Posts - MPN Voice | HealthUnlocked

This in-person forum was held in Galway, Ireland on Sat 24 June 2023, with MPN patients and family/friends attending from across Ireland. Programme...

Partner•9 months ago

4 Replies

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Video of the MPN Voice patients’ in-person forum Galway, Sat 24 June 2023

This in-person forum was held in Galway, Ireland on Sat 24 June 2023, with MPN p...

Partner•9 months ago

Tuesday 7 November, 1 - 5 pm (arrival/registration from 1pm with complimentary buffet lunch) Venue Thackray Museum of Medicine 141 Beckett Street...

MPN Voice Patients’ Forum – Leeds, Rotherham, Sheffield teams combined

Tuesday 7 November, 1 - 5 pm (arrival/registration from 1pm with complimentary b...

Partner•11 months ago

Friday 21 July, 4 - 8 pm (arrival/registration from 4 pm with complimentary light buffet) Venue Future Inn Bristol Bond Street South Bristol BS1 3EN...

MPN Voice Patients’ Forum – Gloucester & S Wales teams combined

Friday 21 July, 4 - 8 pm (arrival/registration from 4 pm with complimentary ligh...

Monday 17 July 2023, 1 – 5 pm (arrival/registration from 1 pm with complimentary buffet lunch) Venue Mercure Nottingham Sherwood Hotel 296 Mansfield...

Partner•11 months ago

3 Replies

MPN Voice Patients’ Forum – Nottingham & Birmingham teams combined

Monday 17 July 2023, 1 – 5 pm (arrival/registration from 1 pm with complimentary...

Partner•11 months ago

This MPN Voice ‘virtual’ forum will focus on Genetics and MPNs, with presentations from: Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Dr Jonathan...

MPN Voice ‘virtual’ forum – Genetics and MPNs Thu 25 May 2023, 5 – 6.30 pm (BST)

This MPN Voice ‘virtual’ forum will focus on Genetics and MPNs, with presentatio...

Partner•1 year ago

This will be the 7th Living with MPNs Day that MPN Voice has hosted, it is an all-day event held in London, for MPN patients, their family, friends and carers...

Save the date: MPN Voice Living with MPNs Day 2023 - Saturday 18th November

This will be the 7th Living with MPNs Day that MPN Voice has hosted, it is an al...

Partner•1 year ago

1.30 pm – 5 pm (arrival/registration from 1 pm with buffet lunch) Venue: The Royal Station Hotel, Neville Street, Newcastle-upon-Tyne NE1 5DH THIS IS AN...

MPN Voice Patients’ Forum – Newcastle-upon-Tyne Friday 13 October 2023

1.30 pm – 5 pm (arrival/registration from 1 pm with buffet lunch) Venue: The Ro...

Partner•1 year ago

1.00 pm – 5 pm (arrival/registration from 1 pm with buffet lunch) Venue: The Imperial Hotel, Vaughan Street, The Promenade, Llandudno LL30 1AP THIS IS AN...

MPN Voice Patients’ Forum in-person – Llandudno Friday 22 September 2023

1.00 pm – 5 pm (arrival/registration from 1 pm with buffet lunch) Venue: The Im...

Partner•1 year ago

10.00 am – 4.30 pm (arrival/registration from 10 am with tea/coffee/pastries) The Galway Bay Hotel, The Promenade, Salthill, Galway H91 W295 THIS IS AN...

MPN Voice patients’ forum – Galway Saturday 24 June

10.00 am – 4.30 pm (arrival/registration from 10 am with tea/coffee/pastries) T...

This online forum focused on Menopause, HRT and MPNs, with guest speaker Debra Holloway, Nurse Consultant Gynaecology, Guy’s & St Thomas’ NHS Foundation Trust....

Partner•1 year ago

3 Replies

video of the MPN Voice patients’ virtual forum, London, 12 Jan 23 – Menopause, HRT and MPNs - now available to view

This online forum focused on Menopause, HRT and MPNs, with guest speaker Debra H...

Partner•1 year ago

This online forum focussing on ET – featured talks from: Dr Anna Godfrey, Cambridge University Hospitals; Prof Mary Frances McMullin, Queen’s University...

The video of the MPN Voice patients’ ‘virtual’ forum, held on Wed 7 Sep 2022, is now available to view.

This online forum focussing on ET – featured talks from: Dr Anna Godfrey, Cambri...

Partner•2 years ago

This will be the 6th Living with MPNs Day that MPN Voice has hosted, it is an all-day event held in London, for MPN patients, their family and friends to hear...

The MPN Voice Living with MPNs Day – Saturday 5th November 2022 REGISTRATION NOW OPEN!

This will be the 6th Living with MPNs Day that MPN Voice has hosted, it is an al...

