV and sport

Essential Thrombocytopenia ive been having a lot of bone pain lately is this normal or new?

Pegasys and Hair Loss

Tired after eating?

Consultants results

Hydroxy. Wonder pill!

Thoughts on PV/ET

Achy feeling with Hydrea

Heart palpitations

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