Posts - MPN Voice | HealthUnlocked

MPN Voice

10,341 members14,253 posts

All posts for August 2017

Tinnitus relief

Looking for good home remedies that are effective, have tried gingo bilko for th...
sh8448 profile image

New to this site looking to chat

Hi Everyone! I'm hoping to connect with people who can relate to what I'm going ...
Sunnye profile image

"Potential of CAR-T technology goes beyond one type of cancer"

Historic 'living drug' gets go-ahead - http://www.bbc.co.uk/news/health-41094990...
Lainy1 profile image
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Diagnosed at 65

I was diagnosed in Feb17 when I had my bloods checked six months after having H...
Brid12 profile image

Vitamins and supplements

Is it ok to take something like Cardioace I have pv and feel fit and healthy but...
Jasbak22 profile image

42 years old and recently diagnosed

Hi folks, I'm new to this site but thought I'd introduce myself. I'm a 42 years ...
SunnyY profile image

Von willebrand

Does anyone else with ET also have low Von willebrand, I've had to stop aspirin ...
Melaniem59 profile image

ET jak 2 positive

I have been on Hydroxycarbonide for two months. I have over the last couple of w...
Anne2751 profile image

Anyone with similar numbers and not on hydroxybicarbimide

Diagnosed with PV JAK2+ My numbers are hgb 20.3 hemocrotic 60 and platelets 500....
Eoin profile image

TOMORROW Live MPN Treatment Webinar!

What new treatments are in development for myeloproliferative neoplasms (MPNs)? ...
tclementi profile image

could this be side effects of HU or mpn in general ?

Hi all Holly here , just been getting a sun burn kind if feeling all over yet to...
catwoman2015 profile image

MPN specialist locations

Maz Is there a list of MPN specialists with their locations around the UK? I liv...
Hidden profile image

Tell me your story

Have just found my story on email. Don't know what I've done but the whole set ...

Tell us your story

Have just been on the site Tell us your story but cannot now locate it. Someone ...

Leaking bone marrow??

I'm wondering if anyone can shed light on a red swelling I have on my leg. It ca...
Fika500 profile image

cranberry juice

I have recently been diagnosed with polycytheamia vera, I have read a post sayin...
MariaB27 profile image

Travel Insurance

Hi, I need to arrange (european) travel insurance. I did an online quote with i...

Frustration over Understanding of ET

Recently saw a works Dr who reviews my condition as I'm on restricted duties. Su...
heathermc profile image

Vitamin pills

Hello Zeta-Chi Have you tried vitamin pills? Not the kind you can buy in super...
Searcher56 profile image

Pegasys or interferon alpha,

Reading alot of coments about pegasys,taken weekly,my interferon i take wen,sun,...
Jbut profile image

Medications and alcohol

I wonder if anyone has severe reactions to meds.other than Hydroxy. Every antib...
Garden987 profile image

Platelets, depression and caffeine.

I have had ET for 10 years,on aspirin. For the past few weeks have been particul...
Zeta-Chi profile image

Newly diagnosed

Hi, hoping this is the right place to put this but I am after people's experienc...
Tashaea profile image

Navy Jean

Any negatives re using ICY HOT wih 4% Lidocaine daily?
Noventa1 profile image

MPN Voice patients’ forum Inverness CANCELLED

We are very sorry to inform you that due to low numbers we have had to cancel th...
Mazcd profile image
Partner

CindyS

Hi Everyone, I was diagnosed with JAK2 ET about three years ago.... I also am po...

Citalopram and aspirin

Hi All I have ET, and use Pegasys to control my platelet numbers and symptoms - ...
Loubielou profile image

Taking Interferon for the first time - when do you take and why do you take at that time ?

I have ET CALR + and am due to see a specialist on Sept 11th, I am 54 and work. ...
Jocko profile image

Specialists in Ireland

Hi, Just wondering if there is anybody from Ireland on here that knows of any mp...

Badly thinning hair!!!!

Hi all I've been on HU for almost 2 years now. I am now 64 and put on HU when pl...
130396 profile image