Posts - MPN Voice | HealthUnlocked

MPN Voice

10,432 members • 14,375 posts

All posts for December 2017

stress and anxiety

Hi all sorry havent been on here lately , lots of personal losses overe christmas and prior, my hubby is. now in hospital also with bad pnuemonia , im finding...

Hi all sorry havent been on here lately , lots of personal losses overe christma...

catwoman2015

•6 years ago

34 Replies

PV Reporter interviews Dr. Raajit Rampal at ASH 2017, part 1

Advanced Forms of MPNs are Associated with Chromosomal Abnormalities Involved in Disease Progression -...

Advanced Forms of MPNs are Associated with Chromosomal Abnormalities Involved in...

PVReporter

•6 years ago

3 Replies

CBD oil, not saying it's for everyone but...

I went against my consultant's opinion, he wouldn't advise me either way, just said he would not take CBD oil personally because the production of it is not...

I went against my consultant's opinion, he wouldn't advise me either way, just s...

Mica11

•6 years ago

46 Replies

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Hydrea, immune system and Vitamin C

Hi everyone. First of all, I wish you all a very happy new year and one that's as healthy as possible. My year is not ending well! I have nasty cellulitis on...

Hi everyone. First of all, I wish you all a very happy new year and one that's a...

Splb3317

•6 years ago

12 Replies

Folate, Folic Acid and Homocysteine

I had a homocysteine test done privately, it is quite high at 15, normal range is below 10. I have been taking Vit B complex for years, but the doctor...

I had a homocysteine test done privately, it is quite high at 15, normal range...

Searcher56

•6 years ago

1 Reply

Can PV remains undetected for 10 years

Hi Season’s Greetings for you and your beloved ones everyone. I am new here . I am 45 years male and a husband of wonderful supportive wife. My story:...

Hi Season’s Greetings for you and your beloved ones everyone. I am new here ....

JAKBP

•6 years ago

6 Replies

Severe leg joint pain

I have PV and am on Pegasys 90 mcg weekly. I have terrible hip and knee joint pain. I also get severe muscle cramps in my feet, calves, and thighs. My...

I have PV and am on Pegasys 90 mcg weekly. I have terrible hip and knee joint pa...

MaryELWoods

•6 years ago

20 Replies

PVR blood test results

Hi have had PVR for three years and on hydro 500 mg 4 days and 1000 mg 3 days. Just got copy letter from consultant which says hb 149 g/L, WBC 6.5 c 109/ L,...

Hi have had PVR for three years and on hydro 500 mg 4 days and 1000 mg 3 days. J...

Anneian

•6 years ago

10 Replies

Leeds teaching hospitals

Hello Anyone happy to share their experience of haematologists here? Have you any good tips?

Hello Anyone happy to share their experience of haematologists here? Have you an...

Ramy22

•6 years ago

7 Replies

PV JAK2 Negative and Worried

42 years old. Husband and Father of a 3 and 11 year old girls. Went to the doctor because I had been feeling extremely fatigued. My primary care doctor took...

42 years old. Husband and Father of a 3 and 11 year old girls. Went to the doct...

osuguy45

•6 years ago

30 Replies

Good wishes all.

Happy Christmas to one and all. It’s great to see that we are still thinking of our wonderful site and friends at this time. Thanks to all of you who write...

Happy Christmas to one and all. It’s great to see that we are still thinking of ...

Stevesmum42

•6 years ago

1 Reply

Help with keeping hydrated.

Hi and Merry Xmas, Over the months I have seen a number of posts from people concerned about staying hydrated and how do you count how much water you have had...

Hi and Merry Xmas, Over the months I have seen a number of posts from people co...

JohnSC

•6 years ago

3 Replies

Merry Christmas to all my on line buddies .xxx❤️😘😍❤️

Hope for you all in the new year 2018 ..healthy happy days ..calm peaceful nights .with excellent results at your clinic appointments ... Remember to eat...

Hope for you all in the new year 2018 ..healthy happy days ..calm peaceful night...

Twinkly

•6 years ago

2 Replies

Hot feet and hands

Happy Christmas everyone! My poor hubby hardly slept for past few nights with burning feet and hands. Anyone else had this? He has PV (Jak 2 positive) with...

Happy Christmas everyone! My poor hubby hardly slept for past few nights with bu...

MarybellM

•6 years ago

17 Replies

Happy Christmas

Happy Christmas to everybody on here that have supported me after being newly diagnosed a few weeks ago and for all the valuable information I have learnt from...

Happy Christmas to everybody on here that have supported me after being newly di...

Poppy112

•6 years ago

3 Replies

Thinking of you At Christmas x

Merry Christmas 🎄 To my wonderful extended Blood family x Where would we be without each other ♥️ I hope you all have a lovely festive holiday Stay safe &...

