Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for June 2012

Buddies

No matter how supportive our partners and families are, they don't always understand how it feels to have a MPD. Because MPDs are ‘invisible’ conditions and...

No matter how supportive our partners and families are, they don't always unders...

Partner•13 years ago

Complementary Therapies

Many people who have a MPD say that fatigue and tiredness has a massive impact on their daily life, some even have difficulty in going to work. Even getting...

Many people who have a MPD say that fatigue and tiredness has a massive impact o...

Partner•13 years ago

Introduction

Hello, my name is Maz, I am the administrator for MPD Voice. I was diagnosed with ET (Essential Thrombocythaemia) in December 2003, it took a while for my...

Hello, my name is Maz, I am the administrator for MPD Voice. I was diagnosed wi...

Partner•13 years ago

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Diagnosis

How was your MPD diagnosed? What symptoms did you present with?

How was your MPD diagnosed? What symptoms did you present with?

Partner•13 years ago

Relatives with MPD

Do you have any blood relatives with PV, ET, or MF?

Do you have any blood relatives with PV, ET, or MF?

Partner•13 years ago

Anyone else noticed a considerable difference in skin texture whilst on meds, may seem shallow but find it difficult to deal with ideas?

•13 years ago

Side Effects from Hydroxycarbamide.

Do you have, or did have, any side effects whilst taking Hydroxycarbamide? What were they and what did you do to help combat them?

Do you have, or did have, any side effects whilst taking Hydroxycarbamide? Wh...

Partner•13 years ago

Are you taking medication for your MPD?

If you are taking medication for your MPD was is prescribed from the time you were diagnosed? Do you consider that it is efficient? Do you have to keep...

If you are taking medication for your MPD was is prescribed from the time you we...

Partner•13 years ago

Patients' Forums

We will be hold our next patients’ forum in Edinburgh on Thursday 28 June from 2 – 5 pm in the Western General Hospital, more information is available on our...

We will be hold our next patients’ forum in Edinburgh on Thursday 28 June from 2...

Partner•13 years ago

What topics or questions would you like to discuss or learn about regarding MPDs?

Let us know what you want to talk about within this community, post your questions, thoughts and ideas.

Let us know what you want to talk about within this community, post your questio...

Partner•13 years ago

Welcome to the MPD Voice community. Who are we and what do we do?

The point of this community is to provide a space where you can share your experience, support one another, and become better informed about MPDs...

The point of this community is to provide a space where you can share your exper...

Partner•13 years ago