Posts - MPN Voice | HealthUnlocked

MPN Voice

10,410 members • 14,354 posts

All posts for August 2016

Ilio(p)soas muscle

Hey everyone... :) As mentioned in another post, I have just come from having ever more CT scans to try to find out what exactly is going on with my...

Hey everyone... :) As mentioned in another post, I have just come from having ...

socrates_8

•8 years ago

2 Replies

Random and weird skull creases

I too have recently discovered weird creases developing in my skull. First was the back of the head, by the neck running side to side, in March. I talked to my...

I too have recently discovered weird creases developing in my skull. First was t...

Mamasita649

•8 years ago

4 Replies

The bones in my skull are disappearing & no one knows why. I've seen every Dr possible in Houston, TX Great medical center?

About 6 months ago, my bones that outline my skull are gone on the right & left side of my head, or there are 3in indentations to the right & left of my bumpy...

About 6 months ago, my bones that outline my skull are gone on the right & left ...

Cindalita51

•8 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Just to let you know I haven't completely melted ,but I am suffering with this heat ,,I think my thermostat has stopped working !

Getting more tired in the sunny days ,but I do try to drink lots of filtered water and good juice ,,I'm still eating healthy ,,given up pork and most red meat...

Getting more tired in the sunny days ,but I do try to drink lots of filtered wat...

Twinkly

•8 years ago

5 Replies

Are these symptoms in my head?

So, I've just had a fairly frustrating phone call with my doctor's office. I called earlier today, because I've had a rough time of it this past weekend....

So, I've just had a fairly frustrating phone call with my doctor's office. I cal...

Hidden

•8 years ago

21 Replies

Myloefibrosis

Hi it's me again - thanks you for replies. My husband who has myloefibrosis is experiencing more weakness in his legs and joints now and getting breathless -...

Hi it's me again - thanks you for replies. My husband who has myloefibrosis is e...

Hidden

•8 years ago

10 Replies

Splenomegaly

recently i have some lower abdoman pain. And did ultrascan. But they notice that my spleen enlarged upto 12.5 Cm. I am 25 Years age. It needs to worry . I am...

recently i have some lower abdoman pain. And did ultrascan. But they notice that...

_raj_1987

•8 years ago

4 Replies

Uncontrolable shaking in left arm?

I am never too steady with both my arms, but the left is the most dramatic, I lift an object, ok for a couple of seconds and then it goes mad, shaking worse...

I am never too steady with both my arms, but the left is the most dramatic, I li...

Adlon57

•8 years ago

5 Replies

2 weeks to go 🏅👟🏃🎖🙏

Yekkkkkks 🏅🏃🎖👟 I'm up and running again injury healing Done a 2:1/2 mile jog yesterday , Feeling good 🏅🎖 I am so greatful for all your kind donations...

Yekkkkkks 🏅🏃🎖👟 I'm up and running again injury healing Done a 2:1/2 mile j...

Phelpsy

•8 years ago

2 Replies

Knee replacement surgery

I am due partial knee replacement surgery around the end of October. I have PV and wanted to ask if anyone else has gone through similar surgery and were there...

I am due partial knee replacement surgery around the end of October. I have PV a...

Aime

•8 years ago

11 Replies

Normal playlet count

My platelet count is 363! Is that low! It says 363X10(3)mcg I'm just very weak and in cold sweats and have PV but have been in remission! Have many autoimmune...

My platelet count is 363! Is that low! It says 363X10(3)mcg I'm just very weak a...

Debbweb01

•8 years ago

15 Replies

Radiation blast symptoms?

Hey everyone, well this is going to sound just a wee bit bizarre. After yet another terrible attempt at slumber last evening, very early this AM I was beset by...

Hey everyone, well this is going to sound just a wee bit bizarre. After yet anot...

socrates_8

•8 years ago

4 Replies

JAK2 and breast cancer. Is there a link?

History: My husband found a lump in his breast about 2 months ago. He went in to the PCP and was told it's likely to be a lipoma, but they would do blood work...

History: My husband found a lump in his breast about 2 months ago. He went in to...

Murryx

•8 years ago

6 Replies

Husband With Myelofibrosis

My husband has had MF for four years and has had his spleen removed which has caused him continuing pain in his stomach. He has all the usual MF symptoms -...

My husband has had MF for four years and has had his spleen removed which has ca...

Hidden

•8 years ago

4 Replies

PV not alone! Found this by accident

Hi I'm on Hughes syndrome forum and live in Long Island New York! I have a host of autoimmune diseases and I also have had PV for about 16 or 17 years! I DX'd...

Hi I'm on Hughes syndrome forum and live in Long Island New York! I have a host ...

Debbweb01

•8 years ago

2 Replies

Just a question

Is this a PV site! I don't know how I got on here or what MPN is, but I too am on APS forum but c many of u have PV! Just wondering what this forum is! I...

Is this a PV site! I don't know how I got on here or what MPN is, but I too am o...

