Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for November 2013

I had ulcers in my mouth ,my dentist gave me lots of antibiotics,Now I don't taste my food so well ,since being diagnosed,is it the drugs?

I can't tell is it the illness?or is it the drugs ? Anybody else have any ideas,we don't get to ask these questions in the clinic do we ?

I can't tell is it the illness?or is it the drugs ? Anybody else have any ideas,...

Twinkly

•11 years ago

9 Replies

Anyone used Fruitflow as natural alternative to aspirin ?

Have been looking into natural/alternative ways to control platelets and came across Fruitflow which derives from tomato seeds. It says that it works to reduce...

Have been looking into natural/alternative ways to control platelets and came ac...

rubyrubyruby

•11 years ago

20 Replies

Hi everybody ,I didn't tell you the name of the book ,it's the PH.miracle.by Dr.robert Young.Isbn.978-0-7499-3981-6. You can buy on line.

I read it and detoxed ,started to restrict ,dairy ,and processed .and tinned food ,I eat lots of root vegs and broccoli ,spinach ,and beet root ,some fish, I...

I read it and detoxed ,started to restrict ,dairy ,and processed .and tinned foo...

Twinkly

•11 years ago

7 Replies

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Petechiae

Morning all, hope everyone is as well as can be... :-) Does anyone have petechiae spots? Over the last few days I have noticed them appearing on my chest,...

Morning all, hope everyone is as well as can be... :-) Does anyone have petechi...

Katsy

•11 years ago

5 Replies

Have any one tried the PHDiet? It's based on healthy eating ,to starve cancer ,to stop the cells getting fed ,to help glutton intolerance?.

I was sent a book by a friend in the post ,it's been a godsend in coping with food intolerance ,this came about when I was prescribed hydrocarbamide,and blood...

I was sent a book by a friend in the post ,it's been a godsend in coping with f...

Twinkly

•11 years ago

14 Replies

New to group. Thanks for the connection. I have ET. I was diagnosed in 2008. I was on just aspirin then I tried TCM herbs and acupuncture .

TCM Herbs and acupuncture was slowly showing results but my doc convinced I go on Hydrea 14 months ago. I was worried before Hydrea! now I have a number of...

TCM Herbs and acupuncture was slowly showing results but my doc convinced I go o...

Nirbhebe

•11 years ago

25 Replies

my partner was diagnosed with prv 2 years ago. She now gets attacks [ 3 months] of very bad temper. Is this yet another side effect

divot

•11 years ago

18 Replies

Is it legal to work alone in a kitchen with insulin dependant diabetes

Lindybobs123

•11 years ago

3 Replies

Why is there so little interest in the trial drug ruxolitinib by you out there. Iv been on it for weeks and my whole world has changed

Get in touch if you are interested ,I'm no longer needing venesection And my energy levels are really good,my team at hospital are pleased . I'm a very active...

Get in touch if you are interested ,I'm no longer needing venesection And my en...

Twinkly

•11 years ago

36 Replies

Anyone feel worse in the winter ?

In the last month I have felt more fatigued than usual. I had my bloods checked last week and no change since Sept. Just wondering whether this gloomy and cold...

In the last month I have felt more fatigued than usual. I had my bloods checked ...

rubyrubyruby

•11 years ago

5 Replies

Sanofi discontinues clinical development of investigational JAK2 agent Fedratinib (SAR302503)

Press release from Sanofi issued 18th November 2013 regarding the decision to halt all clinical trials and development of investigational JAK2 Agent Fedratinib...

Press release from Sanofi issued 18th November 2013 regarding the decision to ha...

Mazcd

Partner•11 years ago

5 Replies

I have an enlarged spleen, & have some pain in my left upper tummy but i have severe pain in my left shoulder ,is there a connection?

barrphine

•11 years ago

4 Replies

Peg interferon versus interferon alpha. I've read that interferon alpha can have an effect on the thyroid.

Is there any medical evidence that peg interferon is a better alternative if this is shown to be a side effect of interferon alpha? Has anyone else had the...

Is there any medical evidence that peg interferon is a better alternative if thi...

Florence1961

•11 years ago

3 Replies

My Wife has et for about 6yrs,now got swelling in left leg ,Doctor sent her to hospital,result was Venous Insufficiency that was a week ago,

but no one has come back. What should I do elcid

elcid

•11 years ago

3 Replies

Need help with weight management.

Two years ago I have been diagnosed with ET Jak 2+ and been on Hydrox., Aspirin and Bisoprolol ever since, on different dosages. I am blessed that all is going...

Two years ago I have been diagnosed with ET Jak 2+ and been on Hydrox., Aspirin ...

light

•11 years ago

15 Replies

Patient forum london

Hi all, I attended the patient forum in London on 16th. I would just like to thank everyone involved. It was really well organised and extremely informative....

Hi all, I attended the patient forum in London on 16th. I would just like to th...

piggie50

•11 years ago

7 Replies

it's nearly been a year

Hi everyone! I hope you are all keeping well! I just thought I would update everyone on my progress, it's nearly been a year since i had the bone marrow...

Hi everyone! I hope you are all keeping well! I just thought I would update ev...

Jennie_Barnes

•11 years ago

15 Replies

Been awhile !

I pop in out as time allows . My daughter still no better and still not on any treatment except codine, ipbrofen, paracetamol . We have had the colonoscopy ,...

I pop in out as time allows . My daughter still no better and still not on any t...

