Posts - MPN Voice | HealthUnlocked

MPN Voice

10,432 members • 14,381 posts

All posts for November 2012

please explain Thrombophlebitis

•11 years ago

Who else has Polycythemia as a condition

I have been diagnosed with Polycythemia as a condition rather than a disease so not PV. After over a year of hospital tests my Consultant still cannot locate...

I have been diagnosed with Polycythemia as a condition rather than a disease so ...

•11 years ago

isidora

Is anyone taking Anagrelide and if so have you had many side effects - I took Hydra for years until I got two awful ulcers on my right ankle which took one...

Is anyone taking Anagrelide and if so have you had many side effects - I took Hy...

•11 years ago

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Charity Ball- UPDATE

Hi Guys, Just wanted to let you all know that the charity ball is looking likely to take place on the 3rd of May 2013 at the Mercure Piccadilly in...

Hi Guys, Just wanted to let you all know that the charity ball is looking lik...

•11 years ago

Who is going to the London forum tomorrow?

Would be nice to meet up with people. I have ET.

Would be nice to meet up with people. I have ET.

•11 years ago

Macrocytosis and daily water recommended

I have had PV for 5 years, male 53 years old , treated with hydroxycarbamide, now I have Macrocytosis , corpuscular volume (MCV) of around than 100...

I have had PV for 5 years, male 53 years old , treated with hydroxycarbamide, no...

•11 years ago

I have PV and take HU have started to get swollen ankles and feet and irritation in big toe> any clues

•11 years ago

i have PV and get a lot of spontaneous bruising. Do others get this

•11 years ago

Does anyone suffer from frequent out breaks of cold sores. Not sure whether this is related to ET or something else

•11 years ago

MPNForum Magazine

This is a free online magazine written by MPN patients for MPN patients. It contains a number of stories and articles, including one by me, covering MPN...

This is a free online magazine written by MPN patients for MPN patients. It cont...

•11 years ago

Platelet Count

Hello everyone. I am a little worried so thought I would ask the question. My husband told six weeks ago he had progressed to MF but another hospital says it...

Hello everyone. I am a little worried so thought I would ask the question. My ...

•11 years ago

Has anyone taken early retirement due to having ET? I have an NHS pension and wondered if I would be eligible to take early retirement

•11 years ago

Are there any medical facilities in Southwest England carrying out research into MPD's?

•11 years ago

Newbie with Primary Polycythaemia

Hi everyone, I've just come accross this site and wanted to introduce myself. I'was diagnosed with PV around 4 weeks ago, I went to the doc's because I started...

Hi everyone, I've just come accross this site and wanted to introduce myself. I'...

•11 years ago

DLA

Hi everyone i little research into the decision makers reference material I think the main issue re DLA claims in the UK is the Department for work and...

Hi everyone i little research into the decision makers reference material I ...

•11 years ago

Has anyone had a pregnancy with ET?

Has anyone had a pregnancy with et? I am 13 weeks pregnant and on Pegasys, consultant just added heparin injection daily as well but happy with me so far....

Has anyone had a pregnancy with et? I am 13 weeks pregnant and on Pegasys, consu...

•11 years ago

Charity Christmas Cards in aid of MPD Voice

Support MPD Voice this Christmas by sending our charity Christmas cards, there are 3 designs available, The Tree, Madonna and On the Twelfth Day. Each pack...

Support MPD Voice this Christmas by sending our charity Christmas cards, there a...

Partner•11 years ago

I have ET. Can increased stress, for instance due to a demanding work schedule, lead to an increased platelet count?

I am hoping to return to work following a liver transplant six months ago. I have well established ET ( JaK 2 + ) which contributed to the need for it. I am...

I am hoping to return to work following a liver transplant six months ago. I ha...

•11 years ago

Do you have a child with this rare disorder?

My daughter who is Eleven was just diagnosed with this disease, I would like to know if you have a child who also has this and can share some helpful...

My daughter who is Eleven was just diagnosed with this disease, I would like to ...

•11 years ago

Any recent fundraisers or plans to fundraise for MPD Voice?

Hi - I'm currently compiling the patient newsletter MPD Voice and know that many of you are fundraising or have plans to fundraise for our work. Just a quick...

Hi - I'm currently compiling the patient newsletter MPD Voice and know that many...

•11 years ago

Living with fatigue

Hi, I'm editing the next issue of MPD Voice and plan to cover living with fatigue, as I know this is one of the most common quality of life challenges. If you...

Hi, I'm editing the next issue of MPD Voice and plan to cover living with fatigu...

•11 years ago