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MPN Voice

10,408 members • 14,354 posts

All posts for February 2020

MPN Patient education morning at PETER MAC CANCER CENTRE (PMCC), Victoria Australia

Post by AnnieFJ » Fri Feb 28, 2020 12:18 am Good morning everyone... :-) One of MATES new members has just Posted a very interesting Talk given by arguably...

Post by AnnieFJ » Fri Feb 28, 2020 12:18 am Good morning everyone... :-) One o...

socrates_8

•4 years ago

2 Replies

High Red blood cell count

Hello all I’m new on here and not diagnosed with PV. My GP has referred me to a haematologist as I have a high RBC that apparently has been creeping up for a...

Hello all I’m new on here and not diagnosed with PV. My GP has referred me to a...

Poppet2518

•4 years ago

10 Replies

Recurrent neutropenia causes

I have recurrent neutropenia. My doctor has eliminated any vitamin and mineral deficiencies, and any medications that potentially cause neutropenia. I have a...

I have recurrent neutropenia. My doctor has eliminated any vitamin and mineral d...

Anotherorchid

•4 years ago

5 Replies

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Anyone else taking Eliquis? Noticed any side effects?

My doc has put me on twice a day aspirin and twice a day eliquis (anti-coagulent). Been taking it for over a month now and seemingly no issues. Though...

My doc has put me on twice a day aspirin and twice a day eliquis (anti-coagulent...

JT_Marlin

•4 years ago

5 Replies

High rbc and exercise?

Hi just a quick question as I forgot to ask my heamo yesterday . My Rbc and heamocrit are still high and outside the normal margins and just on aspirin and 6...

Hi just a quick question as I forgot to ask my heamo yesterday . My Rbc and heam...

Dolman

•4 years ago

5 Replies

Clopidogrel and Lansoprazole

My wife has had an M.P.N for over five years and at present takes Busulfan, but only when her platelets are high. She has had two mini strokes (T.I.A.s) the...

My wife has had an M.P.N for over five years and at present takes Busulfan, but ...

Folly41

•4 years ago

12 Replies

Lower Joint Pain

Hi all, I'm just after some advice, I'm ET JAK2. When I get up first thing in the morning my joints from the knees down and soles of my feet are quite painful,...

Hi all, I'm just after some advice, I'm ET JAK2. When I get up first thing in th...

Trueblue8

•4 years ago

15 Replies

Surgery

Hi I have been taking hydroxycarbamide and low dose aspirin for 8 years and these have been successful in bringing my blood counts to within tolerances. I have...

Hi I have been taking hydroxycarbamide and low dose aspirin for 8 years and thes...

Roverjohn

•4 years ago

6 Replies

Melatonin against platelets?

Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to...

Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been muc...

Anag

•4 years ago

30 Replies

Thank you

Hi all, It’s been a year since my partner was diagnosed with ET triple negative at 32, after a minor heart attack and platelets over 2m. He’s still getting his...

Hi all, It’s been a year since my partner was diagnosed with ET triple negative ...

intothewoods

•4 years ago

5 Replies

Low WBC and Covid 19

Just wondering if having a WBC count of 3.7 would put me more at risk of fighting Covid 19 should I get it. I am going to Spain in May to walk the Comino to...

Just wondering if having a WBC count of 3.7 would put me more at risk of fightin...

Hydrox

•4 years ago

4 Replies

Just thought to share

https://www.pvreporter.com/wp-content/uploads/2019/07/Diet-Nutrition-Myeloproliferative-Neoplasm-MPN-Patient.pdf

https://www.pvreporter.com/wp-content/uploads/2019/07/Diet-Nutrition-Myeloprolif...

neela2020

•4 years ago

13 Replies

Pregnancy and essential thrombocytosis

Sorry if I have asked this before my head is mashed. Anyone had successfully healthy pregnancies with et? My haematologist says higher chance of miscarriage...

Sorry if I have asked this before my head is mashed. Anyone had successfully hea...

Irishgal12

•4 years ago

23 Replies

Mpn

A bit confused abnormal bmb all other tests ok though platelets still raised. Am about to start HYDROXYCARBAMIDE. After reading links people have suggested it...

A bit confused abnormal bmb all other tests ok though platelets still raised. Am...

glyndale

•4 years ago

4 Replies

Question for Maz

Hi Maz, I hope you are well. I don’t know if you can help with this? I know this question has been raised before but I don’t think there was a definitive...

Hi Maz, I hope you are well. I don’t know if you can help with this? I know this...

piggie50

•4 years ago

39 Replies

TYPE 2 Diabetes

Has anyone been diagnosed with type 2 diabetes while having an MPN, any advice? I was diagnosed with MPL ET 4 years ago. I’m taking L/D Aspirin and Pegasys.

Has anyone been diagnosed with type 2 diabetes while having an MPN, any advice? ...

