Posts - MPN Voice | HealthUnlocked

MPN Voice

10,340 members14,250 posts

All posts for October 2014

Low phosphate levels

I am a 59 year male diagnosed 2 years ago with PV. I am on hydroxycarbamide, 2 x...

Knee Operation

Hi folks I am due to have a total knee replacement in December and I am a tad w...
Superwoman profile image

Head pain :( not feeling good at all ,

Ive had quite a stressful day , had 1hr in Dentist chair :( prep for a crown to ...
Phelpsy profile image
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MPN VOICE NOVEMBER 2014 FUNDRAISING UPDATE

Hello Everyone We hope you are keeping well and that you enjoyed the extra hour...
Mazcd profile image
Partner

itchy skin

Hi does this happen to anyone else on anti his for itchy skin works ok but stil...
janie-55 profile image

Temperatures whilst on Hydroxycarbamide

I am on Hydroxycarbamide for high platelets and are JK2 positive,I have been tol...
valdowning profile image

Asking the expert

Due to the popularity of Dr. Leclair's lymphocyte segments, we'd like for you to...
mcints2 profile image

Gabapentin and blood disorders

I have been on Gabapentin for a number of years now and something in a magazine ...
fannetastic profile image

Night cramps, there driving me Mad .

Any one got any advice on leg cramps , it's always through the night , my legs a...
Phelpsy profile image

Stem cell transplantation

Are there any myelofibrosis sufferers out there who are considering stem cell tr...
daisystar profile image

big toe swelling

I have E.T. and my big toe is red on the back side and has swelling. I have ha...
marleque profile image

Big toe trauma

I`ve just spent an hour with my GP who was puzzled by the state of my right toe ...
sksar profile image

London Patients' Forum - FULLY BOOKED

London Patients’ Forum – Monday 24th November 2014 FORUM FULLY BOOKED We are ...
Mazcd profile image
Partner

I'm looking forward to meeting up on Wednesday this week ,22 nd October .at Cambridge cancer centre ,at scotsdales garden centre ,,

I hope some of you can come along for free tea or coffee and cake , We had a suc...
Twinkly profile image

No patterns to PV?

Hi Guys, just wondered if you all find that there are no patterns to the way PV ...
Aime profile image

Switching Hydroxiurea with Interferon alpha

I'm 54 years old and I have PV,discovered 7 years ago. Initially I was on interf...
cata profile image

sore joints

Hi, I've quite suddenly developed painful joints, knees, elbows and hips are the...
revfee profile image

cold

annoying cant go to maggies as not well full of cold and feeling so tired couldn...
Shelly1960 profile image

A Question for MDS Patients

I was diagnosed with MDS four months ago, I initially consulted my GP because I ...
PhilC profile image

PV and eosiniphilia

Does anyone suffer from both ? Been on hydrea for 6 months. Got my white and red...
spikesnana profile image

Hi All

I am 67 and was diagnosed with MF about 2 years ago. Being 'treated' with Ruxoli...
colin1947 profile image

Not long now till we meet up at Cambridge ,scotsdales garden centre .22 nd. October ,11 till 4 ,,for our get together chat day ,,all welcome

It's easy to find maz will forward directions to you ..all refreshments are free...
Twinkly profile image

Has anyone else experienced really low white cells because of Hydroxycarbamide?

My platelets are normally controlled but because I keep having to reduce dose of...
Hidden profile image

Recent check up

Well recent check up. Red cells up and heamocrit up. So increased dose of hydra ...
Hughesf profile image

US events Houston and Denver Nov 1 and 8

145 registered for Nov 1 MPN education event at MD Anderson. Still plenty of roo...

Hydroxycarbamide increase

I ve upped my dose now to 2g 4 days and 1.5g for 3. My platelets are rising now ...
soomoo profile image

Just want to snap out of this

I go through stages when I am so exhausted I can't seem to do much, usually comp...
stevenjust profile image

High white blood count

Has anyone else had their white blood count continue to rise? And how high is ...
marleque profile image

Christmas cards

I'm Delighted to to order my Xmas card's from MPN :) Every little helps , x
Phelpsy profile image

Meeting

Thank you for your replies about the West Midlands, would any of you like to mee...
Purplelisa profile image