Posts - MPN Voice | HealthUnlocked

MPN Voice

10,413 members • 14,354 posts

All posts for December 2019

guid new year

TO all on MPN VOICE happy new year here's to health and happiness and one tip do not worry about your MPN unless your consultant says there is cause to worry...

TO all on MPN VOICE happy new year here's to health and happiness and one tip do...

Scottishterrier

•4 years ago

6 Replies

Happy New Year to all

I just want to thank people on the site, as well, for their inspiration and insights that has helped me get me through this past year. It’s because of the...

I just want to thank people on the site, as well, for their inspiration and ins...

Cja1956

•4 years ago

5 Replies

Happy New Year!

Here’s to a healthy 2020!

Bears23

•4 years ago

9 Replies

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Happy New Year.

I would like to wish you all A Happy New Year and with all the support this group gives us, it will help improve people’s health in body and in mind. Stay...

I would like to wish you all A Happy New Year and with all the support this gro...

wendycu

•4 years ago

4 Replies

How's your life?

Is there anyone below 35 yrs old having pv here? Im having mine when i was 37. Since i never met or even know someone younger then me having the same...

Is there anyone below 35 yrs old having pv here? Im having mine when i was 37. S...

Alexander-Dzul

•4 years ago

2 Replies

Happy New year and my best wishes to all of you!

I just felt like telling all of you how much it means to have a place where I can reach people who actually not only knows what et and MPN is but also what it...

I just felt like telling all of you how much it means to have a place where I ca...

Bohus

•4 years ago

10 Replies

Kidney low

Hi all had a routine blood test which needs to be repeated because of minor changes like kidneys low platelets are 408 but I’m also being checked again for...

Hi all had a routine blood test which needs to be repeated because of minor chan...

catwoman2015

•4 years ago

2 Replies

Is swollen hands and feet mpn-related?

Swollen hands and feet, why? I can't seem to get my ring off my hand, very unusual for me. And my feet hurt. I was just wondering if any one else has...

Swollen hands and feet, why? I can't seem to get my ring off my hand, very unusu...

Bohus

•4 years ago

5 Replies

Pain injecting Pegasys

I have been injecting Pegasys for six months and it's always been painless. But today, although I didn't do anything differently, it was painful when I...

I have been injecting Pegasys for six months and it's always been painless. But ...

Otterfield

•4 years ago

13 Replies

Life with ET

I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I...

I am the person flying through the air. At 39 I discovered I had ET (CALR). I ...

MJL1977

•4 years ago

12 Replies

life on Spain

second Spanish hospital visit bloods all good best im last 2 yrs still on Hydroxy but next review is end of Feb 2020 thats 4 months from appointment.. life in...

second Spanish hospital visit bloods all good best im last 2 yrs still on Hydrox...

Hughesf

•4 years ago

5 Replies

Et treatment

Me again. Those of you on chemo meds for et are u able to function normal? Like work, not feeling I'll? No hair loss etc I guess am trying to accept I may...

Me again. Those of you on chemo meds for et are u able to function normal? Like ...

Irishgal12

•4 years ago

43 Replies

Am I able to see the picture of my cells after my bone marrow biopsy?

Do you think it's important to see the picture of your bone marrow smear after the bone marrow biopsy? I would think it would be helpful if someone showed me...

Do you think it's important to see the picture of your bone marrow smear after t...

Jschwab

•4 years ago

6 Replies

Continual nail bed infection and now, cellulitis. All In same foot!?

Hello/help. ET and constant infections. I have had a continually recurring undernail infection in big toe for 8 weeks now and, finished 2nd round of...

Hello/help. ET and constant infections. I have had a continually recurring und...

WoodcutterET

•4 years ago

9 Replies

Resisting chemotherapy

I’m new to site. Diagnosed with JAK 2 ET ABOUT 9 months ago . I’m trying not to take chemo drug . Platelets rose to 920 so decided if still up a month later...

I’m new to site. Diagnosed with JAK 2 ET ABOUT 9 months ago . I’m trying not ...

Smomo

•4 years ago

70 Replies

Blood tests high platelets

So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal

So me again I have now received blood work to get done prior to my haematologis...

Irishgal12

•4 years ago

16 Replies

Anybody here on methotrexate?

