Posts - MPN Voice | HealthUnlocked

MPN Voice

10,340 members14,250 posts

All posts for June 2019

Polycythemia + Brain Tumor - Update

For all of us with MPNs, we face many challenges and unknowns. Sometimes we hav...
hunter5582 profile image

ET Question (Dizziness)

I am 55 and was diagnosed with ET, jac 2 positive, few years ago. Platelets stea...
Bears23 profile image

Left Side Neck Pain

I was diagnosed with ET a few months ago and have the usual fatigue, which I'm m...
Trueblue8 profile image
Want to take advantage of all our features? Just log in!
or

Are we covered on critical illness?

Critical Illness cover ~ This is what mine says about cancers, do you guys thi...
jedwards123 profile image

How many mpd patients in uk?

I found this group by researching about mpd,on cancer research site have so far ...

ET Thoughts please.

Apologies for a another question but the more posts I read the more worried I ge...
Mich10 profile image

Started HU

Hi everyone! This is my first post. I have been diagnosed with PV JAK2 positive ...
digijools profile image

Bone marrow edema

Hi Guys, I have recently had an mri of-both feet and ankles due to severe pain w...
Aime profile image

Does anyone run?

I’ve been doing the Couch to 5k programme, building myself up to be a (slow...) ...
MarybellM profile image

ORPHANET. First port of call for current information on MPNs and other rare diseases

This is the site that was set up in 2017 ti coordinate info and research abt r...

Ruxolitinib and aggressive squamous cell skin cancers.

Hi. Update as promised. I got in touch with my MPN specialist feeling rather de...

Women and MPNs

https://mpnadvocacy.com/women-mpns/ Hi. There is a conference being organised in...

Newbie to mpd/et

Hi I've recently been diagnosed with mpd et and looking to learn more about it a...
Jackybuckley profile image

Heatwave

Stay safe my French friends!
Sand-Dancer profile image

What to expect at Hemaetologist appt?

Hello All,This forum has been a great source of information, thank you! I’m won...
Jennifermcd profile image

A recent diagnosis of polycythaemia.

I am new here. I was given a diagnosis of polycythaemia in January this year, an...
Strauss profile image

PV (JAK2) and Thrombocythemia

Hello, I have PV and the JAK 2 mutation. I been taking low dose aspirin and hav...
Buggerbear profile image

N-Acetylcysteine and symptom burden

This is an interesting article re reducing symptom burden/inflammation. The only...
Paul123456 profile image

Aches and pains....

I'm 44, JAK2+ with ET. I generally don't suffer from symptoms apart from frustra...
Karol_Rua profile image

Have to decide between Hydroxycarbide or Interferon on July 4th? Cant i just keep having a Venesection every few months? I have ET

Can anyone help me chose ? I am 59yrs so have been told that I have a choice as ...

MPN Facebook Research Group

Hello everyone, I just wanted to share that I started an MPN Facebook research g...
Walshman profile image

Blurred vision

Update on ET. Bloods are all good and within range. Trying to celebrate but now ...
Jlah profile image

Spa treatments

Hi quick question, I have et jak 2 on aspirin and interferon once a week 45mg. ...
Elab profile image

HU side effects

Just wondering from anyone who has experienced side effects on HU if they appear...
jodary profile image

Headache question

Question: why are headaches a possibility of ET?
milw532 profile image

Breathlessness

Breathlessness. Sorry for late response to you all, unfortunately had to invest...
Charliemills profile image

Headaches

Hello all.... so I was diagnosed with E/T jak 2 + in April this year.... I have...

Aching heart

I have like an ache in my chest not pain but I am aware, I have an appointment w...
Chez1947 profile image

Interesting article regarding blood cancer treatments

https://www.bbc.co.uk/news/health-48706822 Clearly it doesn’t state MPNs, but ...
jimb7174 profile image

Aspirin

Run out of Aspirin 75 today. Went chemist they had no soluble ones. Hard to ev...
Helena303 profile image