MPN Voice | HealthUnlocked

MPN Voice

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Platelet raise

Hi, just wonder if anyone has had the following issues. Been on Hydroxy now nea...

Relapse, Coping with less Hope

I've had a uniquely good three weeks and was starting to get used to it. No fear...

mouth ulcers

anyone have mouth ulcers on tongue whilst taking hydroxycarbamide ? I have ET j...

Potential adverse effects of long-term venesection used to treat PV.

I got curious after watching the Richard Silver presentation that was recently p...

Blurry Vision Issues

I know I am 67 now and changes happen but I had never had a problem with my long...

Life beyond Myelofibrosis

I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged s...

Sun screen

Hi Folks, today I had one of my many cycling rides which always includes a stop ...

ET-The mental aspect

M52, diagnosed with ET/JAK2+ (confirmed by a BMB) a few years back as my platele...

Can ET & PV Hereditary

Out of curiosity how many of us have family with an MPN, I was always led to bel...

Lasbrisas

I started sprinkling Cayenne Red Pepper on my food, MY GOOD NEWS .....BROUGHT DO...

Ruxilinitib

Has anyone managed to get Rux covered by private insurance.? If so, who was the ...

weight loss on Peg

Curious to see if anyone else has lost weight while on Peg interferon? I’ve sudd...

SWOLLEN FINGERS & BLEEDING AT THE CUTICLE?

SWOLLEN FINGERS AT CUTICLE? Sun Jun 04, 2023 12:14 pm Afternoon all... Be...

possible Sjögren Syndrome

Hi All I am in a quandary, so need some input. I have been on Pegasys for 11 mo...

Itching

Does anyone have itching that is NOT on the palms of their hands or soles of the...

Did I have TIA or something else?

I have PV and take Besremi with blood counts under control. Four days ago I had ...

Insomnia Help

I’ve been struggling with insomnia pretty bad lately & it’s been hard even takin...

JAK+ ET longevity

I was diagnosed ~2.5 months ago. Will this disease ever go away on it’s own? Wi...

Had my 2nd appt with my Haematologist today

As an update from my earlier post, we are now back in Australia after 3 months i...

Dry mouth and nose

Has anyone on Jakavi experienced a dry mouth and nose. I can drink water to help...

ET and bone marrow biopsy

Hi , I have ET , was diagnosed 2020 , I suffer with terrible fatigue and bone pa...

ET , Jak2 positive.

Having being diagnosed with ET last August, I have been on aspirin only until my...

Interferon

Hi my name is Denise I have been asked by Haematology consultant to consider sta...

Vitamin B12

Hi everyone I'm going on holiday to Cyprus in July and I usually start taking ...

What is your Besremi dose how is it working?

Image here is last year's result. Last year I posted a question on what Besremi...

painful elbows

I have now been taking Hydroxy for 3 months having been recently diagnosed with ...

Besremi and vaccines

Hi, I need to get a Tdap (tetanus, diphtheria, and whooping cough) vaccine as...

pegasys

good morning everyone just saw Dr Mesa finally have answers he wants to start me...

Myelofibrosis and fedratinib

Just needing a bit of a moan. I've had high risk MF now for many years. Last yea...

Debating about starting Interferon

I have had PV for about 4 months now & have been pretty much asymptotic aside fr...
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