Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for May 2015

Vitamin c and itchiness

Hi: Happy Sunday to everyone -I'm just about to plant a few vegetables after some bitterly cold frost warning weather that meant I had to cover everything with...

Hi: Happy Sunday to everyone -I'm just about to plant a few vegetables after som...

jeanr

•10 years ago

3 Replies

Hydroxycarbamide for ever

Hi all. Been taking hydroxy for nearly two weeks as newly diagnosed and have been looking around for drug info. I've been unable to find much on hydroxy for...

Hi all. Been taking hydroxy for nearly two weeks as newly diagnosed and have bee...

YogaLover

•10 years ago

21 Replies

Happy Friday...xxx

Never let it get you down ! Live to laugh every day ..it's the best medicine I know !!

Never let it get you down ! Live to laugh every day ..it's the best medicine I ...

Twinkly

•10 years ago

7 Replies

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MPN Voice Running Events 2016

MPN Voice is very happy to announce that we have secured guaranteed places in the following running events for 2016. Virgin Money London Marathon Addidas...

MPN Voice is very happy to announce that we have secured guaranteed places in th...

MarilynMPNVoice

Fundraising•10 years ago

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Our Amazing BUPA 10k Running Team

Congratulations to Morena Gaio, Linda Capri, Barbara Coryn, Michelle Russell and Gerry Burns!!!! Our MPN Voice BUPA 10k Runners, you were amazing. The...

Congratulations to Morena Gaio, Linda Capri, Barbara Coryn, Michelle Russell and...

MarilynMPNVoice

Fundraising•10 years ago

1 Reply

Newly Diagnosed ET

Having been very fatigued and a couple of chest infections since Christmas my doctor decided to do a few blood tests and then I began to feel like a pincushion...

Having been very fatigued and a couple of chest infections since Christmas my do...

Hidden

•10 years ago

4 Replies

Is it just me?

Is it just me that feels cold all the time? I'm always putting the heating on, my husband is turning it off! Even on a warmish day I have a cardigan on -...

Is it just me that feels cold all the time? I'm always putting the heating on, m...

lizzziep

•10 years ago

24 Replies

I had great news today ,,my ultra sound scan was really good ,after a years break .

I get checked every 8 weeks at the clinic ,on the Majic trial . I take ruxolitinib every day .morning. Then. Evening ..I eat really healthy diet ,don't drink...

I get checked every 8 weeks at the clinic ,on the Majic trial . I take ruxolitin...

Twinkly

•10 years ago

10 Replies

Confused even more

Oh I'm getting so confused!!! Haematologist said very rare for hydroxycarbamide to cause muscle pain. She said it may be that I'm still undermedicated on...

Oh I'm getting so confused!!! Haematologist said very rare for hydroxycarbamide ...

Digger031145

•10 years ago

3 Replies

Bloating

Hi all, hubby has PCV for 3 years. On hydroxy (4 x500 a day) and aspirin. Last 6 months he has put on some weight but always complains of feeling bloated and...

Hi all, hubby has PCV for 3 years. On hydroxy (4 x500 a day) and aspirin. Last 6...

Headinthesand

•10 years ago

11 Replies

Good Morning my lovely's.😍hope your enjoying the Bank holidays & keeping fit & well . X

Just thought I'd keep you updated , still no news on my Critical claim , I suppose no news is good news , I'm struggling to get my aching muscles under...

Just thought I'd keep you updated , still no news on my Critical claim , I suppo...

Phelpsy

•10 years ago

8 Replies

Polycythemia?

Hi - I am wondering whether I should push for further investigation about the possibility of having Polycythemia. My doctor feels that my symptoms can be...

Hi - I am wondering whether I should push for further investigation about the po...

Fibo81

•10 years ago

6 Replies

Anyone advised on pain medication with E.T. and not taking HU. Falls,arthritis,joint pain.

82 with E.T.for 10 years. Diagnosed 2011.

marleque

•10 years ago

2 Replies

A good haematologist

Hi I am new to this site. Can anyone recommend a good haematologist in the Midlands? I was diagnosed with ET 2.5 years ago. I see a different haem almost every...

Hi I am new to this site. Can anyone recommend a good haematologist in the Midla...

Nickthedevil

•10 years ago

16 Replies

frustrated, non diagnosis after 4 years.

Hi, im very confused and frustrated, as my 13 year old son, has had cronic bowel probs for nearly 4 years now. Reading into everything, im 99% that his...

Hi, im very confused and frustrated, as my 13 year old son, has had cronic bowel...

PrincessPinky49

•10 years ago

8 Replies

MPN Voice Living with MPNs Day 2015

Saturday 14th November 2015, 8.45 am – 5 pm Brunei Gallery, School of Oriental & African Studies, Thornhaugh Street, Russell Square, London, WC1H 0XG...

Saturday 14th November 2015, 8.45 am – 5 pm Brunei Gallery, School of Oriental ...

Mazcd

Partner•10 years ago

3 Replies

Random Question...

