Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for April 2015

Ask you questions about blood tests

My favorite person, Dr. Susan Leclair, a highly respected blood laboratory expert form the US, will be our LIVE guest on an upcoming webinar where you can ask...

My favorite person, Dr. Susan Leclair, a highly respected blood laboratory exper...

andrewschorr

•10 years ago

Be the first to reply

jak2 with ET

Saw my heamatolgist yesterday , who confirmed for sure which mpd i have at the moment she still wants to monitor me and told me to take the Asprin daily and...

Saw my heamatolgist yesterday , who confirmed for sure which mpd i have at the m...

Hidden

•10 years ago

11 Replies

Cholesterol

I was curious if anyone has high cholesterol and ET. I didn't before but when platelets rose so did my cholesterol. I have conflicting recommendations as to...

I was curious if anyone has high cholesterol and ET. I didn't before but when ...

Janet123

•10 years ago

11 Replies

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Newbie

Hi All - My first post here. I am just recently diagnosed with MF, in fact my letter of diagnosis (yes, I found out by letter after believing I had ET) was...

Hi All - My first post here. I am just recently diagnosed with MF, in fact my l...

Lesleyt10

•10 years ago

22 Replies

Hopefully from your information critical payouts I get good news today !!!!!!

Recently reading some of your posts regarding critical illness , I run it passed my hubby saying shame we declined taking it out on our Insurance , he looked...

Recently reading some of your posts regarding critical illness , I run it passe...

Phelpsy

•10 years ago

9 Replies

I've met a consultant - and she was good!

Following my nightmare of no contact with a consultant for 10 months since diagnosis, I have now seen one! The wonderful Sister in the Chemo suite (where I...

Following my nightmare of no contact with a consultant for 10 months since diagn...

trevic

•10 years ago

12 Replies

Re: Transplant

My blood results show that I am a 50% haplotype match for a sibling, is this poor or good?

My blood results show that I am a 50% haplotype match for a sibling, is this poo...

sandrad

•10 years ago

6 Replies

Are you having a deep thoughtful moment ?

Ain't this the truth !!

Twinkly

•10 years ago

8 Replies

John the finisher...

John with his medal

Hidden

•10 years ago

6 Replies

Help with a blood result

Hello All I have a mean platelet count of 7.3 what does this mean and a Eosinophil count of 0.51 10/\\9/L what is this

Hello All I have a mean platelet count of 7.3 what does this mean and a Eosinop...

Cazzy123

•10 years ago

8 Replies

They did it!! And they were amazing!!!

The atmosphere at The London Marathon was Fantastic and John and Giovanni were amazing!!! I was cheering at the 25mile Cheer Point on the Embankment, and they...

The atmosphere at The London Marathon was Fantastic and John and Giovanni were a...

MarilynMPNVoice

Fundraising•10 years ago

2 Replies

Brilliant article!!

http://www.pvreporter.com/pv-for-newbies-a-patients-perspective/ Hope this works! I have been diagnosed with PV for 14 months now and have learnt more from...

http://www.pvreporter.com/pv-for-newbies-a-patients-perspective/ Hope this work...

Chelle_

•10 years ago

4 Replies

Stem Cell Transplant

I am 64 years old and was diagnosed with primary MF four years ago. I have recently been part of the Pacritinib drug trial but have had to discontinue taking...

I am 64 years old and was diagnosed with primary MF four years ago. I have rece...

john2cv6

•10 years ago

5 Replies

Hydroxycarbamide. Aching muscles

Hi. I've been on hydroxycarbamide for about 3 months. Over the last 5-6 weeks I have had really bad painful aching muscles in my back. I work standing up all...

Hi. I've been on hydroxycarbamide for about 3 months. Over the last 5-6 weeks I ...

Digger031145

•10 years ago

3 Replies

Getting to the start line

Well it's marathon weekend, and getting to the start line has been tough for john. He's stuck to his training plan and we've experienced together the highs and...

Well it's marathon weekend, and getting to the start line has been tough for joh...

Hidden

•10 years ago

5 Replies

Two things going on.

I just went to see my hematologist to get the results from my March BMB- it came back suboptimal for adequate evaluation - but what can be confirmed is I...

I just went to see my hematologist to get the results from my March BMB- it came...

jeanr

•10 years ago

6 Replies

Low WBC count

How low has your WBC count been since on the hydrea medicine. I have E.T. I'm know that taking the Hydrea medicine our counts RBC & RBC will not bee in normal...

How low has your WBC count been since on the hydrea medicine. I have E.T. I'm k...

Hidden

•10 years ago

6 Replies

Aching back muscles

I have got a really bad aching back.. I have had it for over a week. It seems muscular. Could this be side effect of hydroxycarbamide

I have got a really bad aching back.. I have had it for over a week. It seems mu...

