Posts - MPN Voice | HealthUnlocked

MPN Voice

10,437 members • 14,387 posts

All posts for January 2018

Nuclear Medicine Tests?

Hi Have been seeing Haematology over past 4 months after being referred by my Rheumy with high haemoglobin and PCV. Haematology now referring me for further...

Hi Have been seeing Haematology over past 4 months after being referred by my Rh...

James53

•6 years ago

9 Replies

Back and forth anybody?

Hi everybody, I am taking Hydoxy since August and I am wondering if anybody has the same happening. At first my platelets came way down, so I was put on 500 mg...

Hi everybody, I am taking Hydoxy since August and I am wondering if anybody has ...

love0826

•6 years ago

8 Replies

vibration plate

anyone using a vibration plate to improve leg circulation?

EleanorPV

•6 years ago

6 Replies

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Magnesium for Restless Leg Syndrome

Magnesium for Restless Leg Syndrome https://drcarolyndean.com/2018/01/restless-legs-and-heart-disease/ Peter

Magnesium for Restless Leg Syndrome https://drcarolyndean.com/2018/01/restless-l...

flfair

•6 years ago

19 Replies

Lansoprazole

Hi everyone and Thankyou to all who responded to my post on IBS. My next concern is that I'm wondering how many of you take this every day long term because of...

Hi everyone and Thankyou to all who responded to my post on IBS. My next concern...

Pippa63

•6 years ago

15 Replies

For those taking HU, what kind of precautions do you take?

Hello. I am 59 & have just been prescribed 500 mg HU to lower my platelets & am so scared. Not only am I horrified that I will be taking a chemo pill for the...

Hello. I am 59 & have just been prescribed 500 mg HU to lower my platelets & am ...

bjay22

•6 years ago

37 Replies

Sickness

Hello everyone!! I have been on hydroxycarbamide since just before Christmas, with few side effects until yesterday & today when I have felt sick most of the...

Hello everyone!! I have been on hydroxycarbamide since just before Christmas, wi...

Sueworthington

•6 years ago

9 Replies

This looks a really promising new treatment

I have posted this link before but worth repeating for new members of this Board. RG7388 is an existing drug used in Acute Leukaemia, hence has a track......

I have posted this link before but worth repeating for new members of this Board...

Paul123456

•6 years ago

6 Replies

My Granddaughter Reina Evelyn 3 wks old

Hi Everyone This little cherub is keeping her Nana busy These days , All is well My Appointment went well 2 wks ago Platelets are 351 , pretty stable now...

Hi Everyone This little cherub is keeping her Nana busy These days , All is ...

Phelpsy

•6 years ago

26 Replies

Surgery

anyone had surgery with polycythanemia

Hidden

•6 years ago

19 Replies

Finger

Almost 12 months since being diagnosed with ET - currently on 3 Hydrea tablets per day and platelets down to 960 from the original 2000 - no particular side...

Almost 12 months since being diagnosed with ET - currently on 3 Hydrea tablets p...

Chris3875

•6 years ago

14 Replies

Confused

Hi I got diagnosed with E.T Jak 2 + in 2007/2008 after a Portal Vein Thrombosis.Also got pancreatitis and oesophagal varises (but never had them banded since...

Hi I got diagnosed with E.T Jak 2 + in 2007/2008 after a Portal Vein Thrombosis....

Swede

•6 years ago

20 Replies

CN: question about periods -

- - - - - - Hello, I'm 37yo and was diagnosed with ET two months ago. My platelets started rising seven years ago, and I've been experiencing symptoms for...

- - - - - - Hello, I'm 37yo and was diagnosed with ET two months ago. My platel...

LucyGeering

•6 years ago

12 Replies

SCTer

Good to see Chris (Jedireject) back online, even with that haircut! He’s got a lot more hair than me! Just landed from New Zealand where we atttended a...

Good to see Chris (Jedireject) back online, even with that haircut! He’s got a l...

MFBMT2011

•6 years ago

3 Replies

Flu

Hi People, I have ET, on Hydroxy and aspirin. Platelets high at this time I am 75 diabetic also. Have this horrid flu at the mo about 9 days in total. Doing...

Hi People, I have ET, on Hydroxy and aspirin. Platelets high at this time I am 7...

Stevesmum42

•6 years ago

28 Replies

Interferon v Peginteferon

If one chooses to go this route, which drug is most likely to be prescribed in the UK. I assume INF weekly doses but possibly greater side effects? Peg can be...

If one chooses to go this route, which drug is most likely to be prescribed in t...

Paul123456

•6 years ago

12 Replies

Anyone on hydroxyurea for calr positive? Any side effects?

