Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for September 2016

Lemons kill cancer cells ??

My friend read an article that baking soda and organic lemon kills off cells in 13 types of cancer, the baking powder must be aluminium free , which my friend...

My friend read an article that baking soda and organic lemon kills off cells in ...

Hidden

•8 years ago

20 Replies

Advice needed

I had an annual health check at my GPs at the beginning of the week - yet more blood tests! My GP called today to say she is concerned about the results of...

I had an annual health check at my GPs at the beginning of the week - yet more b...

Kari1961

•8 years ago

25 Replies

Bad day

Bad couple of days not feeling well. Feel like I am being poisoned feel like stopping all meds.

Bad couple of days not feeling well. Feel like I am being poisoned feel like...

Kerri2

•8 years ago

12 Replies

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How to get Jakafi paid for when insurance denies it.

Does anyone every get denied Jakafi from their insurance company and eventually get it approved? Does anyone not ever get it approved? We have been denied...

Does anyone every get denied Jakafi from their insurance company and eventually ...

2hankers2

•8 years ago

2 Replies

Thrombocythemia.

Hi I'm new here having just recently been diagnosed with Essential Thrombocythemia. Following blood tests for issues with stiffness and joint pain in both...

Hi I'm new here having just recently been diagnosed with Essential Thrombocythem...

mjfin72

•8 years ago

26 Replies

Got my Hu 500mg !

Well will take this capsule Mon Wed, Fridays , Go back to hospital in 3 weeks . Do hope it doesnt give me to many side effects , he said i may feel hot and...

Well will take this capsule Mon Wed, Fridays , Go back to hospital in 3 weeks . ...

Hidden

•8 years ago

28 Replies

Cyber space

Hi Maz Been trying to contact you about getting some booklets for my doctors surgery, but my e.mails keep going into cyberspace can you give me your correct...

Hi Maz Been trying to contact you about getting some booklets for my doctors sur...

Superwoman

•8 years ago

1 Reply

FRUSTRATION

Aaaaagggghhhhhhhh... My Haemotologist now thinks I should go to the Dermatologist because of my itching. Have I dreamt it or to MPN sufferers itch a...

Aaaaagggghhhhhhhh... My Haemotologist now thinks I should go to the Dermatologis...

nodmeister

•8 years ago

8 Replies

mesenteric clots?

Has anyone on here had problems with mesenteric clots and can advise about symptoms please? I know self diagnosis is daangerous but I have just had an episode...

Has anyone on here had problems with mesenteric clots and can advise about sympt...

revfee

•8 years ago

3 Replies

Review of tablets at GP surgery

Well here I go again folks. Had to attended my GP surgery for a review of my tablets before they would do a repete prescription, well had to see a new very...

Well here I go again folks. Had to attended my GP surgery for a review of my tab...

Superwoman

•8 years ago

8 Replies

Don't Miss MPN Event Saturday

Please consider joining me at MD Anderson in Houston this Saturday OR attending live online. We'll hear the latest about all 3 MPNs (MF, PV, ET) from Dr....

Please consider joining me at MD Anderson in Houston this Saturday OR attending ...

andrewschorr

•8 years ago

9 Replies

Unclassified MPN, need help with this mystery diagnosis

I am new here. My husband has unclassified MPN, no mutations, no Philadelphia chrom. Doesn't fit in any category of ET, PV or MF, so it makes finding...

I am new here. My husband has unclassified MPN, no mutations, no Philadelphia ch...

2hankers2

•8 years ago

3 Replies

Diagnosis confirmed this weekend

As some of you may know, i was diagnosed with ET (Jak negative) back in April. Symptoms are manageable and things are going fine overall. It struck me, after...

As some of you may know, i was diagnosed with ET (Jak negative) back in April. S...

Hidden

•8 years ago

11 Replies

KD

Hi everyone I was dx in 2014 with PV IM currently taking aspirin and getting phelbotomies, im curious is anyone taking the combo drug Rux (Jakifi) and Pegasys...

Hi everyone I was dx in 2014 with PV IM currently taking aspirin and getting phe...

Hidden

•8 years ago

2 Replies

Any advice regarding Doctors appointment for PV

Hello everyone, I have my 2nd doctors appointment tomorrow following confirmation that I have PV which was confirmed after a bone marrow biopsy. I am JAK 2...

Hello everyone, I have my 2nd doctors appointment tomorrow following confirmatio...

James1731

•8 years ago

7 Replies

Question about detox?

Hello all lovely people, I wanted to know how we can detox in a good way for us MPN's. I am with ET and would like to start some detox since we are for so long...