Saw this article about methotrexate giving symptom relief to MPN patients. Just wondering if anybody has any experience with this?...

Saw this article about methotrexate giving symptom relief to MPN patients. Just ...

clubdino

•4 years ago

21 Replies

Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?

Should I be worried? Are the side effects bad?

Cbreeze0182

•4 years ago

17 Replies

What does this mean??

Hi All, I was diagnosed 5 years ago PV at age 38 and have been relatively symptom free. Treatment has been aspirin and phlebotomy about once a year. After...

Hi All, I was diagnosed 5 years ago PV at age 38 and have been relatively symp...

DN515

•4 years ago

18 Replies

has anyone had a second hip replacyment done and how did it go I need to have my left one done this year had right one done last year

has anyone had a secon hip replacyment done and how did it go I need to have my left one done this year I had my right one done last year

has anyone had a secon hip replacyment done and how did it go I need to have my ...

leapi

•4 years ago

2 Replies

the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???

Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over...

Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusti...

socrates_8

•4 years ago

3 Replies

75th Birthday

75th birthday today and 30 years of ET Fantastic

catkinspolymer

•4 years ago

31 Replies

Hello and Merry Christmas

Hi all, I was diagnosed ET JAK2+ last month and joined this forum a few days ago. I just want to wish everyone a Merry Christmas. I’m looking forward to...

Hi all, I was diagnosed ET JAK2+ last month and joined this forum a few days ag...

Rae25

•4 years ago

17 Replies

HAPPY CHRISTMAS

Best wishes to all our MPN family For a happy Christmas. And a healthy as possible New Year. Love to all Sandy. xxx

Best wishes to all our MPN family For a happy Christmas. And a healthy as possib...

Stevesmum42

•4 years ago

6 Replies

Christmas Guardian article

Hope everyone has a lovely Christmas. I’m sharing a little article I wrote about living with an MPN and what it’s taught me - hopefully not all gloom but lots...

Hope everyone has a lovely Christmas. I’m sharing a little article I wrote about...

Timjonze

•4 years ago

9 Replies

Christmas Guardian article

Hope everyone has a lovely Christmas. I’m sharing a little article I wrote about living with an MPN and what it’s taught me - hopefully not all gloom but lots...

Hope everyone has a lovely Christmas. I’m sharing a little article I wrote about...

Timjonze

•4 years ago

25 Replies

Probable phlebitis

Hi everyone,I went to Minor Injuries today because last night I suddenly had a pain and redness on the outside of my ankle. The practitioner I saw said it...

Hi everyone,I went to Minor Injuries today because last night I suddenly had a p...

Otterfield

•4 years ago

8 Replies

Happy Holidays!

Good holiday gift - bloods steady and asymptomatic from ET, so on to telephone clinic and yearly Haemo visits. Just got to hope Brexit doesn't disrupt the...

Good holiday gift - bloods steady and asymptomatic from ET, so on to telephone c...

mjn500

•4 years ago

1 Reply

Pneumonia jab.

Should I have the pneumonia jab? I am 75 with ET. The Dr. Said that I should check. I know that it is not a live vaccine.

Should I have the pneumonia jab? I am 75 with ET. The Dr. Said that I should che...

Bromley

•4 years ago

7 Replies

PV that was't!

I have had a Hgb and Hct that has always been near the top of the normal range since I was in my 20's. As a health care provider I had yearly CBC's. Fast...

I have had a Hgb and Hct that has always been near the top of the normal range s...

ralphiev

•4 years ago

11 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2019

guid new year

Happy New Year to all

Happy New Year!

Happy New Year.

How's your life?

Happy New year and my best wishes to all of you!

Kidney low

Is swollen hands and feet mpn-related?

Pain injecting Pegasys

Life with ET

life on Spain

Et treatment

Am I able to see the picture of my cells after my bone marrow biopsy?

Continual nail bed infection and now, cellulitis. All In same foot!?

Resisting chemotherapy

Blood tests high platelets

Anybody here on methotrexate?

Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?

What does this mean??

has anyone had a second hip replacyment done and how did it go I need to have my left one done this year had right one done last year

the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???

75th Birthday

Hello and Merry Christmas

HAPPY CHRISTMAS

Christmas Guardian article

Christmas Guardian article

Probable phlebitis

Happy Holidays!

Pneumonia jab.

PV that was't!

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