Debbweb01

•8 years ago

4 Replies

Hot weather effects

Morning friends, wow as much as its lovely to get sunshine. im finding this heat too much for me ,does anyone else feel this blood condition can make us more...

Morning friends, wow as much as its lovely to get sunshine. im finding this hea...

Hidden

•8 years ago

20 Replies

New Mpn

Ive been diagnosed with MPN for 2years now. I see my consultant every 4 months. Ive had some symptoms such as bone /joint ache. I have a lack of appetite and...

Ive been diagnosed with MPN for 2years now. I see my consultant every 4 months. ...

Nannyallison

•8 years ago

4 Replies

Aspirin damage

I'd love any advice please. A few months ago my upper abdomen became bloated and stayed that way. I got a niggling pain and a tear-like sensation around the...

I'd love any advice please. A few months ago my upper abdomen became bloated and...

Vennie

•8 years ago

19 Replies

Servers migraine

Just had a big shock still recovering. I had a violent migraine attack which I couldn't control using medication. Ended up calling ambulance and going you...

Just had a big shock still recovering. I had a violent migraine attack which I ...

heathermc

•8 years ago

7 Replies

Hi my lovely's only 3 weeks to my Great North Run 🏃😜🙏😱 For MPN voice ❤️

I'm off to the Edinburgh & Tattoo for a few days , with my hubby it's a gift for my B/d UPDATE >>>>>>>>>>> I've unfortunately had a few set backs Injured my...

I'm off to the Edinburgh & Tattoo for a few days , with my hubby it's a gift for...

Phelpsy

•8 years ago

9 Replies

I think I need a kick up the bum

Last week I took myself off for my INR blood tests because I am on life-long Warfarin because of 3 DVT's. Suddenly, along the way, I became really unwell. I...

Last week I took myself off for my INR blood tests because I am on life-long War...

jillydabrat

•8 years ago

22 Replies

Severe itching

I have recently issued my first posting when I introduced myself as a patient being treated with Busulfan, which is not commonly used now. I have E.T. and was...

I have recently issued my first posting when I introduced myself as a patient be...

Folly41

•8 years ago

8 Replies

First posting

I am a 74 year old female and was first told that I had E.T. over two years ago. I found that I could not tolerate Hydrocarbamide but was better with...

I am a 74 year old female and was first told that I had E.T. over two years ago....

Folly41

•8 years ago

8 Replies

Reducing dosage of Pegasys

Hi, anyone got any experiences of reducing pegasys dosage? I was initially prescribed 45mcg once a week about a year ago. Platelets dropped quickly. For the...

Hi, anyone got any experiences of reducing pegasys dosage? I was initially pres...

maryv

•8 years ago

8 Replies

Drama Queen?

So I ended up taking myself to the ER after my lightheaded feeling became constant this past Monday. I was at work in an all day meeting ( yikes) when I...

So I ended up taking myself to the ER after my lightheaded feeling became consta...

Jennifer1974

•8 years ago

44 Replies

Trying to post

But it keeps telling me it is inappropriate - it isn't? What can I do? Thanks Sue

But it keeps telling me it is inappropriate - it isn't? What can I do? Thanks Su...

SuET2017

•8 years ago

17 Replies

Polycythemia jak2 negative

Hi all I had my appointment last week with my consultant and raised a few concerns regarding what i was led to believe in the beginning that treatment would...

Hi all I had my appointment last week with my consultant and raised a few concer...

Nozboz

•8 years ago

16 Replies

Blood Results

I've been on Anagrelide for 2 weeks now (after 3 years on hydroxy) and have been to the hospital for a check up. My platelets were down from 415 to 305, best...

I've been on Anagrelide for 2 weeks now (after 3 years on hydroxy) and have been...

lizzziep

•8 years ago

5 Replies

MPN And flying

Hi, this is my first post on here. My question is about long haul flights. Is it ok to fly and has anyone had to have injections in stomach before flights? I...

Hi, this is my first post on here. My question is about long haul flights. Is it...

Jane-r

•8 years ago

19 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for August 2016

Ilio(p)soas muscle

Random and weird skull creases

The bones in my skull are disappearing & no one knows why. I've seen every Dr possible in Houston, TX Great medical center?

Just to let you know I haven't completely melted ,but I am suffering with this heat ,,I think my thermostat has stopped working !

Are these symptoms in my head?

Myloefibrosis

Splenomegaly

Uncontrolable shaking in left arm?

2 weeks to go 🏅👟🏃🎖🙏

Knee replacement surgery

Normal playlet count

Radiation blast symptoms?

JAK2 and breast cancer. Is there a link?

Husband With Myelofibrosis

PV not alone! Found this by accident

Just a question

Hot weather effects

New Mpn

Aspirin damage

Servers migraine

Hi my lovely's only 3 weeks to my Great North Run 🏃😜🙏😱 For MPN voice ❤️

I think I need a kick up the bum

Severe itching

First posting

Reducing dosage of Pegasys

Drama Queen?

Trying to post

Polycythemia jak2 negative

Blood Results

MPN And flying

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