Posts - MPN Voice | HealthUnlocked

MPN Voice

10,403 members • 14,350 posts

All posts for December 2015

Happy new year to you all !! Love from twinkly !!!

Hospital confirmed I'm going in shortly for major surgery !!! Oooowwww. Bit scared Iv got torsion and a hernia in my chest ...let's hope his hand is steady...

Hospital confirmed I'm going in shortly for major surgery !!! Oooowwww. Bit sc...

•8 years ago

bruises

Morning one and all ,hope you had a lovely Christmas! i have been getting bruising on tops of my hand last few weeks. and they end up looking very dark n...

Morning one and all ,hope you had a lovely Christmas! i have been getting bruisi...

•8 years ago

ET to PV

Hi, Just got some blood tests back from the GP. I thought I might be becoming anaemia because I was so shattered all the time. To my surprise my RBC are...

Hi, Just got some blood tests back from the GP. I thought I might be becoming an...

•8 years ago

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ET and weight Gain

Hello, I was diagnosed with ET in 2007 Jak 2 +. I am on Hydroxyurea daily for the rest of my life. I am so glad i finally found a place with people who have...

Hello, I was diagnosed with ET in 2007 Jak 2 +. I am on Hydroxyurea daily for t...

•8 years ago

So as an old year ends a new one is welcome ,fill your heart with positive energy that this will be even better because we will stay focused

Let's support each other this coming year 2016 ,share our ups and our Down's to stay strong in our belief for better days ahead ..come now ,,,together we are...

Let's support each other this coming year 2016 ,share our ups and our Down's to ...

•8 years ago

Anyone get a temperature?

I keep getting a low grade fever of about 37.5. All of a sudden I feel really hot, then in the space of ten minutes, it is back to normal. This happens several...

I keep getting a low grade fever of about 37.5. All of a sudden I feel really ho...

•8 years ago

Maybe we should take note of this

•8 years ago

bone pain??

I had a pain in my left shin a few times: sharp pain wakes me up, rubbing does nothing, radiates down my leg. I asked my oncologist last week about it. He...

I had a pain in my left shin a few times: sharp pain wakes me up, rubbing does n...

•8 years ago

Merry Christmas everyone!

Hope everyone had a great Christmas Holiday! Mine was a little off but I still feel blessed. 93 yr old mom got sick, husband got sick and now today I woke up...

Hope everyone had a great Christmas Holiday! Mine was a little off but I still ...

•8 years ago

A happy Christmas

Wishing everyone on this wonderful site a happy peaceful Christmas. Hoping that 2016 will be stress free for us all and somehow a cure can be found very very...

Wishing everyone on this wonderful site a happy peaceful Christmas. Hoping tha...

•8 years ago

Merry Christmas

Hoping for a better 2016 for all. Thanks for all the great posts and answers. Happy Holiday to all!

Hoping for a better 2016 for all. Thanks for all the great posts and answers. Ha...

•8 years ago

Christmas

Merry Christmas everyone. I hope you have a lovely time and keep well xxxx

Merry Christmas everyone. I hope you have a lovely time and keep well xxxx

•8 years ago

Merry Christmas to everyone

We all know there is no cure as yet, and the treatment is not always easy but we have some wonderful people on our side. Best wishes to everyone on the forum...

We all know there is no cure as yet, and the treatment is not always easy but we...

Little-friend-Susan

•8 years ago

Sorry all Iv been off the radar ,,I updated my iPad.got lost in the cloud !!

So anyway ,,let me say ! Merry Christmas ,,happy, healthy new year .all my buddies ..eat drink and be merry ,enjoy family and friends ,,make these lovely days...

So anyway ,,let me say ! Merry Christmas ,,happy, healthy new year .all my buddi...

•8 years ago

Happy Christmas

Had my regular check up yesterday and my platelet count has gone down to 401! Great news after they had been climbing for so long. My haem was pleased with all...