Merry Christmas 🎄 To my wonderful extended Blood family x Where would we be wi...

Phelpsy

•6 years ago

9 Replies

Fascinating drug comparison table

This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it is but definitely...

This has been posted on MPN-Net, not seen it before. Since every specialist seem...

Paul123456

•6 years ago

10 Replies

Christmas

Merry Christmas and a happy and peaceful New Year to you all. I have

nivana

•6 years ago

6 Replies

Erythromalalgia Treatment

Anybody with experience (success?) treating erythromalalgia with nerve block or surgery to cut sympathetic nerves? This frequent, severe aching pain and...

Anybody with experience (success?) treating erythromalalgia with nerve block or ...

Jerrymohler

•6 years ago

7 Replies

Seasons Greetings.....

I would like to wish everyone a very Happy Christmas and a Guid New Year to you all from "Bonnie Scotland".x

I would like to wish everyone a very Happy Christmas and a Guid New Year to you ...

violeta19

•6 years ago

10 Replies

all mpn voice members

I would like to wish you all a merry Christmas and a happy new year as for scots we will be celebrating from Hogmanay hope 2018 will bring better health and in...

I would like to wish you all a merry Christmas and a happy new year as for scots...

Scottishterrier

•6 years ago

6 Replies

Happy Christmas everybody!

Hope you all enjoy a wonderful Christmas and that 2018 will bring us all health and happiness! An unlikely source of wisdom (Joe Pasquale) said this the other...

Hope you all enjoy a wonderful Christmas and that 2018 will bring us all health ...

Hidden

•6 years ago

2 Replies

A very merry Christmas

I would like to wish everyone a very Happy and Healthy Christmas Looking forward to reading more of your posts in the New Year.

I would like to wish everyone a very Happy and Healthy Christmas Looking forwar...

Nettie22

•6 years ago

2 Replies

Greetings

Merry Christmas and a very Happy New Year to Everyone

Sksarj

•6 years ago

8 Replies

E T and Vitamin d

Hello everyone, wondering if anyone else is low on vitamin d. I was seen in immunology this week. My consultant is shocked I'm still walking around, my vitamin...

Hello everyone, wondering if anyone else is low on vitamin d. I was seen in immu...

linphy

•6 years ago

13 Replies

Happy Christmas to everyone

So here we are it's Christmas Eve and this years almost done We've laughed, we've cried and tried our best our trials to overcome. I've coffee'd once again...

So here we are it's Christmas Eve and this years almost done We've laughed, we'v...

Sand-Dancer

•6 years ago

5 Replies

Travelling abroad with ET

Hi there, my mum has recently been diagnosed with ET and been put on a relatively low dose of HU. She's 71 but still likes to regularly travel abroad to places...

Hi there, my mum has recently been diagnosed with ET and been put on a relativel...

Spearsey89

•6 years ago

13 Replies

To my MPN family

Wishing you Merry Christmas and Happy New Year. May God shower over us all healing, comfort and peace blessings.

Wishing you Merry Christmas and Happy New Year. May God shower over us all heal...

light

•6 years ago

1 Reply

Trying to Hibernate

Hello All, it's been a good while since I posted and some of my long standing Forum friends might be wondering if I'm still kicking and breathing. I am !....

Hello All, it's been a good while since I posted and some of my long standing Fo...

JediReject

•6 years ago

31 Replies

Consultation with a Private Doctor

I am 61 and have ET. I was on 2x500mg Hydroxy plus 75mg Aspirin. I stopped taking it in September. In December I went to see a private doctor in Harley...

I am 61 and have ET. I was on 2x500mg Hydroxy plus 75mg Aspirin. I stopped tak...

Searcher56

•6 years ago

22 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2017

stress and anxiety

PV Reporter interviews Dr. Raajit Rampal at ASH 2017, part 1

CBD oil, not saying it's for everyone but...

Hydrea, immune system and Vitamin C

Folate, Folic Acid and Homocysteine

Can PV remains undetected for 10 years

Severe leg joint pain

PVR blood test results

Leeds teaching hospitals

PV JAK2 Negative and Worried

Good wishes all.

Help with keeping hydrated.

Merry Christmas to all my on line buddies .xxx❤️😘😍❤️

Hot feet and hands

Happy Christmas

Thinking of you At Christmas x

Fascinating drug comparison table

Christmas

Erythromalalgia Treatment

Seasons Greetings.....

all mpn voice members

Happy Christmas everybody!

A very merry Christmas

Greetings

E T and Vitamin d

Happy Christmas to everyone

Travelling abroad with ET

To my MPN family

Trying to Hibernate

Consultation with a Private Doctor

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