Posts - MPN Voice | HealthUnlocked

MPN Voice

10,432 members • 14,380 posts

All posts for October 2021

Bone pain?

Hi, I have ET Jak2, on hydroxy and aspirin. I’ve had intermittent pain down my R leg this weekend and wondering if it could be bone pain or a reaction to my...

Hi, I have ET Jak2, on hydroxy and aspirin. I’ve had intermittent pain down my R...

SDJD

•2 years ago

7 Replies

Flu

Hi everyone I had my first Pfizer injection and not too bad so far tired with sore arm for couple of days I was very nervous

Hi everyone I had my first Pfizer injection and not too bad so far tired with so...

Windy51

•2 years ago

9 Replies

Boosters for the immunocompromised.

The BBC reports today that SAGE has recommended that the immunocompromised (along with care home residents) SHOULD receive their Booster COVOID Vaccinations...

The BBC reports today that SAGE has recommended that the immunocompromised (alo...

Hidden

•2 years ago

9 Replies

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Is this just happening to me ?

Hi everyone, sorry if this is A little gory, but wondering if anyone else has been experiencing the same. On 29th sept while I was out I had dioreah pour from...

Hi everyone, sorry if this is A little gory, but wondering if anyone else has be...

Yvette49

•2 years ago

20 Replies

New Report from MPN Research on INF

Some have been curious about the prospects of the potential ATO-INF therapy I posted recently at:...

Some have been curious about the prospects of the potential ATO-INF therapy I p...

EPguy

•2 years ago

4 Replies

What is primary dose vs booster for COVID Vaccine?

I am confused about third primary covid vaccine dose vs a booster. I have had a Pfizer booster vaccine - does primary dose mean I need another in 12 weeks? The...

I am confused about third primary covid vaccine dose vs a booster. I have had a ...

Jenny_F

•2 years ago

6 Replies

Just an update

Hi All! I had a heart cath, yesterday, and my left arterial descending artery was 98% blocked! There were actually two blockages, one dislodged and broke up...

Hi All! I had a heart cath, yesterday, and my left arterial descending artery w...

Wewo01

•2 years ago

23 Replies

Hba1c up but good news otherwise

After having a hospital appointment on Wednesday, I’m was pleased to find out that my platelets are now down to 339 after only 4 months of 45mg weekly of Peg....

After having a hospital appointment on Wednesday, I’m was pleased to find out th...

Jynx93

•2 years ago

12 Replies

Should I go ahead with booster vaccination

I am in a quandry about whether to have booster vaccination? Hi, I have JAK2 ET and have had 2 covid jabs without any side effects. I also have menieres...

I am in a quandry about whether to have booster vaccination? Hi, I have JAK2 ET ...

Jennytheb

•2 years ago

14 Replies

First peg dose

Hi, I took my first Peg dose 6days ago. I still feel,fatigue+,mild flu like symptoms. I’m on 45mcg every other week. I sure this will settle soon. Do these...

Hi, I took my first Peg dose 6days ago. I still feel,fatigue+,mild flu like symp...

Bobadog

•2 years ago

11 Replies

Abnormal bloodwork

Hi all, I have decided to see a different Hematologist. Bloodwork was done and I don't know what to think. RBC low 3.75 HCT low 36.4% MCH high 33.7 MPV low...

Hi all, I have decided to see a different Hematologist. Bloodwork was done and ...

Wilma66

•2 years ago

4 Replies

Jury summons.

So I’ve just been asked to do jury service. I live in north west London and it would be at courts in south east London which are over an hour away on the...

So I’ve just been asked to do jury service. I live in north west London and it ...

Jonnymitts

•2 years ago

29 Replies

Covid

Hi everyone…. Credible research and my hematologist state that the covid vaccines may not work well, if at all, for people with blood cancers (I have PV with...

Hi everyone…. Credible research and my hematologist state that the covid vaccine...

Hidden

•2 years ago

54 Replies

Flu vaccine

Hello everyone, just want to share that I got my flu vaccine yesterday. I was a little extra tired and a bit warmer than usual but otherwise fine. Today I feel...

Hello everyone, just want to share that I got my flu vaccine yesterday. I was a ...

Virginia91

•2 years ago

4 Replies

INF+ ATO Study, "A knockout combination for MPN stem cells"

Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an...

Some have likely seen this study. I looked into it some more today and realize ...

EPguy

•2 years ago

5 Replies

What are your thoughts about Interferon Vs. Hydroxurea?

I’ve been reading different studies about this and most of them says Interferon is advisable for younger patients and for pregnancy but current practice is...

I’ve been reading different studies about this and most of them says Interferon ...

livelovelaugh1992

•2 years ago

10 Replies

Unexplained Bruising (ET-CALR)

Hi all. At every appointment my doctor asks if I’ve had easy or unexplained bruising. I’ve always bruised easily, but in the last four weeks have had three...

