Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for December 2018

Alcohol question

Hi - anyone out there with ET, taking clopidogrel and baby aspirin and still enjoying a drink?

Hi - anyone out there with ET, taking clopidogrel and baby aspirin and still enj...

WileyFrench

•6 years ago

17 Replies

2019

Happy New Year everyone...... full of good blood tests results and low platelets Ela xxxxx

Happy New Year everyone...... full of good blood tests results and low platelet...

Elab

•6 years ago

4 Replies

Osa confirmed

Hi everyone, Wish u all a very happy new year guys ... Hope u all have symptom free and healthy new year..... Haven't posted in a while.... I found a good...

Hi everyone, Wish u all a very happy new year guys ... Hope u all have symptom f...

Hidden

•6 years ago

3 Replies

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Pegasys side effects

Hi does anyone who takes Pegasys experience occasional numbness tingling sensations all over? I do suffer with terrible back knots, pinched nerves but since...

Hi does anyone who takes Pegasys experience occasional numbness tingling sensati...

Samlowery17

•6 years ago

5 Replies

PV and Blue Toe Syndrome

Hello , I am urgently seeking information for the following- Has anyone with PV developed Blue Toe Syndrome ? If so please provide details since it will be...

Hello , I am urgently seeking information for the following- Has anyone with PV...

Iwillwin123

•6 years ago

23 Replies

Hope this is helpful - stem cell donor charity

Thought this could be helpful, not heard of it before DKMS started in Germany but now in UK with a register of donors Happy New Year Melanie

Thought this could be helpful, not heard of it before DKMS started in Germany bu...

Melaniem59

•6 years ago

3 Replies

Alcohol

Hi I’ve asked before but thought I’d put it out again this festive season. Do people still drink or have you given up completely? I have ET and Jac2 positive...

Hi I’ve asked before but thought I’d put it out again this festive season. Do pe...

Grumpyfairy

•6 years ago

32 Replies

I am 22 years old male and I have polycythemia

my HB is 18 RBC count is 6.3 WBC( 7.5 ) and PLT ( 156) normal. HCT is 56 at 18 age when i was first tested my HB by 17.6 ( before that i had not been tested)...

my HB is 18 RBC count is 6.3 WBC( 7.5 ) and PLT ( 156) normal. HCT is 56 at 18 a...

Nama987

•6 years ago

23 Replies

Best time to take Hydroxy....?

Am starting 500mg Hydroxycarbamide next week to prepare for a heart operation early February. When is the best time of day to take it?

Am starting 500mg Hydroxycarbamide next week to prepare for a heart operation ea...

Eadaoin

•6 years ago

14 Replies

Resetting passwords

This is the third time I have been asked to reset my password and would like to. Know why. I did not ask to reset it but have now done so. This has caused...

This is the third time I have been asked to reset my password and would like to....

Garden987

•6 years ago

1 Reply

MPN, stress, retirement

Just would like to know, did any fellow MPNers find that your condition improved when you retired? I still have 3 years left before I get my pension at 66...

Just would like to know, did any fellow MPNers find that your condition improve...

Searcher56

•6 years ago

17 Replies

Et advice

Advice does anyone with eT get pain left hand side under rib

chrissie1959

•6 years ago

12 Replies

Merry Christmas!

Merry Christmas to all my fellow MPN'ers. Thank you for all the care and support and wonderful advice you've provided over the last year -- it's made such a...

Merry Christmas to all my fellow MPN'ers. Thank you for all the care and suppor...

ksos

•6 years ago

3 Replies

Happy Christmas to one and all. xx

Here's hoping for a healthy and peaceful Christmas and New Year for everyone. June.

Here's hoping for a healthy and peaceful Christmas and New Year for everyone. Ju...

bordeauxgirl

•6 years ago

3 Replies

Merry Christmas to all MPNers from the Sunny Antipodes...

Hey all my MPN brothers & sisters... Thank you all for being here throughout this past year. Hopefully 2019 might be a better year for all of us. The snap is...

Hey all my MPN brothers & sisters... Thank you all for being here throughout thi...

socrates_8

•6 years ago

8 Replies

High LDH

Hi all, I’m trying not to freak out on this Christmas Eve. I have Myelofibrisis for the last 5 years. I’m on wait and watch with aspirin. I just had labs done...

Hi all, I’m trying not to freak out on this Christmas Eve. I have Myelofibrisis ...

CeeCee123

•6 years ago

3 Replies

Let’s raise a glass to our blood sisters and brothers!

