Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for December 2014

Happy new year to all my mates and buddy's on the site ....

Thank you for help and support through out this past year ,,lets be strong together into 2015 ...good luck ..good health .. Happy new year from twinkly...

Thank you for help and support through out this past year ,,lets be strong toget...

Twinkly

•10 years ago

6 Replies

MPN group poster

The first East Midlands MPN group meeting ( Myeloproliferative neoplasms formerly known as MPD Myeloproliferative disorder) At The Maggie’s Centre in the...

The first East Midlands MPN group meeting ( Myeloproliferative neoplasms former...

Shelly1960

•10 years ago

5 Replies

FIRST East Midlands MPN group meeting NOTTINGHAM Weds 21st Jan 2015

hoping the group will support us as individuals but also our families and give us the information to live with our condition.i look forward to meeting you all...

hoping the group will support us as individuals but also our families and give u...

Shelly1960

•10 years ago

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Bruising

I have ET and take Hydroxy 2g daily and Clopidogrel. I have been getting unexplained bruising over the last few months, mainly on my tummy, and arms. Over the...

I have ET and take Hydroxy 2g daily and Clopidogrel. I have been getting unexpla...

Val_P

•10 years ago

6 Replies

Dental implants

Has anyone had any problems with having dental implants done. I have PV and eosinophilia. I've been feeling nausea and extreme fatigue.

Has anyone had any problems with having dental implants done. I have PV and eosi...

spikesnana

•10 years ago

1 Reply

Happy Holidays

Happy Holidays and a special thanks for all your help during difficult times. Having friends to share makes a big difference. Hopping for better health for...

Happy Holidays and a special thanks for all your help during difficult times. Ha...

spikesnana

•10 years ago

5 Replies

Myelofibrosis

Does anyone know if MF can cause a secondary cancer? We were at the specialist yesterday and initially had to see a different Doctor who didn't know the...

Does anyone know if MF can cause a secondary cancer? We were at the specialist ...

Hidden

•10 years ago

20 Replies

Ruxolitinib side effects

Hi everyone, Is there anyone out there who has been on Ruxolitinib for some time, and who has PV?i have been taking hydroxicarbamide for 5 years, it suits me...

Hi everyone, Is there anyone out there who has been on Ruxolitinib for some time...

Loubprv

Volunteer•10 years ago

5 Replies

Merry Christmas

Mothers love ...true devotion ...as is mine .. Love to you at Christmas time 2014 ....xxx. Twinkly ....

Mothers love ...true devotion ...as is mine .. Love to you at Christmas time 201...

Twinkly

•10 years ago

4 Replies

Free prescriptions

Having read all the info on here regarding fre prescriptions I asked at our usual chemist they told me we could not get exemption as we have private...

Having read all the info on here regarding fre prescriptions I asked at our usua...

Headinthesand

•10 years ago

2 Replies

ID bracelet

I'm thinking of buying my partner an ID bracelet - so contact details is ok but what about the name of the condition is it better to put MPN or ET or just put...

I'm thinking of buying my partner an ID bracelet - so contact details is ok but ...

Hidden

•10 years ago

11 Replies

Platelets on the rise!

Hi Guys, saga continues - my platelets have risen from 460 ish to 592. Not sure if this is due to my anemia after my venesection (for PV) which shouldn't have...

Hi Guys, saga continues - my platelets have risen from 460 ish to 592. Not sure...

Aime

•10 years ago

9 Replies

I am scared

I have just been diagnosed with MPD. I am confused and scared after what I read on the internet. can someone please help me understand better. So far I have no...

I have just been diagnosed with MPD. I am confused and scared after what I read ...

tornado

•10 years ago

36 Replies

We wish you a merry Christmas ..and a healthy new year !! Keep twinkling .xx

Have a lovely Christmas .2014 .. Thank all of you wonderful people at MPD voice .i just wonder do you know how much we depend on you ..through our good and bad...

Have a lovely Christmas .2014 .. Thank all of you wonderful people at MPD voice ...

Twinkly

•10 years ago

8 Replies

Bone Marrow

Hello, I recently had a bmb and 4 or more insertions came out dry. The Doc had to scrap the sides (I could feel it) to get anything. When they were done I...

Hello, I recently had a bmb and 4 or more insertions came out dry. The Doc had t...

fiddlelady

•10 years ago

5 Replies

MF

My husband was diagnosed with MFN approx 5 years ago he requires 3 units of blood every 2 weeks his white count is low as is his platelets vary between 10 -17...

My husband was diagnosed with MFN approx 5 years ago he requires 3 units of bloo...

ardpatrick

•10 years ago

2 Replies

New Rapid Heme Panel Screens 95 Gene Mutations for Blood Cancers

ASH 2014 Video - Dr Richard Stone, Director of the Adult Leukemia Program at Dana Farber Cancer Institute in Boston, sheds some light on the newly developed...

ASH 2014 Video - Dr Richard Stone, Director of the Adult Leukemia Program at Dan...

