Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for December 2013

Think of your body as a fish tank,the organs are the fish,feed it too much rubbish food the fish can't digest soon fish are goners for sure,

If you reach this sorry state,what would you do?would you treat the fish for the illness they have developed?NO....you would change the water,Do your body the...

If you reach this sorry state,what would you do?would you treat the fish for the...

•11 years ago

Merry Christmas to all!

Well it's Christmas morning & not exactly feeling very festive since my haem has doubled my Hydroxy to 2 x 500mg a day after first going on it 3 weeks ago. To...

Well it's Christmas morning & not exactly feeling very festive since my haem has...

•11 years ago

Merry Christmas and a very Happy New Year to you all :-) xx

I hope that you all have a brilliant xmas and new year :-)

I hope that you all have a brilliant xmas and new year :-)

•11 years ago

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To all my buddy,s out there ,we give up drink ,we give up fags ,we give up sugar ,some give up sex,but wot we don't give up is HOPE......

Merry Christmas to all of you out there ,,don't you fret many are working on your behalf,, and I for one,,,, Still believe in Santa Claus ,,( He wears a V...

Merry Christmas to all of you out there ,,don't you fret many are working on you...

•11 years ago

The American Society of Hematology (ASH) - videos from Dr Mesa

The 55th American Society of Hematology (ASH) December 2013 meeting was a great success and there were some really important updates for MPNs. As a first...

The 55th American Society of Hematology (ASH) December 2013 meeting was a great ...

Partner•11 years ago

As Christmas approaches ,how do others cope with the increased alcohole available as we are taking various drugs ,it's a time to celebrate,.

I would like to know how do we all cope with alcohole when it is so much a part of our culture to celebrate happy occasions ,I did enjoy a drink ,now the...

I would like to know how do we all cope with alcohole when it is so much a part ...

•11 years ago

2 patients' forums confirmed - Colchester and Belfast

We are very pleased to announce that we have 2 patients' forums confirmed for 2014. Colchester Patients’ Forum - Wednesday 29th January 2014, 4 pm – 6 pm in...

We are very pleased to announce that we have 2 patients' forums confirmed for 20...

Partner•11 years ago

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November issue MPDlife Newsletter

The November issue of MPDlife newsletter is now available on our website - http://www.mpdvoice.org.uk/wp-content/uploads/2013/12/MPD-LIfe-Issue-5-Nov-13.pdf -...

The November issue of MPDlife newsletter is now available on our website - http:...

Partner•11 years ago

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Do I have Secondary Polycthaemia?

I have had by bone marrow test result back as being normal :-). I am obviously happy about this but wonder now what is the cause of the raised Hg Hct etc....

I have had by bone marrow test result back as being normal :-). I am obviously ...

•11 years ago

venesection

Had to go for another venesection today what a nightmare tried 4 times to get blood from a vein in the end they had to use 5 syringes in the back of my hand i...

Had to go for another venesection today what a nightmare tried 4 times to get bl...

•11 years ago

I can't believe it I really just can't believe it!!!

I've had polycythaemia for several years now and today my mum got a phone call from the GP saying she has PRV !!!!!! Thats supposed to be impossible odds!!...

I've had polycythaemia for several years now and today my mum got a phone call f...

Geoff_mpnfamily

•11 years ago

Op number 2

Hi guys, will be off the website for a short while as I have my thumb op on Tuesday. I have to go into hospital Monday and getting out on Wednesday at the...

Hi guys, will be off the website for a short while as I have my thumb op on Tues...

•11 years ago

Enlarged spleen

I am really worried. I been having pain in my left side for a few weeks, nothing to bad just aware off a bit of stabbing from time to time. Then last weekend...

I am really worried. I been having pain in my left side for a few weeks, nothing...

•11 years ago

How soon should HU for ET work?

I've been on HU for 5 weeks, 2 weeks on 500 mg a day then 3 weeks on 500 mg one day and 1000 mg the next. When I started my platelets were about 1060, after 2...

I've been on HU for 5 weeks, 2 weeks on 500 mg a day then 3 weeks on 500 mg one ...

•11 years ago

If symptoms get worse with ET, could this mean my platelet count has gone higher? I have a haematology appt in 2 weeks.

Should I contact my doctor sooner? Started treatment last year, symptoms disappeared but have now returned with a vengeance. Itching burning skin, tingling in...

Should I contact my doctor sooner? Started treatment last year, symptoms disappe...

•11 years ago

Has anyone on Ruxolitnib/JAKAFI experienced the drug impacting negatively on Warfarin? I'm wondering how now do I protect against clots?

Had expected to spend Xmas in Lanzarote. Imagine that now it might be risky to fly!

Had expected to spend Xmas in Lanzarote. Imagine that now it might be risky to f...

•11 years ago

I have PV and my recent blood tests have shown that I have a high level of potassium could it be the hydroxycarbamide that is causing this.

Has anyone had this problem and any ideas how to combat it?

Has anyone had this problem and any ideas how to combat it?

•11 years ago

Just started Hydroxycarbamide this week but feeling very resistant & to be quite truthful, scared!

Recently posted a question re alternative entry sites for venesections but after discussing this with my consultant, he's now prescribed Hydroxy as the...

Recently posted a question re alternative entry sites for venesections but after...

•11 years ago