Does anyone else with PV sometimes feel like their lower insides vibrate ? Strange I know but I swear mine do...

Does anyone else with PV sometimes feel like their lower insides vibrate ? Stran...

Karen1970

•10 years ago

3 Replies

Good Luck to Our MPN Voice BUPA 10k Runners on Monday 25th May

Well the training is all done! Those new trainers, don't look so new anymore! For many of our MPN Voice BUPA 10k Runners, this is the first time they have done...

Well the training is all done! Those new trainers, don't look so new anymore! Fo...

MarilynMPNVoice

Fundraising•10 years ago

3 Replies

Good Luck to Adie and Steve doing the Three Peaks Challenge 22nd May 2015

Tomorrow to most of us will mean looking forward to the long Bank Holiday Weekend! But for Adie and Steve, they will be getting ready to start the Three Peaks...

Tomorrow to most of us will mean looking forward to the long Bank Holiday Weeken...

MarilynMPNVoice

Fundraising•10 years ago

1 Reply

Events coming up!

I am excited to be working with MPD Voice on the London July 8th educational event at Guy's Hospital. We're hoping to have that available streamed live as well...

I am excited to be working with MPD Voice on the London July 8th educational eve...

andrewschorr

•10 years ago

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You look really well !

I developed PV 6 months ago i am JAK 2 positive and take Hydroxycarbamide and Warfarin daily with various side effects, people say you look really well, its...

I developed PV 6 months ago i am JAK 2 positive and take Hydroxycarbamide and Wa...

chalet1

•10 years ago

19 Replies

PMF and bruising

On Thursday I fell when I was walking back to my car. I landed on my knees and obviously ended up with a lovely bruise on each knee. Over the weekend though...

On Thursday I fell when I was walking back to my car. I landed on my knees and ...

Lesleyt10

•10 years ago

7 Replies

ACE Blood pressure pills

Morning hope everybody okay , just wanted to ask if anyone takes bp pills ? i was put on them for first time 10 days ago for unstable blood pressure im on 2mg...

Morning hope everybody okay , just wanted to ask if anyone takes bp pills ? i wa...

Hidden

•10 years ago

10 Replies

Cardiff Forum

Hello I would just like to thank everyone who organised and spoke at the Cardiff forum, we really do appreciate all of you giving so much of your time and...

Hello I would just like to thank everyone who organised and spoke at the Cardiff...

babbittybumble

•10 years ago

4 Replies

mpn midlands support group

who is going to the support group at maggies on weds 20th may

Shelly1960

•10 years ago

18 Replies

Travel insurance

Hi Everyone - I'm just looking for travel insurance to Turkey for the family this year. I paid £17 for the four of last year to Egypt but have just been...

Hi Everyone - I'm just looking for travel insurance to Turkey for the family thi...

Lesleyt10

•10 years ago

12 Replies

How often we are told ," but you look so well, how can you be sick ?"

Maybe it's because we make such an effort ,before we get ready to go out in public !! I know I do !!

Maybe it's because we make such an effort ,before we get ready to go out in publ...

Twinkly

•10 years ago

20 Replies

Hydroxicarbamide

Hi, Can I ask what experiences anyone has had on taking Hydroxicarbamide. I have had ET for about 6 years but only taken aspirin. My platelets are 953 now and...

Hi, Can I ask what experiences anyone has had on taking Hydroxicarbamide. I have...

jodary

•10 years ago

15 Replies

Cardiff forum

looking forward to meeting up at the Cardiff forum on thursday

gbeam

•10 years ago

2 Replies

Extreme periods

Dear all, i am new to the forum. i am in my mid 40s and was diagnosed with ET 6 years ago. the only symptom i have (apart from the fatigue) is very heavy...

Dear all, i am new to the forum. i am in my mid 40s and was diagnosed with ET 6 ...

Stanley28

•10 years ago

5 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for May 2015

Vitamin c and itchiness

Hydroxycarbamide for ever

Happy Friday...xxx

MPN Voice Running Events 2016

Our Amazing BUPA 10k Running Team

Newly Diagnosed ET

Is it just me?

I had great news today ,,my ultra sound scan was really good ,after a years break .

Confused even more

Bloating

Good Morning my lovely's.😍hope your enjoying the Bank holidays & keeping fit & well . X

Polycythemia?

Anyone advised on pain medication with E.T. and not taking HU. Falls,arthritis,joint pain.

A good haematologist

frustrated, non diagnosis after 4 years.

MPN Voice Living with MPNs Day 2015

Random Question...

Good Luck to Our MPN Voice BUPA 10k Runners on Monday 25th May

Good Luck to Adie and Steve doing the Three Peaks Challenge 22nd May 2015

Events coming up!

You look really well !

PMF and bruising

ACE Blood pressure pills

Cardiff Forum

mpn midlands support group

Travel insurance

How often we are told ," but you look so well, how can you be sick ?"

Hydroxicarbamide

Cardiff forum

Extreme periods

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