PVReporter

•10 years ago

2 Replies

Another bout of fatigue

I've posted about faitigue before but feel I need to again. Just on my 6th day of a long bout of extreme fatigue, this is the longest I've had, usually last...

I've posted about faitigue before but feel I need to again. Just on my 6th day o...

stevenjust

•10 years ago

9 Replies

Vomiting and Extreme Cold

My husband has Myelofibrosis and a week ago had to have a bone marrow biopsy as the Ruxolitinib appears to have stopped working for him. Apart from fatigue he...

My husband has Myelofibrosis and a week ago had to have a bone marrow biopsy as ...

Hidden

•10 years ago

5 Replies

Many MPN videos owing from ASH 2014

Dr. Ruben Mesa explains anemia in MPNs http://www.patientpower.info/video/ash-coverage-dealing-with-mpn-related-anemia-and-fatigue See also ones with Dr....

Dr. Ruben Mesa explains anemia in MPNs http://www.patientpower.info/video/ash-c...

andrewschorr

•10 years ago

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Am I becoming intolerant to hu

Is there anyone out there who has become intolerant to hu ? I have been taking hu 12 a week for approx 12 years but in recent months have had recurrent...

Is there anyone out there who has become intolerant to hu ? I have been taking h...

millycat

•10 years ago

7 Replies

Does anyone know if shingles is infectious and if we Mpners should avoid?

Hi everyone, Just had an email from a friend who is supposed to be coming to our party tomorrow night. She has shingles in her head, just been diagnosed with...

Hi everyone, Just had an email from a friend who is supposed to be coming to ou...

Loubprv

Volunteer•10 years ago

13 Replies

Question to Lizziep

Hello, I believe you mentioned awhile back your Hu intake was 500mg 2x for 5 days, & 1500mg for 3 days, total 16 caps total mg 8,000, and your count was...

Hello, I believe you mentioned awhile back your Hu intake was 500mg 2x for 5 day...

Hidden

•10 years ago

3 Replies

Hematocrit .36

Hi Guys, just wanted to ask if anyone else with PV has had hematocrit as low as .36. I had a pint taken off in November when I shouldn't have and at the...

Hi Guys, just wanted to ask if anyone else with PV has had hematocrit as low as ...

Aime

•10 years ago

13 Replies

Numb feet

Does anybody suffer from numb feet started just in toes but has spread to whole of the foot. Have ET Jak 2 positive just on aspirin at the moment. My haem has...

Does anybody suffer from numb feet started just in toes but has spread to whole ...

Benjamin12

•10 years ago

7 Replies

A new East Midlands MPN Group, Nottingham

Angela Thompson, MPN Clinical Nurse Specialist at Nottingham City Hospital and Michelle Laurie, a MPN patient, have got together to form a new MPN Group and...

Angela Thompson, MPN Clinical Nurse Specialist at Nottingham City Hospital and M...

Mazcd

Partner•10 years ago

1 Reply

MPDlife - the newsletter for people with MPNs

November 2014 issue now available, the newsletter is packed full of interesting articles: •Rapid changes in MPN research and treatment options – Professor...

November 2014 issue now available, the newsletter is packed full of interesting ...

Mazcd

Partner•10 years ago

8 Replies

Pain in the eyes

Hi, Has anyone experienced sharp pain in the eyes, which I call "pins in the eyes" because the pain is sudden, sharp and very intense. It lasts for a few...

Hi, Has anyone experienced sharp pain in the eyes, which I call "pins in the ey...

daisystar

•10 years ago

11 Replies

HAIR LOSS ON HU

Hi, does anybody else have hair loss while on HU. I've been taking it for just over a year now, and along with dry skin etc etc I have lost quite a bit of...

Hi, does anybody else have hair loss while on HU. I've been taking it for just o...

lizzziep

•10 years ago

28 Replies

will there be a living with mpd's day 2015?

just wondering? traveled over from dublin last year and found it helpful

kentuckyrain

•10 years ago

8 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2014

Happy new year to all my mates and buddy's on the site ....

MPN group poster

FIRST East Midlands MPN group meeting NOTTINGHAM Weds 21st Jan 2015

Bruising

Dental implants

Happy Holidays

Myelofibrosis

Ruxolitinib side effects

Merry Christmas

Free prescriptions

ID bracelet

Platelets on the rise!

I am scared

We wish you a merry Christmas ..and a healthy new year !! Keep twinkling .xx

Bone Marrow

MF

New Rapid Heme Panel Screens 95 Gene Mutations for Blood Cancers

Another bout of fatigue

Vomiting and Extreme Cold

Many MPN videos owing from ASH 2014

Am I becoming intolerant to hu

Does anyone know if shingles is infectious and if we Mpners should avoid?

Question to Lizziep

Hematocrit .36

Numb feet

A new East Midlands MPN Group, Nottingham

MPDlife - the newsletter for people with MPNs

Pain in the eyes

HAIR LOSS ON HU

will there be a living with mpd's day 2015?

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