Hi all. At every appointment my doctor asks if I’ve had easy or unexplained bru...

GrammyG

•2 years ago

8 Replies

Covid and poorly

Morning all. Just wanted to inform you all to please be careful out there. I have pv jak 2. Had 3 full Pfizer vaccines. Had grandaughter overnight who the day...

Morning all. Just wanted to inform you all to please be careful out there. I hav...

poly2

•2 years ago

51 Replies

Nosebleed

Hi members seeking help as usual. I just had a severe nosebleed requiring hospital admission and very painful procedures. They were blaming my anticoagulant (I...

Hi members seeking help as usual. I just had a severe nosebleed requiring hospit...

hollymae

•2 years ago

3 Replies

Pregnant with PV

Hi I just found out I am pregnant :) I am 37 so not youngest for my first pregnancy. It was planned so I am happy but also a bit worried what will be the next...

Hi I just found out I am pregnant :) I am 37 so not youngest for my first pregna...

DariBee

•2 years ago

7 Replies

Should I take Hydrea for 7 days?

I was diagnosed with ET in 2003, took Hydrea for 3 months and was able to go without any medication since then other then a baby aspirin a day. I took a blood...

I was diagnosed with ET in 2003, took Hydrea for 3 months and was able to go wit...

Hazelnut2020

•2 years ago

11 Replies

Vaccine third dose experience!

Hi I’m a regular visitor here but I think this my first post! I have essential thrombocythaemia and am a patient of Haematology at Bedford Hospital (who I must...

Hi I’m a regular visitor here but I think this my first post! I have essential t...

Maythyme

•2 years ago

9 Replies

BLOOD COUNTS

I posted some 2 years ago, got a second opinion from another doctor but I was told that my hematologist is doing the right thing. Unfortunately, where I am, we...

I posted some 2 years ago, got a second opinion from another doctor but I was to...

Trinigirl

•3 years ago

4 Replies

FALLING BLOOD COUNTS

Hi. I am wondering if anyone is experiencing falling blood counts as I am. I do blood work every 2 months and I am experiencing low counts on my WBC and RBC....

Hi. I am wondering if anyone is experiencing falling blood counts as I am. I do ...

Trinigirl

•3 years ago

21 Replies

Greetings

Hi there, new to the group so thought i would introduce myself. I had PV diagnosed in 2009 but mutated to MF confirmed in April 2021, on Jakavi to reduce my...

Hi there, new to the group so thought i would introduce myself. I had PV diagnos...

Hitchc0tt5

•3 years ago

13 Replies

ET and PV

Hi all I was diagnosed with ET last month after a positive JAK2 and various symptoms (of which I thought I was aneamic) so came as a shock. I have been on...

Hi all I was diagnosed with ET last month after a positive JAK2 and various symp...

sweetiecake

•3 years ago

7 Replies

Hello

Hello. Recently diagnosed with ET. Platelets around 700 during routine blood work. Referred to hematologist. Tested JAK2 positive. Put on hydroxyurea,...

Hello. Recently diagnosed with ET. Platelets around 700 during routine blood wo...

Mike1021

•3 years ago

29 Replies

3rd Covid Vaccine - Scotland

Hi All, I live in Scotland and, last year, was told explicitly by haematology department that I wasn't any more vulnerable to Covid than people without an MPN...

Hi All, I live in Scotland and, last year, was told explicitly by haematology d...

lizk1993

•3 years ago

14 Replies

Apheresis

Sorry for posting so frequently in the past few days, but I thought I would share this bit of the start of my SCT journey. Some people with MF have a high...

Sorry for posting so frequently in the past few days, but I thought I would shar...

Otterfield

•3 years ago

22 Replies

Tourniquet For Blood Test

Saw this on a Facebook group. It was if a tourniquet should be used for a blood test. Someone asked why not use one. The answer is as follows "squashes the...

Saw this on a Facebook group. It was if a tourniquet should be used for a blood...

mark382

•3 years ago

7 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for October 2021

Bone pain?

Flu

Boosters for the immunocompromised.

Is this just happening to me ?

New Report from MPN Research on INF

What is primary dose vs booster for COVID Vaccine?

Just an update

Hba1c up but good news otherwise

Should I go ahead with booster vaccination

First peg dose

Abnormal bloodwork

Jury summons.

Covid

Flu vaccine

INF+ ATO Study, "A knockout combination for MPN stem cells"

What are your thoughts about Interferon Vs. Hydroxurea?

Unexplained Bruising (ET-CALR)

Covid and poorly

Nosebleed

Pregnant with PV

Should I take Hydrea for 7 days?

Vaccine third dose experience!

BLOOD COUNTS

FALLING BLOOD COUNTS

Greetings

ET and PV

Hello

3rd Covid Vaccine - Scotland

Apheresis

Tourniquet For Blood Test

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