Posts - MPN Voice | HealthUnlocked

MPN Voice

10,432 members • 14,375 posts

All posts for December 2012

Critical illness claim - finally got an answer

After initially contacting my insurance companies about my ET I finally received confirmation that they will pay out on the claim My consultant took 3...

After initially contacting my insurance companies about my ET I finally received...

•11 years ago

I have had flu, chest infection, ear infection and severe mouth ulcers I have PV blood counts good last test. Does PV compromise immune syst

•11 years ago

How often do you have blood tests?

When diagnosed in Jan 2012 my consultant said blood tests every 6 months but then in July my platelets had jumped from 600 to 800 so he said I had to have them...

When diagnosed in Jan 2012 my consultant said blood tests every 6 months but the...

•11 years ago

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Question: Age?, year diagnosed?, MPD?, med's per week?, Platelet count?

Happy Christmas everyone! It's 2.48am & I'm up reading blogs and questions............The things I do for fun ay! ;-) Just thought it might be interesting...

Happy Christmas everyone! It's 2.48am & I'm up reading blogs and questions.......

•11 years ago

PRV , hydroxy carbamide , osteoporosis link .

I have just got back home after six days in hospital after fracturing my hip . Diagnosed withPRV 2and a half years ago and on and off hydroxy carbamide ....

I have just got back home after six days in hospital after fracturing my hip . D...

maestromaverick

•11 years ago

Blood Results

Hi I have ET (Jak 2 +) and was just wondering, if anyone could help. My bloods have been relatively stable,until my last set of bloods which showed that my WCC...

Hi I have ET (Jak 2 +) and was just wondering, if anyone could help. My bloods h...

•11 years ago

Enlarged liver!

I was diagnosed with PV nearly 8 years ago and yesterday an ultrasound showed I have an enlarged liver. I'm still only on aspirin and venesections, so no meds...

I was diagnosed with PV nearly 8 years ago and yesterday an ultrasound showed I ...

•11 years ago

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A large swelling on the back of my hand between my knuckles which is blue and red, has anyone else ever experienced similar?

This appeared today in front of my eyes, my colleague was horrified as was I. I rang the haematologist nurse who sent me for a blood test and my counts are...

This appeared today in front of my eyes, my colleague was horrified as was I. I...

•11 years ago

Working and PV

I was recently diagnosed with PV, I’ve been reading up on the condition, one of the reason I went to see my doctor was fatigue, I work in a type of job that...

I was recently diagnosed with PV, I’ve been reading up on the condition, one of...

•11 years ago

Taking Hydroxycarbamide and developed a cough?

I was diagnosed with MF earlier this year and take Hydroxycarbamide and LD aspirin and over the last few months I have developed a (slighty chesty) niggling...

I was diagnosed with MF earlier this year and take Hydroxycarbamide and LD aspir...

•11 years ago

Hi, does anyone know if kidney stones can be a complication of PV ?

•11 years ago

Hi I am 46 & newly diagnosed ET jak 11+. Does anyone know of a good haematologist in the Greater Manchester area who specialises in MPD 's?

I was recommended Guy Lucas but have read he has retired ??? It is great to have a forum like this with people that understand this condition! Many thanks.

I was recommended Guy Lucas but have read he has retired ??? It is great to have...

•11 years ago

Anyone else struggling with the cold temperatures?

•11 years ago

Has anyone with ET also had blocked arteries to stomach/kidney/spleen?

•11 years ago

Bones

My bones crunch and click and are so painful (pain scales 6-9 all the time). Anyone else get this on med's and didn't before? 4am and up again! :-(

My bones crunch and click and are so painful (pain scales 6-9 all the time). Any...

•11 years ago

PRV and a cardio workout routine. Is this causing my HCT counts to increase significantly?

I'm 59 yrs old and have been diagnosed with PRV now for little over 20 yrs. I'm fairly active, walking skiing horseback riding. About a year ago I started...

I'm 59 yrs old and have been diagnosed with PRV now for little over 20 yrs. I'm...

•11 years ago

Hey does any one know why the medication Warfarin dosn't raise the INR level in blood? Im now on 10mg/day to try an elevate INR level

•11 years ago