Posts - MPN Voice | HealthUnlocked

MPN Voice

10,432 members • 14,378 posts

All posts for September 2015

food supplimemts for hair & Nails

Hi does anyone on here take vitimins of any kind , ? Even before i was diagnosed with This ET ja2, i seem to shedd alot of hair when shampooing or brushing it...

Hi does anyone on here take vitimins of any kind , ? Even before i was diagnosed...

Hidden

•9 years ago

6 Replies

An Expert Researcher explains Calreticulin

Here's the latest from a researcher who is in the thick of this for MPNs...

andrewschorr

•9 years ago

2 Replies

Update on my 12 wk check up

Hi just to report in on my latest appointment my last reading of platelets 431 , Now 386 I'm delighted the 1 extra tablet per day paid off , I know that may...

Hi just to report in on my latest appointment my last reading of platelets 431 ,...

Phelpsy

•9 years ago

25 Replies

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Invitation to a coffee morning in aid of MPN Voice – Friday 2nd October 10 am – 12 pm in Surrey

Four lovely ladies in the Surrey area have got together and are holding an coffee morning on Friday 2nd October 2015 10 am – 12 pm to raise funds for MPN...

Four lovely ladies in the Surrey area have got together and are holding an coffe...

Mazcd

Partner•9 years ago

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Moving to Interferon

My husband is about to switch to interferon from hydroxy. I see all the info here on side effects which is a worry as life has felt quite stable for the last...

My husband is about to switch to interferon from hydroxy. I see all the info he...

Daws

•9 years ago

7 Replies

New beginning

Well its with a heavy heart that I move to a new chapter. My wife and partner of 19 years asked me to leave our marital home on Wednesday As she no longer...

Well its with a heavy heart that I move to a new chapter. My wife and partner o...

Hughesf

•9 years ago

22 Replies

Help to boost immune system?

Hi, I started on interferon alpha came off because of side effects and now on peg interferon once a week which has eased my side effects and has reduced my...

Hi, I started on interferon alpha came off because of side effects and now on pe...

Kymfitz85

•9 years ago

5 Replies

Bloodwise cancer advert - 137 different ones

It's good to see that many of the rarer cancers are getting more recognition as time goes by. Ours is quite prominent on the billboard ads and hopefully it'll...

It's good to see that many of the rarer cancers are getting more recognition as ...

MarkD6701

•9 years ago

6 Replies

New beginnings

Yes the god Janus the god of endings and beginnings and I'm assuming the JAK gene was named after him ( I could be wrong of course but it makes sense to me )....

Yes the god Janus the god of endings and beginnings and I'm assuming the JAK gen...

Helen1952

•9 years ago

9 Replies

Shine walk

Morning all. I did it... 👏👏. It was very emotional and hard, as not only am I quite a lump but I have never done anything like this. My next challenge I...

Morning all. I did it... 👏👏. It was very emotional and hard, as not only am I...

Karen1970

•9 years ago

12 Replies

Newly diagnosed

I am a 63 year old woman in the United States and have been diagnosed with Myelofibrosis. Had a bone marrow biopsy and it is 70 to 90 percent compromised....

I am a 63 year old woman in the United States and have been diagnosed with Myel...

Realtorlin

•9 years ago

30 Replies

The Shine Walk

Today's the day ! Wish me luck xx https://www.justgiving.com/Karenadams1970/

Karen1970

•9 years ago

7 Replies

Have a happy weekend all !!! life is short ..

It's never too late to make the change .Give up. coCaCola ..cut down coffee , cut down tea, Drink yourself healthy with filtered water and fresh juice ..eat...

It's never too late to make the change .Give up. coCaCola ..cut down coffee , cu...

Twinkly

•9 years ago

11 Replies

Up Up and Away

Hi friends, t'interweb been down so just posting an update. . My white cell count started to CREEP up couple days ago , , normal range 3.0 -4.0 mine was 0.05,...

Hi friends, t'interweb been down so just posting an update. . My white cell coun...

JediReject

•9 years ago

50 Replies

Hypercalcemia

Hi all. I have been diagnosed with mild hypercalcemia and a raised PTH level. I was sent by my heam for head to toe bone x-rays, which thank god didn't show...

Hi all. I have been diagnosed with mild hypercalcemia and a raised PTH level. I ...

harleydavidson

•9 years ago

7 Replies

Lurgi season.

Hi people. Well the lurgi season is on us again. Just got over one bout of feeling heady very achy legs etc. blow me down I feel another one coming on...

Hi people. Well the lurgi season is on us again. Just got over one bout of feel...

Stevesmum42

•9 years ago

12 Replies

Here's an interesting day out in November .its at the scotsdales garden centre ,at Cambridge ,,

Very easy to find this beautiful venue ..A garden centre ,,cancer centre is built in the grounds .worth the effort to come along ...Im hoping to get there ..