Partner•2 years ago

I had mild shingles (not bad blisters) as I'd had the injection but much pain in my teeth. But following the acyclovir course and things subsided the pain in...

Post Shingles Pain

I had mild shingles (not bad blisters) as I'd had the injection but much pain in...

omits

•2 years ago

8 Replies

Save the Dates for 3 MPN Voice in-person patients’ forums

We are very pleased to announce that we will be holding 3 in-person patients’ forums in the coming months, full details will be announced shortly, but in the...

We are very pleased to announce that we will be holding 3 in-person patients’ fo...

Partner•2 years ago

This MPN Voice ‘virtual’ forum will feature talks from: Dr Anna Godfrey, Dr Joanne Ewing, Professor Mary Frances McMullin and Professor Claire Harrison....

MPN Voice ‘virtual’ forum, Wed 7th September 2022, 4.30 – 6.15 pm (16:30 – 18:15) BST

This MPN Voice ‘virtual’ forum will feature talks from: Dr Anna Godfrey, Dr Joa...

Partner•2 years ago

This online forum – Symptom Management - featured talks from: Claire Woodley, Advanced Nurse Practitioner, Guy’s & St Thomas’ Hospital (GSTT) and Lauren Urwin,...

Video of the MPN Voice patients’ virtual forum, 11 July 2022

This online forum – Symptom Management - featured talks from: Claire Woodley, Ad...

Partner•2 years ago

This online forum will feature talks from: Claire Woodley, Advanced Nurse Practitioner, Guy’s & St Thomas’ Hospital (GSTT) and Lauren Urwin, Specialist...

MPN Voice ‘virtual’ forum – Mon 11th July 2022, 4.30 – 6.15 pm (16:30 – 18:15) BST

This online forum will feature talks from: Claire Woodley, Advanced Nurse Practi...

Partner•2 years ago

Long trips with Besremi. What do you use to have in temperatura this medication? Thanks

Traveling with Besremi

Long trips with Besremi. What do you use to have in temperatura this medication?...

SoledadBarcelona

•2 years ago

13 Replies

Living with PV

Hi I'm new here and I've just been diagnosed with PV and taking hydroxycarbamide, 1 tablet per day 2 at weekends along with allopurinol for the gout symptoms...

Hi I'm new here and I've just been diagnosed with PV and taking hydroxycarbamid...

Swim360

•2 years ago

11 Replies

Video of the MPN Voice patients’ in-person forum Cork, Sat 21 May 2022

This was the first in-person forum MPN Voice has held since the end of 2019, it was very well attended by MPN patients, with their families and friends, from...

This was the first in-person forum MPN Voice has held since the end of 2019, it ...

PEN (Patient Empowerment Network) is hosting a MPN webinar entitled “Clinical Trials as an MPN Treatment Option: What You Should Know.” Watch online on...

Partner•2 years ago

3 Replies

A webinar with the Patient Empowerment Network - Clinical Trials as an MPN Treatment Option: What You Should Know

PEN (Patient Empowerment Network) is hosting a MPN webinar entitled “Clinical Tr...

Partner•2 years ago

I am female 76, take no medications, asymptomatic, my platelet count is 760,000.I asked GP my Dx. He said there is no dx you are great. Red BLood cell count 1...

Asymptomatic!! Feel great! Should I wait?

I am female 76, take no medications, asymptomatic, my platelet count is 760,000....

BrookTownsend375

•2 years ago

24 Replies

ET MPL HELP

Can anybody give me advice how to go about getting to see a mpn specialist and also one near Manchester.also what is the best treatment for ET MPL .thank you.

Can anybody give me advice how to go about getting to see a mpn specialist and a...

10061950

•2 years ago

8 Replies

Have ET for last five years, pregnant and on aspirin…need advice!!

Hello everyone, I am 23 weeks pregnant on aspirin 100mg. Although my platelets are in normal range after getting pregnant, which is due to pregnancy off...

Hello everyone, I am 23 weeks pregnant on aspirin 100mg. Although my platelets ...

mustabshra

•2 years ago

4 Replies

Had booster vaccine done 7weeks ago came down with covid on Tuesday 16 has anyone got the covid after having the booster

Cornsviris

Hidden

•2 years ago

46 Replies

Video of the MPN Voice ‘Virtual’ Patients’ Forum – Belfast, now available to view

Held on Saturday 13th November 2021 The video of the forum is now available to view on the MPN Voice YouTube channel....

Held on Saturday 13th November 2021 The video of the forum is now available to v...

Partner•2 years ago

Held on Friday 15th October 2021 The video of the forum is now available to view on the MPN Voice YouTube channel. Click on the link below to view the video....

Video of the MPN Voice ‘Virtual’ Patients’ Forum – Liverpool/Chester/N Wales, now available to view

Held on Friday 15th October 2021 The video of the forum is now available to view...

Partner•3 years ago