Posts - MPN Voice | HealthUnlocked

MPN Voice

10,415 members • 14,357 posts

All posts for January 2021

NEED HELP PLEASE ABOUT SERUM DROPS

Hi. I have very dry eyes & my doctor wants to make Serum Drops to treat it. The problem is you use the patients own blood and my MPN specialist doesn’t know if...

Hi. I have very dry eyes & my doctor wants to make Serum Drops to treat it. The ...

katiewalsh

•3 years ago

45 Replies

PharmaEssentia starting to promote Besremi

Check out pvsource.com. They are promoting ropeg INF to the medical community. There is an interesting video and you can register for email updates. The...

Check out pvsource.com. They are promoting ropeg INF to the medical community. T...

charl17

•3 years ago

1 Reply

Et and reviews

just wondering how often people with et aspirin only are reviewed. My haematologist is late with my review this time and obviously I understand there are...

just wondering how often people with et aspirin only are reviewed. My haematolog...

Irishgal12

•3 years ago

34 Replies

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Covid19 jab

Had my first dose of covid19 vaccine AstraZeneca yesterday afternoon no side effects such has yet just got to wait now to be called in for 2nd dose 🙂xx

Had my first dose of covid19 vaccine AstraZeneca yesterday afternoon no side eff...

Jody00

•3 years ago

16 Replies

Covid Vaccine for a Transplantee

Sharing my Covid jab experience. Pfizer, Watford in the UK. On Thursday I got a text and had my jab booked for 1750 last night at the local GP surgery. It is...

Sharing my Covid jab experience. Pfizer, Watford in the UK. On Thursday I got a...

MFBMT2011

•3 years ago

16 Replies

Change from Hydroxy to Interferon

Good morning, would love to hear looking from patients who have moved from Hydroxy to Interferon. I am 48 and been on hydroxy for 4 years but my consultant is...

Good morning, would love to hear looking from patients who have moved from Hydro...

Belgobrit72

•3 years ago

17 Replies

Outburst of a young PV patient

Hi guys, im not diagnosed yet, but my doctor suspects about PV and im completely terrified. Last year my Hct was 54%, he said to wait some time so that i could...

Hi guys, im not diagnosed yet, but my doctor suspects about PV and im completely...

Zukobs

•3 years ago

12 Replies

MPN/Haematology Team

Hi all, This is really a question for my fellow UK MPNers, but am happy to receive anyone’s comments. I have ET, diagnosed 2019, and I’m finding myself...

Hi all, This is really a question for my fellow UK MPNers, but am happy to recei...

Rae25

•3 years ago

18 Replies

ET Myths and Actual Risks

Just saw this one. While back from 2016 so a little dated, this is a nice explanation of actual risks in ET. (e.g. Microvascular events can correlate with...

Just saw this one. While back from 2016 so a little dated, this is a nice expl...

hunter5582

•3 years ago

71 Replies

Long term use of ropeginterferon alpha in Polycythemia Vera

« Highlights of the 5-year results of ContinuationPV study presented at ASH20 showing long-term hematological and deep molecular responses with ropeginterferon...

« Highlights of the 5-year results of ContinuationPV study presented at ASH20 sh...

Manouche

•3 years ago

1 Reply

ET + Kak 2 - going for Covid jab next Friday

Hi to you all, I am 59 in fairly good health at have had ET for 10 years + and just on asprin. My platelets are usually 500 -580 ish. Just wondering if you...

Hi to you all, I am 59 in fairly good health at have had ET for 10 years + and ...

Cassandra61

•3 years ago

6 Replies

COVID vaccine

Hi all... Well.. I had my Covid vaccine today at guys. So far I feel absolutely fine. Fingers crossed I don’t feel to yuk! What I will say is though I was...

Hi all... Well.. I had my Covid vaccine today at guys. So far I feel absolutely...

Dazakella2010

•3 years ago

7 Replies

Weekly Pegasys and COVID vaccine

Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve...

Hi folks Quick question; has anyone had vaccine on weekly interferon injections?...

PT99

•3 years ago

6 Replies

Need perspective from people diagnosed with ET at young age

Likely facing ET diagnosis at age 30. Possibly had it for many years prior. Worried sick about not living normal life expectancy. Have a young family. Looking...

Likely facing ET diagnosis at age 30. Possibly had it for many years prior. Worr...

cmc_ufl

•3 years ago

43 Replies

EXPECTED AGE CAVEAT FOR ASTRA ZENECA VACCINE IN GERMANY

Post by MPN-MATE Admin » Sat Jan 30, 2021 12:05 pm Morning all... :D Well while the CV–19 virus continues to mutate globally, we are now all also becoming...

Post by MPN-MATE Admin » Sat Jan 30, 2021 12:05 pm Morning all... :D Well w...

socrates_8

•3 years ago

11 Replies

Hair colouring (dying) and Hydroxyurea

Vanity question Has anyone dyed their hair while on Hydroxyurea? I've been on it for 4 weeks and haven't noticed any issue with my hair, but dying isn't...

