Posts - MPN Voice | HealthUnlocked

MPN Voice

10,340 members14,250 posts

All posts for July 2017

Newly diagnosed and curious

Hello everyone, Had Jak2 test in March and searching for information led me to ...
lizk1993 profile image

High Hemaglobin

Hi buddies, well, good news my E.T is almost under control. Saw my consultant to...
Lainy1 profile image

Ruxolitinib

I would be really grateful those of you taking Ruxolitinib could tell me the ben...
Fika500 profile image
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bladder problems

Hi everyone, Woke up yesterday not feeling 100% but just shook it off. This mor...
jillydabrat profile image

Hi I'm jr3093

19 years with Pv, and now I'm blessed with mf. By attending a forum I found out ...
jr3093 profile image

After 4 weeks on Hydroxy comments and questions

I final decided to start the hydroxy. 4 weeks ago and since have had two blood t...
nanmc profile image

Curcumin

Hi everyone. I know someone posted about curcumin not sure if they are taking it...
eire profile image

Danib0923

hi Dani I have ET jak2+ since 1994 it was diagnosed by bone marrow test I pity ...

Hydro v Interferon

PV JAK2+, been on Hydro, Aspirin and Veneseaction. Only one venesection this yea...
shiftzz profile image

Painful sores excruciating pain on my scalp. itchings started on my cheeks and open sores ate my skin woulda heel

Went to dermatologist internal medicine Dr specialist they tested me for everyth...
Tnthmtz profile image

First time post

Hello, this is my first time reading a forum. I am 31yr old with ET with a cal-r...
Hidden profile image

Thank You!

I'm so delighted with this forum and I can't thank you enough for not only the s...
fran57paul profile image

chronic fatigue

I to also suffer from chronic fatigue I have ET JAK2 positive I told my consult...

Constant fatigue

Hi everyone, I'm new here and am so happy to read what others have written and I...
fran57paul profile image

Advice Please

This is one for Maz really but if anyone else has any comments, please feel free...
Connie46 profile image

Need advise

My husband was diagnosed wjth secondary pv which is caused by smoking cigs well ...
Samanthaiscool profile image

Just about to get a transfusion to see if it helps the fatigue.

Hi Tried to post earlier but not sure it worked so this might be a repeat. I'm ...

Newly diagnosed

Hi, I have recently been diagnosed with ET jak 2 positive. I am taking Hydroxyca...
Anne2751 profile image

Curcumin

Seriously thinking of trying 'curcumin' however, some people have posted that t...
mhos61 profile image

Not a Jak2 mutation PV

Hi there - my dad has discovered he has PV. Coincidently so does my grandma, an...
Sam000 profile image

Keeping active with ET

Me and my grankids keep me going even on bad days they bring a smile to my face
Jbut profile image

HOPE FOR MANY

https://www.nytimes.com/2017/07/23/health/gene-therapy-cancer.html New innovativ...
light profile image

I'm feeling a lot better... I think my platelet factory may have joined a union and have better pay and conditions!

I was a bit embarrassed by my last post as it was long and miserable, and I was ...
stillkicking profile image

Having ET

After 3 mini strokes found out i have ET,that was 8 years ago at the age of 39,b...
Jbut profile image

Newbie Here

I was diagnosed in April of this year; after multiple blood draws & BMB, I was d...
EllenKay67 profile image

Does anyone else with PV get achey thighs?

Hello - this is my first post! I was diagnosed with PV in May (aged 45) and it's...
Disney71 profile image

It's a Nice Day for a White Wedding

Hi Folks , , just a social post to prove that despite my current issues battling...
JediReject profile image

Vascular disturbance

Hi. Sorry to trouble you all again but would love some advice I have jak 2 + ET ...
Margo18 profile image

Polycythemia....should I actually worry....??

I don't know whether I should worry or not...I have hb of 17.5 my RBCs are just ...
Mnnvv profile image

ITCHY and bitchy for aime

hi aime I was in the same position as you were I was referred to another hospita...