So here it is again Christmas Eve and time for me to bore you with my annual festive poem 😀 It’s Christmas Eve and all is good my life has changed a lot....

So here it is again Christmas Eve and time for me to bore you with my annual fes...

Sand-Dancer

•6 years ago

15 Replies

Puss, not sure about her Xmas friends

Merry Xmas to all MPN forum animals, owners and everyone else from Aime the cat and Aime the person.xx😺😺 it’s our three legged marvel!xx

Merry Xmas to all MPN forum animals, owners and everyone else from Aime the cat ...

Aime

•6 years ago

7 Replies

Merry Christmas

Wishing all fellow MPNer's a Merry Christmas and and Happy New Year. Thank you for the support given through your post. Love and best wishes from Angela

Wishing all fellow MPNer's a Merry Christmas and and Happy New Year. Thank you f...

AngiP

•6 years ago

4 Replies

Merry Christmas

Wishing everyone a Merry Christmas! Love from Lizzie

lizzziep

•6 years ago

4 Replies

Merry Christmas

I would like to wish all mpners the best Christmas possible and hope 2019 brings the best health possible. Enjoy🥂🍸 Thanks to this site also for giving...

I would like to wish all mpners the best Christmas possible and hope 2019 brings...

S031251

•6 years ago

2 Replies

Would you argue to switch to Jakafi even if HU is working OK ?

Is there anyone here who would argue for moving to Jakafi even though HU has worked well for the patient ? If yes then why ?

Is there anyone here who would argue for moving to Jakafi even though HU has wor...

Iwillwin123

•6 years ago

11 Replies

Pegasys Air Bubble

Oops I’ve just injected myself & totally forgot to get rid of the air & air bubbles. I assume it’s not too serious when it’s subQ

Oops I’ve just injected myself & totally forgot to get rid of the air & air bubb...

Raphael_UK

•6 years ago

4 Replies

Shingles

Is it ok to get the shingles vaccine when one has ET

Petsch

•6 years ago

2 Replies

Crimble wishes

Hello people Finished the blats of radiotherapy last week for ‘c’ no 2 + (other than possibly overdoing things to get crimble sorted) still upright, (assume...

Hello people Finished the blats of radiotherapy last week for ‘c’ no 2 + (other ...

amhann

•6 years ago

7 Replies

Want to help my dad

My dad has had essential thrombocythemia jak 2 positive for a year. He used to work and be fairly active, but this seems to be getting the better of him and...

My dad has had essential thrombocythemia jak 2 positive for a year. He used to w...

Pgm1987

•6 years ago

19 Replies

Happy Christmas

Hi everyone would like to wish you all a happy Christmas and a healthy and happy new year love and best wishes Poppy

Hi everyone would like to wish you all a happy Christmas and a healthy and happy...

Poppy6060

•6 years ago

5 Replies

Blood levels other than platelets

I have ET, no mutation. My platelets have nicely come down to below 400 with my current dose of hydroxy. Not surprisingly, I guess, other counts like white...

I have ET, no mutation. My platelets have nicely come down to below 400 with my ...

WileyFrench

•6 years ago

21 Replies

Dr. Jean Jacques Kiladjian ASH 2018 Research Studies

Ropeg 3 yr follow-up vs HU, MPNs in patients under age of 25 at diagnosis, Targeting JAK2 mutation with IFN and Arsenic, see interview here -...

Ropeg 3 yr follow-up vs HU, MPNs in patients under age of 25 at diagnosis, Targ...

PVReporter

•6 years ago

4 Replies

Forums

Can anyone tell me whether there is a forum in Kent please. I live in Maidstone.

Can anyone tell me whether there is a forum in Kent please. I live in Maidstone....

Heather270240

•6 years ago

4 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2018

Alcohol question

2019

Osa confirmed

Pegasys side effects

PV and Blue Toe Syndrome

Hope this is helpful - stem cell donor charity

Alcohol

I am 22 years old male and I have polycythemia

Best time to take Hydroxy....?

Resetting passwords

MPN, stress, retirement

Et advice

Merry Christmas!

Happy Christmas to one and all. xx

Merry Christmas to all MPNers from the Sunny Antipodes...

High LDH

Let’s raise a glass to our blood sisters and brothers!

Puss, not sure about her Xmas friends

Merry Christmas

Merry Christmas

Merry Christmas

Would you argue to switch to Jakafi even if HU is working OK ?

Pegasys Air Bubble

Shingles

Crimble wishes

Want to help my dad

Happy Christmas

Blood levels other than platelets

Dr. Jean Jacques Kiladjian ASH 2018 Research Studies

Forums

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