increase in itchy after 5yrs: i have pv for... - MPN Voice

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increase in itchy after 5yrs

Dianadors profile image
15 Replies

i have pv for 5 years. latley i have very bad iching. even when not useing water. what can i do to get rid of it please?

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Dianadors profile image
Dianadors
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15 Replies
Aime profile image
Aime

Hi, I’m on two different anti histamines from my GP. Using cooler water rather than hot is better, make sure you are well hydrated too. I find if I keep my skin well moisturised that helps a lot - Aveeno is my favourite brand at the moment along with Olay shower cream.

Hope that helps you, it really is horrible when you’re really itchy.

Kindest regards Aime xx😺😺

Dianadors profile image
Dianadors in reply to Aime

Hi Aime, thanks for the reply. i wil look into getting anti histamines from my GP. i find moisturizing itches my skin. so will try the meds.

regards Diana

mhos61 profile image
mhos61

I love aveeno too Aime!

EleanorPV profile image
EleanorPV

Yes 2 different antihistamines. I also use double base shower gel. I need heat to lesson my itch response (I seem to be unusual).

Jlb700 profile image
Jlb700

I’ve also had pv for 5 years have more itching than usual during the cold weather. Washing makes it worse use lots of moisturiser have found keeping warm and lots of layers of thin clothing helps

Dianadors profile image
Dianadors in reply to Jlb700

Interesting cold weather making things worse, roll on warmer weather!

daisystar profile image
daisystar

Hi, I find that baths with lots of epsom salts/dead sea salts help me as well as epsom salts shower gel for showers, with magnesium body lotion afterwards, if necessary. I have some itching without contact with water (for example when I get dressed) but I haven't figured out how to deal with that, except that when it was really bad on a couple of occasions, I sat in a bath with a little water and lots of salts to cover my legs (where the itching was worst). The itching disappeared after a couple of minutes. X

Dianadors profile image
Dianadors in reply to daisystar

Hi, yes lately i get itch when undressing. I haven't dared to sit in cold water. maybe i will if its really bad.

AmandaS profile image
AmandaS

It is probably a change in temperature setting off your itching, especially if bare skin is exposed (showering, getting into bed, going to the bathroom etc). I agree with all the suggestions to shower in cool water for the quickest time possible using Double Base or similar, then I get dressed under the bed clothes. Moisturise well with a scent free emollient.

It is probably worth getting your blood counts checked as my itching is definitely worse when my counts are higher. I went through a ton of options from antihistamines, Amyltriptyline to steroids. The steroids were the only thing that made a difference for me. But long-term use is not recommended and I'm dreading coming off them soon.

Hope you find some relief, Amanda

Dianadors profile image
Dianadors in reply to AmandaS

Amanda your experience is interesting. i found a steroid i was given for a mouth ulcer got rid of the itch for awhile. thanks for the reply.

Mazcd profile image
MazcdPartnerMPNVoice

Hi Diana, sorry you are suffering with the itch, this information on our website might help

mpnvoice.org.uk/living-with...

best wishes, Maz

Fionnuaghla profile image
Fionnuaghla

Hi Diana

The “itchies” can be a real Nusiance. I get very itchy on the tops of both of my arms. E45 Itch Relief works well for me as a cream to rub in and soothe. I also use it in the shower instead of gel or soap.

Warm regards

Dianadors profile image
Dianadors in reply to Fionnuaghla

thanks for the tip, i will try E45 itch relief. regards D

bjay22 profile image
bjay22

Hi, I don't know if regular Claritin allergy pills are OTC in the UK, but that is what I take here to keep my maddeningly itchy skin at bay. For me just taking 1 or 2 a week keeps the itchiness under control. In the winter I also wear a man’s cotton undershirt under all my regular tops because just the breeze of cool air on my bare skin can sometimes trigger the itch. And unlike many allergy pills, Claritin doesn’t have anything in it to make you drowsy. Good luck.

Dianadors profile image
Dianadors

Thanks for the tips. i will look into the claritin, regards D

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