MPN Voice | HealthUnlocked

MPN Voice

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Recent visit with my MPN Dr

(See end for context of this plot) I've been on Rux since Apr '23. At my rece...
EPguy profile image

Day 0 SCT

So today I got my stem cells, fresh from my brother who had them harvested this ...

Access to Blood Test results on line.

Hi everyone, I am wondering if anyone in the UK can tell me if there is any othe...
azaelea profile image

Hydrea

Am on HU and had a small lump come up on my face had it removed and just had le...
Chel1 profile image

7 days from BMT

Hi all, I know it's been a while since I posted. I just wanted to let you all kn...
Sagiegirl profile image

Besremi and Rux Combined

I was diagnosed with PV in 2021 and on Hydroxy for about a year. Then in Decemb...

Newly Diagnosed with ET

Hi all, Im new to the forum. My Haematologist suggested I have a look. I’m 48...

Pegasys Journey

ET/JAK2+. I started Pegasys 45mcg 14wks ago and my platelet count was stabilise...
Carol0925 profile image

Open letter

Hi all: I want to thank all who have posted regarding their experience with MPN...
Kiruna profile image

Interferon alpha

I got diagnosed with ET Jak2 positive back in November and 42 years old. I've ha...

Rebirthday

Thirteen years ago today a nurse walked into my hospital room at UCH London ...
MFBMT2011 profile image

Hair thinning

I have been taking hydroxyurea for two years and noticed my hair is thinning on...
Winchie profile image

Pegasys side effects

I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pa...
Dusty777 profile image

Not whining!

I'm not whining and idk how others feel but getting this diagnosis was like...o ...

SCT starts next week

Had my last meeting yesterday with consultant and sign all the forms etc. All th...

Post ET MF - Advice Please

Hello, I am new here - really wish I had found you sooner. My Dad is usually a ...

ET and Dizzyness

Hi All - I have been experiencing dizzy spells for at least as long as I have be...
Fjdjdjdjd profile image

Update 7.9.5

Just a mini-update. More good news to report. I saw my local hematologist toda...
hunter5582 profile image

At last Guys date

Post arrived a miracle in it self ,and then in the stack of letters a hospital.N...
Spanelmad profile image

I need advice about taking Hydroxycarbamide

I’m 70 years old and just been diagnosed with ET Jak2. I’ve been put on 500 mg o...
Zoebowie profile image

SCT update

I just wanted to give you an update following my SCT. I am now on day +202, it...
SRH55 profile image

medication choices

I was diagnosed with polycythemia Vera JAK2+ in November 2023. I was prescri...
Greengolfer profile image

just a question

this might sound silly but I got diagnosed in 2022, with ET an jac2 am on pegsy ...

Just wanted to share my Primary Myelofibrosis journey so far…….

Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was ...
LFCLove profile image

Peg Interferon Journey

Just to encourage those starting on Peg Interferon to be patient & to be your ow...
Exeter21 profile image

Other PV People's average dose of Peginterferon Alpha-2a?

Hi All, A brief overview of me, I was diagnosed with JAK2 & PV in November afte...
PVKween profile image

Interferon dose.

I started peg interferon on Jan 2nd this year. I seen a haemotologist, not the o...
conno61 profile image

New to MPN Voice

Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets we...
Luthorville profile image

Low saturation with PV and Jakavi 20

I have had PV since two years. Rux started december '23. Good results with HB an...
Quitojohn profile image

Potential ET diagnosis

HI All, I’ve been on this forum a few months now but this is my first post. Af...
Joshy87 profile image
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