Very easy to find this beautiful venue ..A garden centre ,,cancer centre is buil...

Twinkly

•9 years ago

2 Replies

Polycthamenia jak2

Hiya Can anyone with this blood disorder recommended anything you can take for the tiredness! My husband is struggling with fatigue, he drinks a borocca...

Hiya Can anyone with this blood disorder recommended anything you can take for ...

tracey13

•9 years ago

47 Replies

Sunny Sunday ,,need a smile??

My husbands name is BOB. must get our priorities right in life !! Into all life some rain may fall.. Just make sure you look after the ones who love you the...

My husbands name is BOB. must get our priorities right in life !! Into all li...

Twinkly

•9 years ago

4 Replies

New member

Hi This is my first message to the group. I was diagnosed with ET 4 months ago and now I try to understand this strange disease. When I discovered the group...

Hi This is my first message to the group. I was diagnosed with ET 4 months ago a...

Peterwi

•9 years ago

25 Replies

My Benevolent Donor Sister

Just to let you all know that my lovely sister who as you know selflessly stepped up and offered her precious stem cells to me is getting back on top form. ....

Just to let you all know that my lovely sister who as you know selflessly steppe...

JediReject

•9 years ago

19 Replies

Living with MPNs-Nov 14.

Any of the regulars going to this? Just booked hotel yesterday so best buy my ticket now! It'll be the first one I've attended so really looking forward to...

Any of the regulars going to this? Just booked hotel yesterday so best buy my ti...

Polly-PV

•9 years ago

12 Replies

Essential Thrombosis - CARL Mutation Positive

Hi All, Good day. My name is Joanne and i come from Malaysia. I am sorry if i make grammar mistake as my English is not good. My hubby was done medical...

Hi All, Good day. My name is Joanne and i come from Malaysia. I am sorry if i m...

tey_joanne_1984

•9 years ago

23 Replies

for Jedi Reject

Thought you'd like this!! Hope alls going well Brave Jedi!! X

lizzziep

•9 years ago

20 Replies

Reasonable results!

Been to the hospital today. Not only did I manage to get a parking place within reasonable walking distance of the hospital my platelets remain fairly stable...

Been to the hospital today. Not only did I manage to get a parking place within ...

lizzziep

•9 years ago

9 Replies

High wbc

My wbc is slightly elevated. Is this normal with et?

cannonfire

•9 years ago

7 Replies

Trip out to hospital on Thursday .MRI..scan .looking at my creeky old joints to see how much more wear on them ..

I gave up steroids , after 5 years ..it's made such a difference to me.My weight has dropped ,I feel stiff ,but am determined to try to cope without that drug...

I gave up steroids , after 5 years ..it's made such a difference to me.My weight...

Twinkly

•9 years ago

4 Replies

MPN Voice Charity Christmas Cards

Support MPN Voice this Christmas by sending our charity Christmas cards, there are 4 designs available, Dancing Reindeer, Silver Tree, Christmas Eve Carollers...

Support MPN Voice this Christmas by sending our charity Christmas cards, there a...

Mazcd

Partner•9 years ago

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Surrey based patients

Hey, I know there are a few Surrey UK based patients here and I was wondering if you would be interested in helping me organise a locally based MPN Voice...

Hey, I know there are a few Surrey UK based patients here and I was wondering if...

Hidden

•9 years ago

13 Replies

Next mission

Hello all. I hope you are all ok. My next mission is a 13 mile walk on the 26th. It is the shine walk and I would like to also raise funds for MPN voice....

Hello all. I hope you are all ok. My next mission is a 13 mile walk on the 26th....

Karen1970

•9 years ago

2 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for September 2015

food supplimemts for hair & Nails

An Expert Researcher explains Calreticulin

Update on my 12 wk check up

Invitation to a coffee morning in aid of MPN Voice – Friday 2nd October 10 am – 12 pm in Surrey

Moving to Interferon

New beginning

Help to boost immune system?

Bloodwise cancer advert - 137 different ones

New beginnings

Shine walk

Newly diagnosed

The Shine Walk

Have a happy weekend all !!! life is short ..

Up Up and Away

Hypercalcemia

Lurgi season.

Here's an interesting day out in November .its at the scotsdales garden centre ,at Cambridge ,,

Polycthamenia jak2

Sunny Sunday ,,need a smile??

New member

My Benevolent Donor Sister

Living with MPNs-Nov 14.

Essential Thrombosis - CARL Mutation Positive

for Jedi Reject

Reasonable results!

High wbc

Trip out to hospital on Thursday .MRI..scan .looking at my creeky old joints to see how much more wear on them ..

MPN Voice Charity Christmas Cards

Surrey based patients

Next mission

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