Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for May 2020

Break out the bunting we're free......... er, I think not just yet

So the barriers are starting to be lifted for those of us that were having to shield. It is encourage see the risk of contracting Covid 19 is on a downwards...

So the barriers are starting to be lifted for those of us that were having to sh...

Ovingite

•5 years ago

24 Replies

ET and affects of heat

Hi Does anyone with ET and Jak2 suffer from heat exhaustion after walking for a couple of hours in the Sun ? Frustrated golfer

Hi Does anyone with ET and Jak2 suffer from heat exhaustion after walking for a ...

Joe1

•5 years ago

23 Replies

First Essential Thrombocythaemia and now melanoma!

Hi, I'm new here and am hoping I might receive some feedback on my experience. I was diagnosed with ET about two months ago and felt scared and alone, as I...

Hi, I'm new here and am hoping I might receive some feedback on my experience. ...

Fernsong

•5 years ago

17 Replies

Want to take advantage of all our features? Just log in!

Easing of lockdown for people shielding

Good morning all.... so how does everyone feel about the easing of lockdown for people shielding? I personally feel that I won’t be changing anything I am...

Good morning all.... so how does everyone feel about the easing of lockdown for...

Dazakella2010

•5 years ago

36 Replies

Understanding a MAYBE ET diagnosis

Hi, I am a 36 y/o woman, just had a baby a year ago. I found out at the beginning of the pregnancy my platelets were about 470,000 consistently and decided to...

Hi, I am a 36 y/o woman, just had a baby a year ago. I found out at the beginni...

Winterella

•5 years ago

23 Replies

Purple Toe update

Hello dear friends. Just letting you know what's been happening since I last wrote. I'm still suffering very badly with my toe which is still purple and red at...

Hello dear friends. Just letting you know what's been happening since I last wro...

azaelea

•5 years ago

16 Replies

Update info from MPN Research foundation on Covid

http://www.mpnresearchfoundation.org/COVID19 Good article received yesterday probably most on here have seen. Includes interviews with MPN Specialists in the...

http://www.mpnresearchfoundation.org/COVID19 Good article received yesterday pr...

Hidden

•5 years ago

Be the first to reply

Blood Clots and the Virus

Two interesting articles which might be relevant to MPN patients and consultants...

amarylis

•5 years ago

3 Replies

The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View

Post by MPN-MATE Admin » Sat May 30, 2020 10:24 am Last Post for today before I go for a very fresh cycle ... :D This Post is about an article that has...

Post by MPN-MATE Admin » Sat May 30, 2020 10:24 am Last Post for today before I...

socrates_8

•5 years ago

Be the first to reply

GLYCOLYSIS - Greedy for Sugar...

Post by MPN-MATE Admin » Sat May 30, 2020 9:52 am Morning again... :D Yesterday, after making a Post about 'Inflammation' and other contributing causes,...

Post by MPN-MATE Admin » Sat May 30, 2020 9:52 am Morning again... :D Yesterd...

socrates_8

•5 years ago

7 Replies

PP VIDEO TALK – MPNs – Their Diagnosis & Prognosis

Post by MPN-MATE Admin » Sat May 30, 2020 9:08 am Morning everyone... :D This is an an interesting short 'Zoom' discussion held by Andrew Schorr, Dr...

Post by MPN-MATE Admin » Sat May 30, 2020 9:08 am Morning everyone... :D This...

socrates_8

•5 years ago

7 Replies

Ruxolitinib and Covid-19 - Trial

The Times has an article today regarding a trial in London. I remember there was a post here - ? April - saying it was one of the many drugs being looked at,...

The Times has an article today regarding a trial in London. I remember there was...

Hidden

•5 years ago

4 Replies

Level blood plates

Hello can you tell me what's normal level blood plate count Mines gone down to 690 from 899 in 2 months he doesn't want to see me now till august et jak 2 +...

Hello can you tell me what's normal level blood plate count Mines gone down to ...

Chel1

•5 years ago

10 Replies

‘Flu vaccine

I rang my GP to ask if I should get the ‘flu jab - and get a script for it as I do every year - this year because of my recently diagnosed PMF I qualify for...

I rang my GP to ask if I should get the ‘flu jab - and get a script for it as I ...

MKS60

•5 years ago

3 Replies

Thank You

When Challenged with, “are you afraid?”, Ebenezer Scrooge relied to the Spirit, “well, I am a mortal and liable to fall.” So the Spirit reached out its hand to...

When Challenged with, “are you afraid?”, Ebenezer Scrooge relied to the Spirit, ...

Sabramcq

•5 years ago

7 Replies

Any advice

Hi ,I was diagnosed with PV 12months ago ,i am taking Hydroxycomide and was having Venesections every month ,I have been feeling alot better, then the lock...

Hi ,I was diagnosed with PV 12months ago ,i am taking Hydroxycomide and was havi...

vanlady

•5 years ago

6 Replies

DIET & FASTING TO REDUCE INFLAMMATION: SUGAR (?)

Post by MPN-MATE Admin » Thu May 28, 2020 1:06 pm Hey everyone... :D This is a continuing story about discovering other methods by which we might all better...

