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MPN Voice
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Subclavian Steal Syndrome along with MPN

Hello all, Is there anyone who has Subclavian Steal Syndrome along with some MPN...

Colitis correlation (with MPN or Pegasys use)

I have read papers on Pegasys that there's a risk of Colitis with its use. The d...

hydroxyurea side effects?

Hi everyone! I I was recently diagnosed with polycythemia vera and I would like ...

Exercise, cancer and Dementia

I thought some of you might be interested in some information that my daughter p...

PV BUT elevated ESR

Is there anyone here who has PV , jak 2 positive BUT elevated ESR ? Could you ...

More Hydro

Hi fellow sufferers, latest recommendation from my haem to take 1000 mg per day...

Help

I'm wanting to put MPN Voice as my birthday fundraiser on facebook, hopefully wi...

How did you feel when first diagnosed with ET?

Hi all I wondered how people felt when they were first diagnosed with ET and whe...

Very odd conversation with haematologist today!

So, just saw my 3rd haematologist today. Very odd conversation. Interested to he...

Bone Marrow Biopsy and PV

Hi Everyone, My bone marrow is\" normocelluler with mild increase in erthryoid c...

The forgotten minority

There seems to be a lack of Research into what exactly is wrong with the very sm...

ET and treatmeant choices

Hi All, Was diagnosed with ET about 10 years ago and platelet count averages aro...

High Blood Count & Platelet Counts

High CBC & Platelet Counts I just recently did an analysis of all the blood work...

Pain across upper back.

Wondering if anyone with ET has suffered from really bad ache and pain across th...

Cindy12

I have just taken the courage to join Health Unlocked! I was diagnosed with ET ...

Cindy12

I just have taken the courage to join Health Unlocked. I was diagnosed with ET...

Oxygen levels- is 90 too low?

Hi. My husband has post PV Myelofibrosis and is poorly at the moment due to a so...

Critical Illness cover and Polycythemia Vera

My husband was diagnosed with PV a year ago. I glanced at the Aviva policy at th...

Vertigo

Any body know how to stop episodes of vertigo I'm having really bad bouts of the...

No curcumin while on hydroxy?

ET, taking 1000 mg hydroxy per day and Dr. just told me not to take a curcumin s...

Bone marrow biopsy

I had a bone marrow biopsy 2 days ago,the procedure for me was surprisingly easy...

Same sample of bone marrow, received different opinion

Hi all As early i had said that i have all test negative and bone marrow was nor...

Global Survey of MPN Patients’ Needs

The MPN Advocates Network is conducting a global survey of MPN Patients' needs a...

Pegasys!!

Hi just a little update I have triple negative ET I think no BMB not needed my ...

Confusing results

Hi everyone, Before testing i have HB 20.7(17) PCV-57(52) RBC-5.85(5.5) Platelat...

Weak lower legs and thighs

Does anyone suffer from weakness in their legs. I can barely walk. I have ET/...

Thanks

Thank you

Trying not to Panic about the possibility of MPN

A month ago I went to the Er with dizziness and chest pain. I thought I was havi...

Thrombocytosis/ mild leucocytosis

Hi all, This is my first post here, as I'm new to this. Feeling quite stressed ...

Short videos re exciting advances from Ash 2018 re ET, PV and MF

Very useful review (and expert!) of the Ash Conference by Prof Harrison. She rea...
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