Motherof4

•11 years ago

1 Reply

Does anyone know the reason why the Jakarta drug trial has been suspended

nspann1

•11 years ago

2 Replies

MPD Day 16 November

Hi guys, just wondered who was going to the MPD Day this Saturday and who was staying at the President Hotel in Russell Square? I am arriving on the Friday,...

Hi guys, just wondered who was going to the MPD Day this Saturday and who was st...

Aime

•11 years ago

18 Replies

After another bone marrow biopsy I've been told my ET has changed to myleofibrosis not sure I took it all in today so much info.

Has any one else had this change happen to them. I get really bad night sweats,.

Has any one else had this change happen to them. I get really bad night sweats,....

darcey

•11 years ago

18 Replies

Labyrinthitis - is this another side effect of PRV?

I am just recovering from three days of the most horrible imbalance I have ever experienced. It was so severe in the first few hours the world was spinning...

I am just recovering from three days of the most horrible imbalance I have ever ...

linds

•11 years ago

7 Replies

I recently asked re insurance for PV and am pleased to say I now have travel insurance with Staysure who were very helpful I wish to thank

everyone for replying to me.

daffodil2

•11 years ago

4 Replies

Venesections via alternative entry sites? Veins in my arms are hardening apparently so going in thru my feet has been bandied about. Aargh!

Yes, or groin! Have only been able to get 250ml out of me recently instead of me generously supplying 500ml as usual. Opted to continue with the Venuses (call...

Yes, or groin! Have only been able to get 250ml out of me recently instead of me...

Hidden

•11 years ago

10 Replies

The wonders of...

Please can you "ALL" Remember! ..... oh blast, I forgot......

Geoff_mpnfamily

•11 years ago

4 Replies

Iron deficiency or B12 advice or help. I suffer with lethargy , Post nasal drip, Dizzieness and numb head in the morning, tongue ulcers

I Also suffer with really bad joint ache in me knees , they feel like slabs of rock, really painful. i also get thick mucus in my throat, dry mouth and throat....

I Also suffer with really bad joint ache in me knees , they feel like slabs of r...

ironhelp

•11 years ago

10 Replies

Good old Tommy Cooper

A classic Tommy Cooper gag ''I said to the Gym instructor "Can you teach me to do the splits?'' He said, ''How flexible are you?'' I said, ''I can't make...

A classic Tommy Cooper gag ''I said to the Gym instructor "Can you teach me to d...

Geoff_mpnfamily

•11 years ago

2 Replies

I was diagnosed with PV 18months ago I plan to travel to India can anyone advise where I could get my travel insurance.Thank you.

daffodil2

•11 years ago

5 Replies

ET and Anagralide

I have been treated with HU for my ET for almost 3 yrs but due to leg problems my Heam has stopped the HU and wants to put me on Anagralide when the leg is...

I have been treated with HU for my ET for almost 3 yrs but due to leg problems m...

eastwood1932

•11 years ago

4 Replies

PRESCRIPTION CARD

finally got my prescription card through this morning one thing less to have to worry about as meds were taking a big chunk out of my budget. to all those who...

finally got my prescription card through this morning one thing less to have to ...

sparko35

•11 years ago

4 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for November 2013

I had ulcers in my mouth ,my dentist gave me lots of antibiotics,Now I don't taste my food so well ,since being diagnosed,is it the drugs?

Anyone used Fruitflow as natural alternative to aspirin ?

Hi everybody ,I didn't tell you the name of the book ,it's the PH.miracle.by Dr.robert Young.Isbn.978-0-7499-3981-6. You can buy on line.

Petechiae

Have any one tried the PHDiet? It's based on healthy eating ,to starve cancer ,to stop the cells getting fed ,to help glutton intolerance?.

New to group. Thanks for the connection. I have ET. I was diagnosed in 2008. I was on just aspirin then I tried TCM herbs and acupuncture .

my partner was diagnosed with prv 2 years ago. She now gets attacks [ 3 months] of very bad temper. Is this yet another side effect

Is it legal to work alone in a kitchen with insulin dependant diabetes

Why is there so little interest in the trial drug ruxolitinib by you out there. Iv been on it for weeks and my whole world has changed

Anyone feel worse in the winter ?

Sanofi discontinues clinical development of investigational JAK2 agent Fedratinib (SAR302503)

I have an enlarged spleen, & have some pain in my left upper tummy but i have severe pain in my left shoulder ,is there a connection?

Peg interferon versus interferon alpha. I've read that interferon alpha can have an effect on the thyroid.

My Wife has et for about 6yrs,now got swelling in left leg ,Doctor sent her to hospital,result was Venous Insufficiency that was a week ago,

Need help with weight management.

Patient forum london

it's nearly been a year

Been awhile !

Does anyone know the reason why the Jakarta drug trial has been suspended

MPD Day 16 November

After another bone marrow biopsy I've been told my ET has changed to myleofibrosis not sure I took it all in today so much info.

Labyrinthitis - is this another side effect of PRV?

I recently asked re insurance for PV and am pleased to say I now have travel insurance with Staysure who were very helpful I wish to thank

Venesections via alternative entry sites? Veins in my arms are hardening apparently so going in thru my feet has been bandied about. Aargh!

The wonders of...

Iron deficiency or B12 advice or help. I suffer with lethargy , Post nasal drip, Dizzieness and numb head in the morning, tongue ulcers

Good old Tommy Cooper

I was diagnosed with PV 18months ago I plan to travel to India can anyone advise where I could get my travel insurance.Thank you.

ET and Anagralide

PRESCRIPTION CARD

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