Hello all lovely people, I wanted to know how we can detox in a good way for us ...

light

•8 years ago

4 Replies

Blisters and cuts not healing

I have ET and am on HU and aspirin and have been so for almost 10 years. 8 weeks ago I got a tiny blister on my heel. Then a tiny cut on my other leg. Both...

I have ET and am on HU and aspirin and have been so for almost 10 years. 8 weeks...

gset

•8 years ago

5 Replies

Good morning to all my lovely MPN extended family

Hope your all keeping well & fit & healthy as possible, it's been 2 weeks since my Great North Run & feeling refreshed from it now , ( --1 st & 2 toenails)...

Hope your all keeping well & fit & healthy as possible, it's been 2 weeks since ...

Phelpsy

•8 years ago

5 Replies

First Time MF Poster

I am a 69 year old male. I was diagnosed with nonspecific myeloproliferative disorder in 2009. Twelve months ago, following declining red blood cell counts and...

I am a 69 year old male. I was diagnosed with nonspecific myeloproliferative dis...

47Robert

•8 years ago

3 Replies

Flu jab

Morning all, I have post PV MF, taking Ruxolitinib, and have been invited for a flu jab for the first time. I've asked both my haematology consultants if it's...

Morning all, I have post PV MF, taking Ruxolitinib, and have been invited for a ...

Hidden

•8 years ago

15 Replies

Greetings from Devon

Greetings and Salutations, My name is Kim and I currently live in Devon. I was born in Yorkshire many moons ago and spent the majority of my life in Cape Town,...

Greetings and Salutations, My name is Kim and I currently live in Devon. I was b...

Kimhock

•8 years ago

9 Replies

posture change

my whole body is chaning shape and getting weak. it start from head to toe. first it started from my joint of left shoulder, chest then down, leg...

my whole body is chaning shape and getting weak. it start from head to toe. firs...

royathelegend

•8 years ago

3 Replies

worried

went to local hospital this morning with my blood form heamatolgist consultant gave me 2 month ago ! ready for me to have bloods taken today ,Before my...

went to local hospital this morning with my blood form heamatolgist consultant g...

Hidden

•8 years ago

11 Replies

Et

Well platelets have gone down .. slightly from 964 to 931... so that's good. Still on asprin and the haematologist was very reassuring. Simply I continue as...

Well platelets have gone down .. slightly from 964 to 931... so that's good. St...

heathermc

•8 years ago

1 Reply

Some more advice please!

I wrote a post recently about the damaging effects of aspirin on my stomach lining - inflamed - found after endoscopy. I had many pieces of very good advice,...

I wrote a post recently about the damaging effects of aspirin on my stomach lini...

Vennie

•8 years ago

12 Replies

I'm New Here

I have had PV for 10 years. I have been participating in the Majic Study for a year; I am doing well on ruxolitinib. This medication is controlling cell...

I have had PV for 10 years. I have been participating in the Majic Study for a y...

BlushNoisette

•8 years ago

5 Replies

Extremely sensitive finger tips due to chronic gvhd and cortisone

After almost 8 weeks of 40mg+40mg of cortisone to try to get to grips with a chronic gvhd in the liver my finger tips are extremly sensitive, cracked and...

After almost 8 weeks of 40mg+40mg of cortisone to try to get to grips with a chr...

crapaud

•8 years ago

4 Replies

Fingers crossed for a better drug or even a cure for these mpns

I've completed this survey on behalf of my husband.

tracey13

•8 years ago

3 Replies

Coping with an MPN

Hello everyone, I am new here and would very much like to hear from others who have an MPN. I am finding it difficult to cope sometimes.

Hello everyone, I am new here and would very much like to hear from others who h...

Mardigras

•8 years ago

50 Replies

Vein Vibration

No, I'm not crazy, but my veins really do vibrate pretty often. mostly from my knees down but often all over. Once I was getting a phlebotomy, and as the...

No, I'm not crazy, but my veins really do vibrate pretty often. mostly from my ...

Litefootes

•8 years ago

26 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for September 2016

Lemons kill cancer cells ??

Advice needed

Bad day

How to get Jakafi paid for when insurance denies it.

Thrombocythemia.

Got my Hu 500mg !

Cyber space

FRUSTRATION

mesenteric clots?

Review of tablets at GP surgery

Don't Miss MPN Event Saturday

Unclassified MPN, need help with this mystery diagnosis

Diagnosis confirmed this weekend

KD

Any advice regarding Doctors appointment for PV

Question about detox?

Blisters and cuts not healing

Good morning to all my lovely MPN extended family

First Time MF Poster

Flu jab

Greetings from Devon

posture change

worried

Et

Some more advice please!

I'm New Here

Extremely sensitive finger tips due to chronic gvhd and cortisone

Fingers crossed for a better drug or even a cure for these mpns

Coping with an MPN

Vein Vibration

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