UPDATE 24 SEP 24 - NOW FULLY BOOKED FOR ATTENDING IN-PERSON. YOU CAN STILL REGISTER FOR THE LIVE STREAMING.
This event is now fully booked for attending in-person, if you would like to be added to the waiting list for an in-person place please email alex@hartleytaylor.co.uk
You can still register for the live streaming, see link below.
If you have booked to attend in-person and your plans change and you are unable to attend, please cancel your booking as soon as you can so that your place can be offered to someone on the waiting list.
The Living with MPNs Day is an all-day event with the opportunity to attend in-person, or watch the live stream online.
The presentations will be recorded, videos will be available to view on the MPN Voice YouTube channel approximately 1 – 2 weeks after the event.
The programme for this meeting has been designed to provide help to patients and families affected by MPNS, to hear the latest news on MPNs; managing symptoms; trials and treatments - from leading experts in the field of MPNs, specialist haematology nurses and MPN patient speakers sharing their MPN journey. The programme will also include a Q&A session for the audience, both in-person and online, to ask questions.
For those attending in-person the programme will also include breakout groups where ET, MF and PV patients can meet in smaller groups to discuss everyday challenges and swap tips. There will also be a young person’s group for young people with MPNs, and a family and friends group where partners/family/friends can meet to discuss the challenges faced by the patient and themselves. Please note that for reasons of confidentiality the breakout groups will not be live streamed or recorded.
Programme – view a copy of the provisional programme here (this is subject to change) mpnvoice.org.uk/wp-content/...
This will be a hybrid event with the choice of attending in-person or watching a live stream.
REGISTER HERE you will be redirected to the Hartley Taylor (the event organizers) online registration form hartleytaylor.co.uk/pat3-home/
The venue for attending in-person is: The Cavendish Conference Centre, 22 Duchess Mews, London, W1G 9DT. Click here for travel directions.
Timings: Registration and coffee from 08.45 am. Start time: 09.20 am. Close at: 16:00 (4 pm).
Complimentary refreshments and lunch will be served during the day.
This meeting is free to attend, however, MPN Voice is a charity which relies on donations to support forums, research and patient support activities, and we kindly ask that you consider making a donation to cover some of the costs for the lunch and refreshments, which is approximately £10 per person, thank you. You can make a donation when registering, via our JustGiving page, (please include a message with your donation to say it is for the Living with MPNs Day). You can also make a donation on the day at the meeting. justgiving.com/mpnvoice
Yesterdays Living with MPNs day
