MPN Voice | HealthUnlocked

MPN Voice

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Burning sensation

Can anyone tell me if this is an MPN symptom please. At first I periodically get...

Phone Appointment with professor Harrison

I had appointment today. Was organised , sending her photo of my arm , blood t...

Mediterranean diet

Being a bit lazy here but can anyone point me in the right direction for resourc...

Home today!!!!!

Neutrophils are 0.6 and I'm going home today! Having a transfusion first and wai...

Morning medication

Hi all, Just wondered if anyone could give me a bit of advice here. I have been...

A bit of drama on Besremi

(there's a sort of survey question near the end) I've been on it for 3 months no...

Surprised at results. An update.

My dear friends. Just sharing my update. So I started 6 weeks ago taking Intefe...

Another little update

Hello friends! Today marks six weeks in hospital and I have to say I am genuinel...

It never rains but it bleep bleep pours!

A follow up from my last post. It appears that the fungal/mould spores from our ...

MPN Specialist

We just got word that one of the lead MPN Specialists at Johns Hopkins (my curre...

What’s next!

Hi Guys, sorry I need a moan and I know I should be grateful it’s not the big C ...

Any eye problems?

Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with pa...

A moan with a twist!

Those of you who know me know that it’s not usually in my repertoire to moan but...

Very bad headache when I wake up!

Hi all I have ET Jak2+ at 8% platelets 415 diagnosed 2020 and have been taking ...

Update

Hello friends. I thought I would let you know how things are going here at South...

High platelet count, new doctor said normal. HELP

Hi, hope everyone is well. Im am 37 years old and I've been having blood tests e...

First Visit With My MPN Specialist!

Oh my goodness! There was no comparison to the level of care I’ve been rec...

My husband and I both diagnosed at the same time with ET JAK2

Hi everyone. ET is not a rare illness in our household. I’m 69 and Dave is 74. D...

Update 6.4

Good news from the most recent CBC. HCT back down to 43.8. As my iron levels co...

5th Vaccine

Hello. I have been to the vaccination centre this morning for my 5th vaccine who...

Encouraging treatment pipeline for all blood cancers

https://www.prnewswire.com/news-releases/phrma-report-more-than-500-medicines-in...

Latest CBC CMP Besremi 3+ months

Just an update on current numbers as Bes continues. I wrote about eye concerns ...

Considering Besremi

Hi all (first post) i am 76 & was diagnosed with PV 3 years ago. I am just being...

Hydroxy Side effect

Previously I have reported no side effects , but as time goes on I’m having very...

Bone marrow biopsy and driving

Hi all. I’ve got my first ever bone marrow biopsy on Monday. Turns out to be ter...

How often should we have erythropoietin and LDH checked?

Hi there, When I was seeing my specialist at Vanderbilt, he was checking my Ery...

BMB

Diagnosed with et mpl positive 18 months ago.consultant said she didn’t Need to ...

Interferon alpha

I am now 64 and was diagnosed with polycethmia Vera in January 2021. I have the...

Bone marrow biopsy 2 times same day

Today I did BMB, I have been clarified why I couldn’t eat for 4 hours , was rela...

Covid treatment

I'm ill with Covid, fainting, temperature, bad throat, sneezing, cough. tested p...
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