Raphael_UK

•4 years ago

2 Replies

New to MPN

I am a 17 year old girl and have recently been diagnosed with MPN ET. It was abit of a shock to me at first but now I am just trying to stay positive. My...

I am a 17 year old girl and have recently been diagnosed with MPN ET. It was abi...

Alicejj

•4 years ago

25 Replies

Citalopram and hydroxy

Hi all just wanted to ask if anyone is taking hydroxy and citalopram? And if so are they best taken together or separately, morning or evening? ? I currently...

Hi all just wanted to ask if anyone is taking hydroxy and citalopram? And if so ...

Camelian

•4 years ago

31 Replies

Swollen ankles

Hi anyone else suffer with swollen ankles? I have the thinnest socks on and still get marks as if there digging in. I’ve been ET Jack 2 Pos for 3 years now....

Hi anyone else suffer with swollen ankles? I have the thinnest socks on and stil...

Grumpyfairy

•4 years ago

15 Replies

Et

Well saw my consultant platelets still raised but other tests ok apart from abnormal bone marrow biopsy result.Am being started on HYDROXYCARBAMIDE.Still not...

Well saw my consultant platelets still raised but other tests ok apart from abno...

glyndale

•4 years ago

10 Replies

Platelets too low on Pegasys

Apologies if half of this post has already appeared - it just disappeared as I was typing. I have ET and on Pegasys 90mcg weekly since last July, with good...

Apologies if half of this post has already appeared - it just disappeared as I w...

Otterfield

•4 years ago

2 Replies

PV and Mastocytosis

Anyone with PV and Systemic Mastocytosis? I was diagnosed with Mastocytosis 2013 and PV 2019

Anyone with PV and Systemic Mastocytosis? I was diagnosed with Mastocytosis 2013...

shaks

•4 years ago

2 Replies

HU and alcohol

I do not drink a lot I know they empathize drinking tons of water I would drink even more.

I do not drink a lot I know they empathize drinking tons of water I would drink ...

Kerri2

•4 years ago

1 Reply

CT Scan of Abdomen cause for concern

I had a CT Scan of abdomen and pelvis done on 11-1-19 after being sent to the hospital twice and Urgent Care 3 times for Pyelonephritis. I never looked at the...

I had a CT Scan of abdomen and pelvis done on 11-1-19 after being sent to the ho...

Alex9621

•4 years ago

17 Replies

Raised platelets.

Platelets still raised but all further blood tests , scan and x rays are negative. What can it be .?

Platelets still raised but all further blood tests , scan and x rays are negativ...

glyndale

•4 years ago

9 Replies

LDH levels and myelofibrosis

So I have MF and my doctor is very pleased that my hemoglobin is stable at 10,9 for the last 6 weeks and my platelets are holding between 450 and 600. However,...

So I have MF and my doctor is very pleased that my hemoglobin is stable at 10,9 ...

Cja1956

•4 years ago

4 Replies

Scared

I'm suppose to be going to Japan in May and have to pay my balance in two weeks ££££££. to the agent we've booked through. I am so worried about this virus and...

I'm suppose to be going to Japan in May and have to pay my balance in two weeks ...

Linda1950

•4 years ago

21 Replies

Alcohol and PV or Alcohol and Hydroxyurea

Have any of you noticed more difficulty drinking alcohol with PV - or with hydroxyurea? I don't drink a lot but in the past have enjoyed an occasional glass of...

Have any of you noticed more difficulty drinking alcohol with PV - or with hydro...

souplover

•4 years ago

12 Replies

Jak2 negative

Hello I am a normal healthy 38 year old. Well I was until I was told I may have PV. I am Jak2 negative. Everything I read on google scholar tells me my epo...

Hello I am a normal healthy 38 year old. Well I was until I was told I may have...

Sarahserena81

•4 years ago

9 Replies

BmB results show ??

Hi all, If one is triple negative can a BMB confirm any MPNs and also any mutations if it didnt comeup in blood tests? Does a BMB result also give you...

Hi all, If one is triple negative can a BMB confirm any MPNs and also any mutat...

Aojai

•4 years ago

6 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for February 2020

MPN Patient education morning at PETER MAC CANCER CENTRE (PMCC), Victoria Australia

High Red blood cell count

Recurrent neutropenia causes

Anyone else taking Eliquis? Noticed any side effects?

High rbc and exercise?

Clopidogrel and Lansoprazole

Lower Joint Pain

Surgery

Melatonin against platelets?

Thank you

Low WBC and Covid 19

Just thought to share

Pregnancy and essential thrombocytosis

Mpn

Question for Maz

TYPE 2 Diabetes

New to MPN

Citalopram and hydroxy

Swollen ankles

Et

Platelets too low on Pegasys

PV and Mastocytosis

HU and alcohol

CT Scan of Abdomen cause for concern

Raised platelets.

LDH levels and myelofibrosis

Scared

Alcohol and PV or Alcohol and Hydroxyurea

Jak2 negative

BmB results show ??

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