Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for July 2013

I was told I had a high rbc count at the beginning of the year and was told to stop smoking. Can smoking alone cause this problem?

•11 years ago

Can anyone advise about blocked tubes in the ears. Its like when you get water trapped in your ear but it doesn't clear.

This has been driving me crazy for weeks, I just can't clear my hearing, blowing my nose, yawning etc is just not helping. Its making me dizzy and I am...

This has been driving me crazy for weeks, I just can't clear my hearing, blowing...

•11 years ago

Erythromelalgia

Hi all Anyone else suffer with the above especially in toes and been prescribed anything for it? My second toe is red, really swollen and paniful to the point...

Hi all Anyone else suffer with the above especially in toes and been prescribed...

•11 years ago

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I have PV, am Jak2 positive and being treated with Hydroxyurea and phlebotomy. Has anyone tried hemp oil to stop proliferation of cells?

•11 years ago

Does anyone with PV suffer with Vertigo? If you have how long have you suffered with it?

Was diagnosed with PV Oct 2012, was having vertigo issues at that point. Been on/off inner ear tabs since Feb and recently had a neck xray all clear, I'm glad...

Was diagnosed with PV Oct 2012, was having vertigo issues at that point. Been on...

•11 years ago

Patients' Forums 2013

We are pleased to announce that there will be two patients’ forums in September 2013 in London and Colchester. Forums are a great place to meet fellow...

We are pleased to announce that there will be two patients’ forums in September ...

Partner•11 years ago

Is anyone getting blisters on their feet???

I've been on hydroxyurea for over a year now and have been getting blisters all over my feet. They are driving me crazy!!! Appointment with GP next week but...

I've been on hydroxyurea for over a year now and have been getting blisters all ...

•11 years ago

Does anyone know where in the body interferon reduces the platelet count?

Because interferon, hydroxycarbamide, anagrelide et. aren't cures, I think the bone marrow makes just as many platelets as ever, but by the time the blood is...

Because interferon, hydroxycarbamide, anagrelide et. aren't cures, I think the b...

•11 years ago

Does Anyone Know Where in the Body Interferon Reduces the Platelet Count?

Because interferon, hydroxycarbamide etc. aren't cures, I think the bone marrow makes as many platelets as ever, but somewhere before blood is taken out and...

Because interferon, hydroxycarbamide etc. aren't cures, I think the bone marrow ...

•11 years ago

Are there any minimum standards that we can expect in the way our mpn's are managed?

I have been interested to read everyones varying views and opinions on how well they feel their condition is managed, it would be interesting to know if their...

I have been interested to read everyones varying views and opinions on how well ...

•11 years ago

Is anyone else bothered with leg and foot cramps? I have PV Jak 2 negative.

After each venesection for about 2-3 weeks I get bothered with leg and foot cramps, particularly in bed at night. I asked my haematologist and was told it was...

After each venesection for about 2-3 weeks I get bothered with leg and foot cram...

•11 years ago

New Platform and some changes

Hi everyone, well as you can see HealthUnlocked have now launched their new platform and it certainly does look different! The HU team have been working...

Hi everyone, well as you can see HealthUnlocked have now launched their new plat...

Partner•11 years ago

I've just started on hydroxycarbamide and read having to stay out of the sun unless plastered in sunblock. Is skin extra sensitive? Discuss!

•12 years ago

Update, probaby posted in the wrong bit

Hi all, Just wanted to update you all. Just seen haematologist and he confirmed I have ET and Jak2 poss. Put me on aspirin and practically shoved me out of...

Hi all, Just wanted to update you all. Just seen haematologist and he confirm...

•12 years ago

I'm newly diagnosed and wondering about any good sites for travel insurance please

•12 years ago

Rejected claim because of occupational health, (just read malachy).

I had 2 minor strokes in May 2011 brought on by PV. I had a claim in through work for critical illness but my claim was rejected because the occupational...

I had 2 minor strokes in May 2011 brought on by PV. I had a claim in through wor...

•12 years ago

I have ET and I have been on Hydroxycarbamide for 18 months and my platelet count has been static for the last year down at around 420.

At my last check my count had dropped down to 310. I am due for a further check in August, is this sudden drop anything I should worry about or can this just...

At my last check my count had dropped down to 310. I am due for a further check ...

•12 years ago

PV and just confirmed I've now got an enlarged spleen

After several months of upper abdominal pain, was finally sent for an ultra sound scan, it's confirmed I now have an enlarged spleen, now waiting to see my...

After several months of upper abdominal pain, was finally sent for an ultra soun...

•12 years ago