Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for February 2015

Feeling scared

Sat in bed last night feeling my anxiety levels creeping up and was lucky enough to notice the link at the bottom of the MPD homepage. Spent time reading and...

Sat in bed last night feeling my anxiety levels creeping up and was lucky enough...

Grace71

•10 years ago

18 Replies

nicki archibald

the reason i have used the name steven george is in memory of my brother who was 50 died of cancer due to a condition called puetz jhegaer syndrome he has 4...

the reason i have used the name steven george is in memory of my brother who was...

Scottishterrier

•10 years ago

10 Replies

Pension petition

https://www.change.org/p/the-government-sanction-the-claiming-of-state-pensions-for-everyone-over-the-age-of-55-who-has-a-medically-confirmed-life-limiting-cond

https://www.change.org/p/the-government-sanction-the-claiming-of-state-pensions-...

Hughesf

•10 years ago

1 Reply

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Queasy to nauseous

Hi everyone, I'm 60, was diagnosed with PV 5 years ago and have been on hydroxicarbamide ever since. To date the dose is 500mg x 2 days per week and 1000mg x 5...

Hi everyone, I'm 60, was diagnosed with PV 5 years ago and have been on hydroxic...

Loubprv

Volunteer•10 years ago

10 Replies

Biopsy day

....much prefer Christmas day......first step to getting in Majic...

Chelle_

•10 years ago

9 Replies

Want to show you a brilliant new book iv read ,full of healthy menu,s .excellent for us ,with sensitive digestion ..good read ..

If you get lost as to what to eat ,get some good healthy ideas in the pages of this great little book . East to get on Internet ,,very quick delivery ..hope...

If you get lost as to what to eat ,get some good healthy ideas in the pages of t...

Twinkly

•10 years ago

6 Replies

What's the Difference between Fatigue and Being Tired? An Expert explains.

One of the up and coming MPN experts is Dr. Navel Daver from Houston. In this brief video clip he explains how being tired and being fatigued is different and...

One of the up and coming MPN experts is Dr. Navel Daver from Houston. In this br...

andrewschorr

•10 years ago

2 Replies

MPN Voice February Fundraising Update

Well 2015 has really got off to a fantastic start! We’ve had a wonderful response from the MPN Voice Community with lots of requests for Fundraising Packs....

Well 2015 has really got off to a fantastic start! We’ve had a wonderful respon...

Mazcd

Partner•10 years ago

2 Replies

Pv and Low platelets

hi I have just realised that my platelet count is low they do not seen concerned at the hospital as I have no symptoms bruising ect. Has anyone else got the...

hi I have just realised that my platelet count is low they do not seen concerned...

hollymae

•10 years ago

2 Replies

ET newly diagnosed

My platelet count is 7-800I I've been told I have ET and I'm on low dose aspirin. My specialist has not been very informative, and I have a bone marrow...

My platelet count is 7-800I I've been told I have ET and I'm on low dose aspi...

jeanr

•10 years ago

45 Replies

Sore throat and swollen tongue

Anyone experienced a scratchy sore throat and the back of tongue swollen. I have had this now for 6 weeks. It is worse in the morning gradullay improves...

Anyone experienced a scratchy sore throat and the back of tongue swollen. I have...

suzanneh

•10 years ago

11 Replies

Proactive American with ET Tells his story

Here's Terry's story, a man with 8 children AND ET:...

andrewschorr

•10 years ago

Be the first to reply

Life is swings and rounadabouts!

Hi all Was feeling bit low as they are undergoing a reorganisation at work and found out my post has been deleted, so facing redundancy on 1st May. Got to find...

Hi all Was feeling bit low as they are undergoing a reorganisation at work and f...

Hidden

•10 years ago

6 Replies

Went to clinic on Tuesday ,I had really good blood test results.I'm feeling really well .except for frozen feet,frozen fingers at tea time ,

The cold I feel is really strange ,I can't seem to get warm except in a hot bath .. Also I'm losing my nails on my toes , Doesn't matter in winter as I wear...

The cold I feel is really strange ,I can't seem to get warm except in a hot bath...

Twinkly

•10 years ago

3 Replies

Update on numb feet

I have finally had my doppler scan and results for my numb feet. Unfortunately my consultant is away for 3 months so saw a locum who shuffled through my notes...

I have finally had my doppler scan and results for my numb feet. Unfortunately ...

