Posts - MPN Voice | HealthUnlocked

MPN Voice

10,992 members•15,371 posts

All posts for April 2014

New diagnosis. PV

Hi I'm recently diagnosed with PV. I have Portal Vein Thrombosis too along with Cirrhosis of the liver. I only popped to the docs as I though I had a bit of...

Hi I'm recently diagnosed with PV. I have Portal Vein Thrombosis too along with ...

•11 years ago

ET and HU . Any connection with sight problems?

I have been diagnosed with ET for 5 years now and taking HU all this time. Is there any connection between either the condition or the treatment and problems...

I have been diagnosed with ET for 5 years now and taking HU all this time. Is t...

Little-friend-Susan

•11 years ago

Hi, I have et and on hydroxycarbamide . Had urine infection for 2 wks. Is there any antibiotics you can't take with these tabs? Thanks all

•11 years ago

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MF Treatments

Hubby, 67 diagnosed MF out of the blue 2 month ago is on "watch and wait" taking 75mg of Asprin. He gets headaches (May not be related but asked doctor) who...

Hubby, 67 diagnosed MF out of the blue 2 month ago is on "watch and wait" takin...

•11 years ago

Manchester forum

Don't forget the Manchester MPN forum on the 28th June - the first ever in the north west. The Christie clinic.

Don't forget the Manchester MPN forum on the 28th June - the first ever in the n...

Volunteer•11 years ago

Clear explanation of MPNs on video

If you haven't already seen this brief video, it might be very helpful just to clarify things from an expert: http://www.patientpower.info/video/what-is-an-mpn

If you haven't already seen this brief video, it might be very helpful just to c...

•11 years ago

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Impact of JAK-inhibitor therapy on inflammation-mediated comorbidities in MPNs

Chronic inflammation is suggested to contribute to the Philadelphia-chromosome-negative myeloproliferative neoplasm (MPN) disease initiation and progression,...

Chronic inflammation is suggested to contribute to the Philadelphia-chromosome-n...

•11 years ago

9 months on ruxolitinib ,on the Majic trial ,I'm feeling so much better ,my hospital visit today confirmed ,my blood results are excellent ,

I decided to change my life by eating really healthily .2 years ago.I'm convinced now by working hand in hand with my hospital team .Iv turned my life around...

I decided to change my life by eating really healthily .2 years ago.I'm convince...

•11 years ago

Worried about HU dosage

I have ET and am on Hydroxycarbamide - 1000 mg per day for 5 days and 1500 mg per day for 2 days. I've been to the hospital today and my count was down again,...

I have ET and am on Hydroxycarbamide - 1000 mg per day for 5 days and 1500 mg pe...

•11 years ago

DDA

Hello, Can anyone confirm if ET is covered by the disability discrimination act. I recently had a few days off work which my Dr signed me off, citing ongoing...

Hello, Can anyone confirm if ET is covered by the disability discrimination act...

•11 years ago

Newcastle and Edinburgh joint patients’ forum 2014

The Newcastle/Edinburgh joint patients’ forum will be held on Friday 10th October 2014 from 2 – 5.00 pm, with registration and *buffet lunch from 1 pm, in The...

The Newcastle/Edinburgh joint patients’ forum will be held on Friday 10th Octobe...

Partner•11 years ago

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MPD Voice Fundraising News – Abseil Challenge and The Deep RiverRock Belfast City Half Marathon

Sponsored Abseil Challenge 2014 Abseiling 100 feet down the front of the Golden Jubilee Wing at King’s College Hospital, London, will provide you with an...

Sponsored Abseil Challenge 2014 Abseiling 100 feet down the front of the Golde...

Partner•11 years ago

Encouraging Update Ruxolitinib PV Trial Phase 3

Hi Guys, Not sure if this has been posted but the early results of this trial look good. Im not too savvy and couldn't get the link to work but if you just...

Hi Guys, Not sure if this has been posted but the early results of this trial lo...

•11 years ago

I have just attended the hospital an after 2 years my blood counts are starting to raise why?

I have just attended the hospital an after 2 years my blood counts are starting to raise again and I would like to know; 1) is this a sign that my PVR is...

I have just attended the hospital an after 2 years my blood counts are starting ...

•11 years ago

Hi fellow MPN'ers. How do we know, what causes our fatigue? I am REALLY tired over the last few days, what do we blame ET , age, or HU?

It is such a debilitating fatigue...exercise is suggested many times , but when you are so tired I feel as though running on no fuel whatsoever. Platelets a...

It is such a debilitating fatigue...exercise is suggested many times , but when ...

•11 years ago

Should HRT be taken if you have ET?

Hi All. I'm 44 years old, with JAK2 pos ET, and it looks like I may be peri-menopausal... :-( (Based on symptoms and recent test results for FSH levels). Off...

Hi All. I'm 44 years old, with JAK2 pos ET, and it looks like I may be peri-meno...

•11 years ago

I need your help to make money

I retirered yesterday. If you have any knowledge of me great if not look me up. I have a lot of fund raising ideas involving things I have done in my life....

I retirered yesterday. If you have any knowledge of me great if not look me up. ...

•11 years ago

Encouragement and support please

Well I have had a rotten morning and really need to have a boost. It's not mightily serious but here I have been jogging along nicely thinking I am doing...

Well I have had a rotten morning and really need to have a boost. It's not mig...

•11 years ago

Even the government is telling us to eat healthy ,,try fruit , try a steamer ,to taste the wonders of veg,colour of veg is a wonder xTaste..

Chocolate and cheese are the well known problems with migraine ,but packets of crisps ,bottles of coca cola ,to wash it down. Red meat ,,clogging up the...

Chocolate and cheese are the well known problems with migraine ,but packets of c...

•11 years ago

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