Digger031145

•10 years ago

2 Replies

The sun is shining today ,but I'm having a sad day ,,

My beautiful co.co. had 5 pups ,and we had fading puppy syndrome ,they slowly left ..so I'm not my usual strong self .xxxx

My beautiful co.co. had 5 pups ,and we had fading puppy syndrome ,they slowly le...

Twinkly

•10 years ago

19 Replies

Thanks

Many, many thanks to all those who have replied to me so far. I am truly overwhelmed by the support I have had. It means such a lot to know that you're not on...

Many, many thanks to all those who have replied to me so far. I am truly overwh...

trevic

•10 years ago

4 Replies

What's a consultant?

HI, I was diagnosed with primary MF in July 2014. Despite attending haemo clinics every four weeks to start with, then every ten weeks and then every eight...

HI, I was diagnosed with primary MF in July 2014. Despite attending haemo clini...

trevic

•10 years ago

9 Replies

From PV and MF to Myloproliferative disorder?

Hello, I hope one of the experts or doctors can answer this question. I have PV & MF and taking Jakafi 25mg twice daily. I had to go to another oncologist...

Hello, I hope one of the experts or doctors can answer this question. I have PV...

fiddlelady

•10 years ago

2 Replies

Good Luck David Brailsford

It doesn't seem possible, but David is now about to start his 3rd of 8 Challenges for MPN Voice. On Sunday 26th April David is taking part in the Knox Johnston...

It doesn't seem possible, but David is now about to start his 3rd of 8 Challenge...

MarilynMPNVoice

Fundraising•10 years ago

1 Reply

Good Luck to Our MPN Voice London Marathon Runners John Messenger and Giovanni Maso

Well, it's nearly here! Sunday April 26th, London Marathon Day and for John Messenger and Giovanni Maso, the wait is nearly over. We can't imagine how many...

Well, it's nearly here! Sunday April 26th, London Marathon Day and for John Mess...

MarilynMPNVoice

Fundraising•10 years ago

Be the first to reply

Nothing like the sea air!

Hi everyone, Can I heartily recommend the wonderful isle of Anglesey for blowing away cares and cobwebs........stunning walking, fabulous coastline. Louise x

Hi everyone, Can I heartily recommend the wonderful isle of Anglesey for blowing...

Loubprv

Volunteer•10 years ago

3 Replies

Travel insurance- anyone got a Barclays Additions account? Oh, & thinning hair update!

Off to Spain in a couple of weeks to see my ex pat mate and with that comes that little flying niggle I guess we all have. Flight socks at the ready! Also,...

Off to Spain in a couple of weeks to see my ex pat mate and with that comes that...

Polly-PV

•10 years ago

3 Replies

Wonderful to see the springtime weather ,lifts the spirits ,makes us feel healthier

Time to get out for a walk ,even 20 minutes at the warmest time of the day ,lunch time ..lifts the spirits ,, twinkly ..xx

Time to get out for a walk ,even 20 minutes at the warmest time of the day ,lunc...

Twinkly

•10 years ago

9 Replies

Mpd symptoms

Hi can anyone tell me of any symptoms .if any they had before bein diagnosed with Jak2positive and ET please im 62 in uk 😊

Hi can anyone tell me of any symptoms .if any they had before bein diagnosed wit...

Hidden

•10 years ago

33 Replies

Support groups

Hi does anyone know of any support groups in the Manchester area ? Also Maz is there any chance of a forum in Manchester in the near future ? Thanks

Hi does anyone know of any support groups in the Manchester area ? Also Maz is t...

Benjamin12

•10 years ago

8 Replies

Happy birthday

Happy birthday to me hope you all having a great day x

Shelly1960

•10 years ago

26 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for April 2015

Ask you questions about blood tests

jak2 with ET

Cholesterol

Newbie

Hopefully from your information critical payouts I get good news today !!!!!!

I've met a consultant - and she was good!

Re: Transplant

Are you having a deep thoughtful moment ?

John the finisher...

Help with a blood result

They did it!! And they were amazing!!!

Brilliant article!!

Stem Cell Transplant

Hydroxycarbamide. Aching muscles

Getting to the start line

Two things going on.

Low WBC count

Aching back muscles

The sun is shining today ,but I'm having a sad day ,,

Thanks

What's a consultant?

From PV and MF to Myloproliferative disorder?

Good Luck David Brailsford

Good Luck to Our MPN Voice London Marathon Runners John Messenger and Giovanni Maso

Nothing like the sea air!

Travel insurance- anyone got a Barclays Additions account? Oh, & thinning hair update!

Wonderful to see the springtime weather ,lifts the spirits ,makes us feel healthier

Mpd symptoms

Support groups

Happy birthday

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