Hi all I am 48yo, female diagnoised carl positive 2yrs ago and i did not start with any medication till yesterday dr wanted me to start with hydroxyurea 500mg,...

Hi all I am 48yo, female diagnoised carl positive 2yrs ago and i did not start w...

swess

•6 years ago

27 Replies

Polycythemia enquiry

I am being investigated for Polycycthemia. I'm currently awaiting a nuclear cell mass test but my blood request says ' monitoring on chemotherapy , why is this...

I am being investigated for Polycycthemia. I'm currently awaiting a nuclear cell...

Kwebb

•6 years ago

1 Reply

What is myeloprolifeative disease

What is myeloproliferative disease

Nanasuz

•6 years ago

2 Replies

Diet!

Hello Everybody! Can anyone tell me if they are eating as they always used to or is anyone following a special diet or trying to eat healthily also does anyone...

Hello Everybody! Can anyone tell me if they are eating as they always used to or...

Juliet46

•6 years ago

11 Replies

Possible pv

Last week i had blood tests for possible glandular fever as my glands are all swollen, I'm so tired, got a constant cold & pain on the left side of my......

Last week i had blood tests for possible glandular fever as my glands are all sw...

Vicky_b

•6 years ago

3 Replies

ALL MPN SUFFERS SCOTLAND

Due to lack of interest apart from aime Imogen my Aberdeen helpers and a kind gent from Lauder there will be no more posts about educating GPS about MPNS and...

Due to lack of interest apart from aime Imogen my Aberdeen helpers and a kind ge...

Scottishterrier

•6 years ago

10 Replies

Mad Eye and Moody

Hi Folks, hope the New Year is getting off to a good start for you, though I appreciate for some particularly those who have got the Flu virus it won't have....

Hi Folks, hope the New Year is getting off to a good start for you, though I app...

JediReject

•6 years ago

57 Replies

App ?

Is there an android app for healthunlocked or MPN voice yet ?

conno61

•6 years ago

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Blood pressure and HCT

My haematologist is suggesting my critically high BP isn’t linked to PV or my high HCT. Can anyone remember the name of the Italian specialist, who spoke about...

My haematologist is suggesting my critically high BP isn’t linked to PV or my hi...

EleanorPV

•6 years ago

7 Replies

MPN SUPPORT GROUP – BATH

A support group for people living with MPNs. This group will give you the chance to meet other people with MPNs and also the clinical nurse specialists...

A support group for people living with MPNs. This group will give you the chance...

Mazcd

Partner•6 years ago

2 Replies

IBS

Hi Was wondering if anyone on here suffers with IBS or symptoms relating to it . I have ET and take hu . I've had IBS several years ago but seem to be...

Hi Was wondering if anyone on here suffers with IBS or symptoms relating to it ....

Pippa63

•6 years ago

19 Replies

WORRIED: SORE TEETH

Hi Folks, Has anyone else had sore or achy teeth? I’m ET jak+ and on HU. My dose hasn’t changed but for the past few weeks my teeth have been aching, similar...

Hi Folks, Has anyone else had sore or achy teeth? I’m ET jak+ and on HU. My do...

katiewalsh

•6 years ago

6 Replies

Newly diagnosed with pv

Hi, I'm carolyn,52 yrs,and was diagnosed by chance a week before Christmas. My eye consult ordered some blood tests and within 2 hours I had been contacted by...

Hi, I'm carolyn,52 yrs,and was diagnosed by chance a week before Christmas. My e...

Carolyn77

•6 years ago

11 Replies

Amlodopine

Is anyone else taking blood pressure medication as well as clopidogrel and hydroxycarbamide.? I am currently still taking amlodopine and bendroflumethiazide....

Is anyone else taking blood pressure medication as well as clopidogrel and hydro...

Juliet46

•6 years ago

16 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for January 2018

Nuclear Medicine Tests?

Back and forth anybody?

vibration plate

Magnesium for Restless Leg Syndrome

Lansoprazole

For those taking HU, what kind of precautions do you take?

Sickness

This looks a really promising new treatment

My Granddaughter Reina Evelyn 3 wks old

Surgery

Finger

Confused

CN: question about periods -

SCTer

Flu

Interferon v Peginteferon

Anyone on hydroxyurea for calr positive? Any side effects?

Polycythemia enquiry

What is myeloprolifeative disease

Diet!

Possible pv

ALL MPN SUFFERS SCOTLAND

Mad Eye and Moody

App ?

Blood pressure and HCT

MPN SUPPORT GROUP – BATH

IBS

WORRIED: SORE TEETH

Newly diagnosed with pv

Amlodopine

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