Posts - MPN Voice | HealthUnlocked

MPN Voice

10,438 members • 14,388 posts

All posts for December 2022

Thank you all for the wonderful support

Wishes For A New YearBrush away old heartaches. Learn from our mistakes. Another year is finally over. A new dawn awakes. Let the old year out. Welcome the...

Wishes For A New YearBrush away old heartaches. Learn from our mistakes. Another...

Mostew

•1 year ago

2 Replies

Flu Epidemic in UK.

hello! Hope everyone had a good Christmas and I wish you all happy and healthy New Year. Have any of you suffered from this dreadful Flu virus which is...

hello! Hope everyone had a good Christmas and I wish you all happy and healthy ...

azaelea

•1 year ago

28 Replies

Happy new year 2023

Wishing you all fellow in MPN, a very happy new year 2023.May we are be blessing with the heal, peace and prosper by our Lord Jesus. Best wishes

Wishing you all fellow in MPN, a very happy new year 2023.May we are be blessing...

william-Indo

•1 year ago

1 Reply

Want to take advantage of all our features? Just log in!

Pegasys Dosage Waste

I am starting Pegasys next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg...

I am starting Pegasys next week to treat my polycythemia vera. HU was discussed,...

BadgerPV

•1 year ago

29 Replies

Covid Vaccinations

I have just booked another my 6th vaccination. As highly vulnerable I believe but not sure i am doing the right thing. have also booked my wife in as sge...

I have just booked another my 6th vaccination. As highly vulnerable I believe...

catkinspolymer

•1 year ago

8 Replies

ocular migraines

hi all. And happy new year. I just had hip replacement surgery on the 21st and today have had two bouts of ocular flashes lasting 20 minutes and ten minutes....

hi all. And happy new year. I just had hip replacement surgery on the 21st and t...

Pounds11

•1 year ago

8 Replies

Hard day with Phlebotomy + Besremi + Port Surgery?

Hi, Yesterday was my monthly phlebotomy visit. I brought my husband with me because I had my first Besremi injection with me so a nurse could go over...

Hi, Yesterday was my monthly phlebotomy visit. I brought my husband with me be...

MrsBerri

•1 year ago

11 Replies

Holiday insurance.

holiday insurance. Can anyone advise me on the best holiday insurance, I’ve had breast cancer and lung cancer. And now blood cancer. So I was thinking it...

holiday insurance. Can anyone advise me on the best holiday insurance, I’ve h...

10061950

•1 year ago

13 Replies

HRT and Peg Interferon

hi I have PV diagnosed 7 years ago and started 2 months ago on Peg Interferon 90mcg Just wondering if anyone has thoughts or experience of being on HRT...

hi I have PV diagnosed 7 years ago and started 2 months ago on Peg Interferon 9...

Sanga

•1 year ago

9 Replies

First dose of Besremi today (100 mg)

Hi, I'm on my way to get a routine phlebotomy and an introduction on how to self-inject Besremi. My prescription has me starting at 100mg. I thought it...

Hi, I'm on my way to get a routine phlebotomy and an introduction on how to s...

MrsBerri

•1 year ago

6 Replies

Hello friend

Thanks for your insights about interferon very much appreciated and l will certainly read about the side effects of both myalgia and arthralgia. I'm happy to...

Thanks for your insights about interferon very much appreciated and l will certa...

Hidden

•1 year ago

Be the first to reply

Starting Pegasys Friday

Currently on Hydroxurea (1500mg per day) and transitioning to interferon on Friday. The plan is to still take one pill of Hydrea a day and start with an...

Currently on Hydroxurea (1500mg per day) and transitioning to interferon on Frid...

Zeppelin11

•1 year ago

23 Replies

Pegusus Interferon

Hello hello MPN friends l have not been on the site for awhile as l began new meds interferon ten weeks ago and at the time needed to sit quitley with what...

Hello hello MPN friends l have not been on the site for awhile as l began new m...

Hidden

•1 year ago

14 Replies

MF with JAK2 and Slow Wound Healing

Hello All, has anyone with MF and JAK2 encountered slow wound healing, possibly caused by dysfunctional platelets? Cheers Tim

Hello All, has anyone with MF and JAK2 encountered slow wound healing, possibly ...

TimGS

•1 year ago

10 Replies

low platelets

low platelet issue after receiving covid vaccines

NJ-mama

•1 year ago

3 Replies

intermittent fasting and Polycythemia Vera

I was wondering what effect time restricted intermittent fasting (only eating during an eight hour period) has on Polycythemia Vera. Does it affect blood...

I was wondering what effect time restricted intermittent fasting (only eating du...

Dan73

•1 year ago

8 Replies

December 22, 2022: Monoclonal Antibody Shows Promise for Treating CALR-mutant MPNs in Preclinical Study

A monoclonal antibody may be effective for treating CALR-mutant myeloproliferative neoplasms (MPNs), according to preclinical research presented at the 2022...