Had my regular check up yesterday and my platelet count has gone down to 401! Gr...

•8 years ago

Are there many people withET?

I've just not long been diagnosed with ET and the hospital have informed me it very rare to have ET I went to my New GP today and she smiled and said " oh no...

I've just not long been diagnosed with ET and the hospital have informed me it v...

•8 years ago

PV progression

Hi so I'm newly diagnosed with PV, I'm 40 and in good health otherwise ! My blood counts are borderline (it's only the jak2 stuff which confirmed it) and my...

Hi so I'm newly diagnosed with PV, I'm 40 and in good health otherwise ! My bloo...

•8 years ago

Merry Christmas

Platelets up so Hydroxy up on 15th December check-up so hoping for better things next year. Merry Christmas and Happy and prosperous New Year to one and all....

Platelets up so Hydroxy up on 15th December check-up so hoping for better things...

•8 years ago

Wishes

Wishing everyone a wonderful christmas time , and most of all a healthy trouble free one! safe journey for those who will be travelling to friends and family...

Wishing everyone a wonderful christmas time , and most of all a healthy trouble ...

•8 years ago

MERRY CHRISTMAS!

Wishing you all a very merry Christmas and a happy and healthy new year. With much love from Mel xx

Wishing you all a very merry Christmas and a happy and healthy new year. With mu...

•8 years ago

Happy Christmas

Hi to everybody. Happy Christmas to all, my electricity bill over Christmas have put my PV in perspective😎

Hi to everybody. Happy Christmas to all, my electricity bill over Christmas hav...

•8 years ago

Merry Christmas

Marry Christmas and Happy, Healthy and Wealthy New Year to all of us!

Marry Christmas and Happy, Healthy and Wealthy New Year to all of us!

•8 years ago

Christmas

Very Best Wishes ,Maz and team and to all of you on this site,a life saver for me and others I am sure. Thanks to all for helpful posts and chats.Hope you all...

Very Best Wishes ,Maz and team and to all of you on this site,a life saver for m...

•8 years ago

ET ISN'T ENOUGH FOR ME!! Now it's haemophilia/ von Willibrand

This is a new shift in my lesson on the mutant that I am!! Now I have morphed again, this time it's to the haemophilia clinic(what next), to find out what is...

This is a new shift in my lesson on the mutant that I am!! Now I have morphed ag...

•8 years ago

Someone Mentioned It's Christmas

I would just like to wish you all a Very Merry Christmas and a peaceful New Year. And once again thank you lovely peops for your continued support and messages...

I would just like to wish you all a Very Merry Christmas and a peaceful New Year...

•8 years ago

Merry Christmas to you all!

I just wanted to wish all my new friends here a very merry Christmas. Here's hoping that 2016 brings better times to us all. Thank you to everyone here for all...

I just wanted to wish all my new friends here a very merry Christmas. Here's hop...

•8 years ago

I'm very chuffed to be in a MPN mag ,for my Coffee morn last year 😝🍰☕️😜

Ooops sorry it's sideways x

Ooops sorry it's sideways x

•8 years ago

Terrible nails

Hello everyone, I was diagnosed with ET and Jak 2 in Sept. My nails have never been good but since taking Hydroxy they have been much worse. Has anyone...

Hello everyone, I was diagnosed with ET and Jak 2 in Sept. My nails have never...

•8 years ago

I'm confused

I was sure my stiff arms and thighs/ like having the flu was a symptom of my having ET!? But the Nurse when I phoned to speak to at the hospital said she...

I was sure my stiff arms and thighs/ like having the flu was a symptom of my hav...

•8 years ago

MDS MPN overlap

I was diagnosed with MDS MPN overlap syndtome almost 2 years ago. I am hoping there is someone else dealing with this diagnosis, and we could be a support to...

I was diagnosed with MDS MPN overlap syndtome almost 2 years ago. I am hoping th...

•8 years ago