Vanity question Has anyone dyed their hair while on Hydroxyurea? I've been on ...

nightshadow

•3 years ago

11 Replies

Possibly facing ET diagnosis

Age 30. Hematologist told me today I likely have ET due to mildly elevated platelets for 10 years. Shocking with a young daughter and pregnant wife at home....

Age 30. Hematologist told me today I likely have ET due to mildly elevated plate...

cmc_ufl

•3 years ago

47 Replies

COVID Category 4 OR LOWER?

if you were sent a shielding letter during the first Covid lockdown, does that mean that you will get a NHS letter inviting you to get a vaccine instead of...

if you were sent a shielding letter during the first Covid lockdown, does that m...

Wyebird

•3 years ago

40 Replies

First jab done!

Well, I had my first vaccine about three hours ago. It was the Pfizer and the whole process was extremely well organized at the medical centre. It's probably...

Well, I had my first vaccine about three hours ago. It was the Pfizer and the wh...

Otterfield

•3 years ago

45 Replies

Letters

Thanks for all the responses about my inquiry regarding shielding letters. Looks like more Europeans are on this forum. Interesting. I appreciate all the...

Thanks for all the responses about my inquiry regarding shielding letters. Looks...

Scrollernut

•3 years ago

1 Reply

question for maz

do you know if the upcoming mpn patient forum on the 2nd will be accessible after ? Thanks

do you know if the upcoming mpn patient forum on the 2nd will be accessible afte...

Irishgal12

•3 years ago

2 Replies

Lack of information given by the medical profession

Over a period of ten years my husband was subjected to being given \\hydroxycarbamide without any information being given to him regarding side effects etc...

Over a period of ten years my husband was subjected to being given \\hydroxycarb...

1219Smokey

•3 years ago

43 Replies

Interferon therapy in the management of myeloproliferative neoplasms

Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95];...

Time on treatment analysis demonstrated that every year on interferon reduced th...

Manouche

•3 years ago

3 Replies

Germany not giving Astra Zeneca vaccine to over 65 year olds

After watching the news tonight and gearing that Germany are not giving the Astra Zeneca vaccine to over 65s because insufficient research had been carried out...

After watching the news tonight and gearing that Germany are not giving the Astr...

Hughley

•3 years ago

9 Replies

Letters

I’m really curious about something. I’m in the U. S. I read all the time about letters people from the U. K. are getting. What are these? Is that only there?...

I’m really curious about something. I’m in the U. S. I read all the time about ...

Scrollernut

•3 years ago

17 Replies

Oxford Vaccination

I’m due to have my first Covid vaccine on 3rd February 21, which will be the Oxford vaccine. Just wondering if anyone else on Ruxolitinib has had this?

I’m due to have my first Covid vaccine on 3rd February 21, which will be the Oxf...

StreetPastor

•3 years ago

9 Replies

Vaccine and histamine intolerance

Morning, Does anyone have histamine intolerance? ( you would know if you have ) I’m a little concerned about the Oxford vaccine as it contains lhistidine...

Morning, Does anyone have histamine intolerance? ( you would know if you have )...

Loubprv

Volunteer•3 years ago

7 Replies

Prozac

Hi .. I’m about to try Prozac for severe PV itching... has anyone been on it and does it cause significant weight gain???

Hi .. I’m about to try Prozac for severe PV itching... has anyone been on it and...

Hidden

•3 years ago

24 Replies

Importance of checking levels

I have been taking vit D 5000 for about 9 months as I was advised high dose might be beneficial . Just had blood test it’s to high . 160 . top end is 120....

I have been taking vit D 5000 for about 9 months as I was advised high dose mi...

Mostew

•3 years ago

6 Replies

PFIZER & MODERNA VACCINES Q & A

Post by MPN-MATE Admin » Thu Jan 28, 2021 4:55 pm Evening all :D Found this YouTube that answers a few questions. Hope that you might find it of interest...

Post by MPN-MATE Admin » Thu Jan 28, 2021 4:55 pm Evening all :D Found this Y...

socrates_8

•3 years ago

33 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for January 2021

NEED HELP PLEASE ABOUT SERUM DROPS

PharmaEssentia starting to promote Besremi

Et and reviews

Covid19 jab

Covid Vaccine for a Transplantee

Change from Hydroxy to Interferon

Outburst of a young PV patient

MPN/Haematology Team

ET Myths and Actual Risks

Long term use of ropeginterferon alpha in Polycythemia Vera

ET + Kak 2 - going for Covid jab next Friday

COVID vaccine

Weekly Pegasys and COVID vaccine

Need perspective from people diagnosed with ET at young age

EXPECTED AGE CAVEAT FOR ASTRA ZENECA VACCINE IN GERMANY

Hair colouring (dying) and Hydroxyurea

Possibly facing ET diagnosis

COVID Category 4 OR LOWER?

First jab done!

Letters

question for maz

Lack of information given by the medical profession

Interferon therapy in the management of myeloproliferative neoplasms

Germany not giving Astra Zeneca vaccine to over 65 year olds

Letters

Oxford Vaccination

Vaccine and histamine intolerance

Prozac

Importance of checking levels

PFIZER & MODERNA VACCINES Q & A

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