MPN's anyone else have a raised red cell volume ?
nightssky2 hours ago
hi all just wondered any one else had a raised red cell volume along with the other usual raised counts ie white hemoglobin ,haemorcrit RD c...
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Celtic background & thromocythemia
Vicky_b4 hours ago
When we were at guys prof Harrison mentioned a link between having a celtic background & mild thrombocythaemia. Does anyone have this?
annem225 hours ago
Good morning everyone. My doctor wanted me to start on Pegasys because he considered me high risk. My platelets are in the 800s and I have a...
Hydroxycarbamide - why the need to wash hands?
Ovingitea day ago
I'm sure I'm not the only one to wonder about this, but why do we need to wear gloves or wash hands after handling hydroxy? It seem illogica...
10 Replies1 Like
Jst diagnosed with et
Frankydafisha day ago
Hello im franky 41 from newzealand. Iv just been diagnosed 2weeks ago my platelets are at 1180 im on aspirin for now and im waiting for the ...
Just diagnosed with et
Hi there im a kiwi who jst 2 weeks ago got diagnosed with et still got to see the specialist yet but its kinda sceary not knowing the full d...
Whats wrong with me???
Sarahjane1002 days agoPOPULAR
I was told today that my BMB results showed no sign of any MPN whatsoever! I was told to keep taking the aspirin and come back in three mont...
20 Replies1 Like
Mardihel2 days ago
Thank you for all your lovely replies to my post, so grateful to hear other experiences etc, and I shall drink lots of water, eat healthily,...
2 Replies1 Like
Oh the NHS
beetle2 days ago
Most of the time I think our NHS is wonderful but every now and again I get VERY frustrated. My haematologist started the idea of beginning ...
11 Replies3 Likes
Results not so good
Graham76942 days ago
Had my Haemo appointment this morning. My platelets have been coming down and 2 months ago were down to 707 so was hoping for good things to...
Nettie222 days ago
Hi everybody hope you are all keeping well. It's been a while since I have posted. Just a quick question I have recently got access to my me...
MoNut2 days ago
I seemed to have been logged out of this forum for some reason.
Anyone from Louisiana
Cambrook2 days ago
I need help. I need to find a MPN specialist or a doctor that knows about PV. My doctor is an idiot. Also, I need a doctor that accepts Medi...
Suspected bone pain in 31 year old male.
Help. My doctor doesn’t think the pain in my hip and down my upper legs is cancer related. I was diagnosed with PV earlier this year. I’ve b...
Red cell mass test
Vicky_b3 days ago
I have to have a red cell mass test in a few weeks & wondered if anyone had experience of this & could tell me more about it.
14 Replies1 Like
Fatigue syndrome ?
poverello3 days ago
I am new to this site. I can't get a straight answer from any of my doctors re: fatigue syndrome. I think I got it. Can one be tested for ...
Betsywest3 days ago
A very interesting article from Bloodwise that is definitely worth a read..
Best wishes to all xx
9 Replies7 Likes
Mardihel3 days ago
Hi just joined, I was diagnosed with ET 4 weeks ago, shell shocked, had no symptoms, was found with a full blood count test. On hydroxycarb...
8 Replies1 Like
Worst 48 hours ever
Rastavapa4 days ago
Hi everyone I am currently on the jakafi trial for ET at guys and have Been feeling unwell for about a week headaches and sore shoulder, two...
18 Replies2 Likes
MPN EXPERTS IN THE EAST MIDLANDS ???
nightssky4 days ago
Good evening to you all ..
just thought I'd ask if anyone is aware of wether there are any expert Mpn doctors in & around the Midlands in the...
SP-20084 days ago
Can any of my UK MPN people recommend a good travel insurance company that covers MPN’s.
I’m travelling from uk to Denmark with the family ...
Bone pain - arthritis or Polycythaemia?
Aime4 days agoPOPULAR
I just wanted to ask, how many of you, who have PV or another MPN suffer from arthritic like bone pain - best way I can describe it,...
HGB and RBC High Count
Waheed14 days ago
Why my HGB and RBC are count high from last 2 years?
Problems with hydrea?
janwh5 days ago
The last dose of medication my pharmacist gave me was an American produced hydrea, not the the British produced hydroxicarbamide I’ve been t...
How does ET fatigue progress?
ksos5 days ago
I've had a pretty bad time of it in terms of fatigue today and that got me wondering... for those of you who have had ET for awhile (five ye...
Hydroxycarbamide or not!
azaelea5 days ago
Hello, I am new to Health Unlocked. I was diagnosed with Essential Thrombocythemia in June 5 days before having a Breast Lumpectomy. I have ...
Burst blood vessel in eye related to ET?
I've had two episodes of a burst blood vessel in my right eye -- where the white part of my eye turns bright red -- in the last two months...
Jak2 Negitive Result
Waheed15 days ago
I have a jak2 test negitive what does its mean please help me into this matter.
Elcee2535 days agoPOPULAR
I had a bone marrow biopsy on Wednesday and am still experiencing a lot of aching every time I walk and put pressure on it. Acr...
Why an Aspirin a day won’t keep the doctor away
Superwoman5 days ago
Has anybody else read the article in the Daily Mail today regarding Aspirin (here I go again) 😤 after my run in with my local C...
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