Post by MPN-MATE Admin » Thu May 28, 2020 1:06 pm Hey everyone... :D This is ...

socrates_8

•5 years ago

12 Replies

CALR2+

Spent the morning weeping over my positive results. My appointment with my hematologist isn’t for another two weeks but I’ve seen my results in my patient...

Spent the morning weeping over my positive results. My appointment with my hemat...

Sabramcq

•5 years ago

20 Replies

Hydroxyurea: how long it takes to reduce platelet level?

I was diagnosed 2 months ago with ET jak 2 positive. My platelet levels have been between 480-550. I am in my mid 70s so the dr started me on baby aspirin and...

I was diagnosed 2 months ago with ET jak 2 positive. My platelet levels have bee...

Doggy555

•5 years ago

25 Replies

Advice Please? Possible ET?

Hi there, Just looking for some advice if anyone can offer any! I am a 27yo female with no diagnosed health concerns. About a year ago I visited my GP as I...

Hi there, Just looking for some advice if anyone can offer any! I am a 27yo fem...

BigWorrier23

•5 years ago

22 Replies

Venesection Update

Hello all, My CNS e mailed me this morning, apologised for what had happened and said she will deal with it. I guess that’s the last I will hear. Fingers...

Hello all, My CNS e mailed me this morning, apologised for what had happened and...

piggie50

•5 years ago

16 Replies

Ruxolitinib

Hi all I hope your all keeping safe and are well despite shielding and all the isolation It brings. I was just wondering if anyone with PV and on ruxolitinib...

Hi all I hope your all keeping safe and are well despite shielding and all the i...

S031251

•5 years ago

8 Replies

Covid 19

Blood clotting a significant cause of death in patients with COVID-19 -- ScienceDaily A new study has found that Irish patients admitted to hospital with...

Blood clotting a significant cause of death in patients with COVID-19 -- Science...

catkinspolymer

•5 years ago

2 Replies

hava you stopped transmitting, I have not had anything from for several days

catkinspolymer

•5 years ago

1 Reply

MPN not to shield or even high risk according to my consultant.

This is what I was told this morning by my consultant. Pointed out Scottish government stated blood cancers at any stage say high risk and even NHS infom...

This is what I was told this morning by my consultant. Pointed out Scottish gove...

Lainy1

•5 years ago

21 Replies

Got my iron results

Hey Hunter, you know more about this than I do. I got a call back from GP 5 minutes ago. I asked her if my file had been checked because I had Polycythemia...

Hey Hunter, you know more about this than I do. I got a call back from GP 5 minu...

jillydabrat

•5 years ago

13 Replies

Et calr postive planning for kids so want to shift to interferon.

From last six months we are on hydab now planning for pregnancy want to shift to interferon . 2. We are from india so we need to buy interferon which is...

From last six months we are on hydab now planning for pregnancy want to shift to...

Aruntez

•5 years ago

3 Replies

Survival of Hospitalized Patients With Concurrent COVID-19 and Hematological Malignancies

TAKE-HOME MESSAGE This retrospective cohort study evaluated outcomes in 34 patients with COVID-19 infection and concurrent hematological malignancies. Patients...

TAKE-HOME MESSAGE This retrospective cohort study evaluated outcomes in 34 patie...

JT_Marlin

•5 years ago

1 Reply

INFLAMMATION – EXPANDING OUR PERSPECTIVES...

Post by MPN-MATE Admin » Tue May 26, 2020 12:12 pm Afternoon all... :D We often here that everything to do with having 'Inflammation' is a negative, when...

Post by MPN-MATE Admin » Tue May 26, 2020 12:12 pm Afternoon all... :D We oft...

socrates_8

•5 years ago

16 Replies

Is it just me

Hi everyone, hoping you are all keeping well. For the past week, I have been feeling really lethargic, short of breath when out for walk, last two days...

Hi everyone, hoping you are all keeping well. For the past week, I have been f...

Yvette49

•5 years ago

31 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for May 2020

Break out the bunting we're free......... er, I think not just yet

ET and affects of heat

First Essential Thrombocythaemia and now melanoma!

Easing of lockdown for people shielding

Understanding a MAYBE ET diagnosis

Purple Toe update

Update info from MPN Research foundation on Covid

Blood Clots and the Virus

The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View

GLYCOLYSIS - Greedy for Sugar...

PP VIDEO TALK – MPNs – Their Diagnosis & Prognosis

Ruxolitinib and Covid-19 - Trial

Level blood plates

‘Flu vaccine

Thank You

Any advice

DIET & FASTING TO REDUCE INFLAMMATION: SUGAR (?)

CALR2+

Hydroxyurea: how long it takes to reduce platelet level?

Advice Please? Possible ET?

Venesection Update

Ruxolitinib

Covid 19

hava you stopped transmitting, I have not had anything from for several days

MPN not to shield or even high risk according to my consultant.

Got my iron results

Et calr postive planning for kids so want to shift to interferon.

Survival of Hospitalized Patients With Concurrent COVID-19 and Hematological Malignancies

INFLAMMATION – EXPANDING OUR PERSPECTIVES...

Is it just me

Search posts

Pinned Posts

Latest poll

What age were you when your MPN was diagnosed?

Topics

Archive