Benjamin12

•10 years ago

1 Reply

Itching

I just wanted to let you know that I personally have found something that has helped me with my itching. I have been using mineral oil. It...

I just wanted to let you know that I personally have found something that...

Janet123

•10 years ago

5 Replies

PCV and no spleen

Hello everyone ! This is my first time to post! My Dad, Uncle, Aunt, cousins all have been diagnosed with Polycythemia Vera. I also am at the high end of the...

Hello everyone ! This is my first time to post! My Dad, Uncle, Aunt, cousins all...

zippedy

•10 years ago

1 Reply

Herts/Essex

Hello, I am looking to meet up with a partner of someone who has et (ideally, as that is what my partner has). I would really like to meet up just to talk and...

Hello, I am looking to meet up with a partner of someone who has et (ideally, a...

Hidden

•10 years ago

Be the first to reply

If you have 5 mins :-)

I am trying to turn my hand to blogging....I'm hoping it will encourage me to keep up my training and maybe help others with the same motivation issues.....If...

I am trying to turn my hand to blogging....I'm hoping it will encourage me to ke...

Chelle_

•10 years ago

7 Replies

Gary Vogt’s Rollercoaster Ride with Myelofibrosis

Gary and Kathy (and Kathleen) are friends I met at the MPN Heroes award ceremony in December. Kathy took home a much deserved caregiver award. I appreciate you...

Gary and Kathy (and Kathleen) are friends I met at the MPN Heroes award ceremony...

PVReporter

•10 years ago

Be the first to reply

O,k.who went to the Colchester forum on Wednesday 4 th ,feb ? Lets get some feed back .Im interested in your thoughts ..I went with my Bob .

The parking was easy ,it didnt rain ,,I actually really felt it went well .but lets hear from you !

The parking was easy ,it didnt rain ,,I actually really felt it went well .but l...

Twinkly

•10 years ago

5 Replies

Your lab test questions answered

By far the most popular video series on Patient Power features lab test expert Dr. Susan Leclair. She takes your questions. Hear Susan explain what to ask and...

By far the most popular video series on Patient Power features lab test expert D...

andrewschorr

•10 years ago

Be the first to reply

Sandy

Good morning everyone, hope you are all warm and cosy. Just wondering if anyone else experiences very heavy achy legs whilst walking, especially on hills (even...

Good morning everyone, hope you are all warm and cosy. Just wondering if anyone ...

Stevesmum42

•10 years ago

21 Replies

Answer to a question ..how do we cope in the snow??

Winter time is no fun with big dogs in the kitchen ! Don't get much time to rest and relax at our house ....

Winter time is no fun with big dogs in the kitchen ! Don't get much time to rest...

Twinkly

•10 years ago

7 Replies

1/2 Marathon & Bupa 10K.....I must be mad :-)

Ladies and gents, I am running the Silverstone half marathon and the bupa 10k on behalf of MPNVoice. In hope of raising lost of pennies for wonderful...

Ladies and gents, I am running the Silverstone half marathon and the bupa 10k on...

Chelle_

•10 years ago

8 Replies

just a hi and how are we coping in the snow

hello out there how we all coping during this bad weather any tips for helping get through this time hope you all doing well and be nice to hear from you and...

hello out there how we all coping during this bad weather any tips for helping g...

Shelly1960

•10 years ago

8 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for February 2015

Feeling scared

nicki archibald

Pension petition

Queasy to nauseous

Biopsy day

Want to show you a brilliant new book iv read ,full of healthy menu,s .excellent for us ,with sensitive digestion ..good read ..

What's the Difference between Fatigue and Being Tired? An Expert explains.

MPN Voice February Fundraising Update

Pv and Low platelets

ET newly diagnosed

Sore throat and swollen tongue

Proactive American with ET Tells his story

Life is swings and rounadabouts!

Went to clinic on Tuesday ,I had really good blood test results.I'm feeling really well .except for frozen feet,frozen fingers at tea time ,

Update on numb feet

Itching

PCV and no spleen

Herts/Essex

If you have 5 mins :-)

Gary Vogt’s Rollercoaster Ride with Myelofibrosis

O,k.who went to the Colchester forum on Wednesday 4 th ,feb ? Lets get some feed back .Im interested in your thoughts ..I went with my Bob .

Your lab test questions answered

Sandy

Answer to a question ..how do we cope in the snow??

1/2 Marathon & Bupa 10K.....I must be mad :-)

just a hi and how are we coping in the snow

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