A monoclonal antibody may be effective for treating CALR-mutant myeloproliferati...

PhysAssist

•1 year ago

7 Replies

Why is it critical to achieve a deep molecular response ?

»Reaching a Deep Molecular Remission is now considered a goal of therapy by many clinicians. The importance of a DMR for patients aiming to achieve Treatment...

»Reaching a Deep Molecular Remission is now considered a goal of therapy by man...

Manouche

•1 year ago

7 Replies

ET or PV

I was diagnosed with ET about a year and a half ago I just take an aspirin a day, so I had my 6 monthly telephone call from haematology just before Christmas...

I was diagnosed with ET about a year and a half ago I just take an aspirin a da...

doglover49

•1 year ago

13 Replies

venesection

hi all hope you all had a lovely Christmas !!! Well after waiting for letter about a venesection got it at last so because my blood level was 48 % when...

hi all hope you all had a lovely Christmas !!! Well after waiting for lette...

Badger1

•1 year ago

11 Replies

Update 7.2

On the whole the news continues to be good, with a bit of a caveat or two As my iron levels increase, so does the erythropoiesis. Not a surprise, just basic...

On the whole the news continues to be good, with a bit of a caveat or two As my...

hunter5582

•1 year ago

35 Replies

chicken pox

hi lovely people just wondering I have ET and jac2 , my grandson spends half the wk at our house and has got chicken pox , I had chicken pox when I was 16 , so...

hi lovely people just wondering I have ET and jac2 , my grandson spends half the...

Staroftheday

•1 year ago

2 Replies

antiviral meds

I haven’t received any contact yet about my antivirals I will be chasing it up My question is , What’s your opinion about taking antivirals and would...

I haven’t received any contact yet about my antivirals I will be chasing it up...

sweetpea19

•1 year ago

13 Replies

Redundant colon anyone?

Two years ago I started my hydroxycarbamide regimen for ET and at the time I was a sveldt 54 kg. Now 2 years down the track not only have a added 5 kg to that...

Two years ago I started my hydroxycarbamide regimen for ET and at the time I wa...

Hidden

•1 year ago

5 Replies

Christmas

Best wishes to you as well. Happiest Christmas

Jazzman7

•1 year ago

2 Replies

Potential Good News - Israel Considering Inclusion of Expanded Gene Panel in Healthcare Basket

My MPN specialist confirmed that the committee which makes the annual decisions on which new medicines/treatments/technologies to include in the public...

My MPN specialist confirmed that the committee which makes the annual decisions ...

Solyesh

•1 year ago

3 Replies

varicose veins

sup mpn crew, i have a varicose vein treatment scheduled for next week and I was curious if anyone else here has veinous insufficiency issues and if they...

sup mpn crew, i have a varicose vein treatment scheduled for next week and I w...

dbus1417

•1 year ago

10 Replies

covid advice

I’ve just tested positive for covid. Doctors closed Can’t get heamotologist Do I ring 111 for advice or wait to see how I feel I have very sore throat...

I’ve just tested positive for covid. Doctors closed Can’t get heamotologist...

sweetpea19

•1 year ago

27 Replies

Heavy legs

Anyone have their legs feel very heavy in the morning, before even getting out of bed? It goes away once I get up and start walking around.

Anyone have their legs feel very heavy in the morning, before even getting out o...

ERei

•1 year ago

3 Replies

merry Christmas to all

Hi everyone, I just want to wish everyone a Merry Christmas and as healthy a new year as possible. Take care my friends and thank you for all your support...

Hi everyone, I just want to wish everyone a Merry Christmas and as healthy a n...

Aime

•1 year ago

4 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2022

Thank you all for the wonderful support

Flu Epidemic in UK.

Happy new year 2023

Pegasys Dosage Waste

Covid Vaccinations

ocular migraines

Hard day with Phlebotomy + Besremi + Port Surgery?

Holiday insurance.

HRT and Peg Interferon

First dose of Besremi today (100 mg)

Hello friend

Starting Pegasys Friday

Pegusus Interferon

MF with JAK2 and Slow Wound Healing

low platelets

intermittent fasting and Polycythemia Vera

December 22, 2022: Monoclonal Antibody Shows Promise for Treating CALR-mutant MPNs in Preclinical Study

Why is it critical to achieve a deep molecular response ?

ET or PV

venesection

Update 7.2

chicken pox

antiviral meds

Redundant colon anyone?

Christmas

Potential Good News - Israel Considering Inclusion of Expanded Gene Panel in Healthcare Basket

varicose veins

covid advice

Heavy legs

merry Christmas to all

Search posts

Pinned Posts

Latest poll

What age were you when your MPN was diagnosed?

Topics

Archive