(4-Year) Follow-up of RESPONSE Trial, a Phase 3 Study Comparing Ruxolitinib with Best Available Therapy for Treatment of Polycythemia Vera
PVReporter3 hours ago
Hope you find the interview informative....
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When to start medication?
PT994 hours ago
I had a clinic appointment last week and when I got to the hospital, discovered that my usual haem was unfortunately on leave for 6 mo...
Jen7612 hours ago
Looking for some advice, I was diagnosed with ET/PV in December JAK2 positive. Am awaiting my BMB results next week to clarify. I was starte...
2 Replies1 Like
MORE MPN CLINICAL NURSE SPECIALIST IN SCOTLAND
stevengeorgea day ago
Hi its me again I urge people in central belt fife Tayside and Perth who are mpn suffers who go to haematology clinics that does not have an...
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shiftzza day ago
Do you take dissolving or non dissolving..
I currently take non dissolving and swallow, my better half suggests I should take the other Enter...
Juliet462 days agoPOPULAR
Hello I wondered why no one replied to my post and then realised it was total nonsense, I meant to ask everyone if, when you started to take...
Kwebb2 days ago
Can polycycthemia be difficult to diagnose ?
Peripheral Vision Loss
EllenKay672 days ago
Does any one have peripheral vision loss; not related to Glaucoma or any other eye disease but from ET??
Thanks for your thoughts,
Juliet462 days ago
Hello Everybody Just a question to people who have symptoms, did they start right away when you took hydroxycarbamide or when it builds up i...
1 Reply1 Like
PhilReade3 days ago
Hi it’s taken two years on hydroxycarbamide to get my platelets to 400 has anyone else had this experience?
champ303 days ago
Have any of you on Ruxolitinib been lowered from 10mg twice daily to 5mg twice daily? I'm wondering if there will be a not too fav...
MPs call for more blood cancer testing by GPs
shiftzz4 days ago
Blood cancer's "vague" symptoms, like tiredness and bruising, mean it is more likely a patient'...
5 Replies6 Likes
The sun has his hat on
Superwoman4 days ago
Well my friends, been to the hospital this morning, and all my result are good, my Haematologist was very pleased, so back in four months ti...
5 Replies8 Likes
piggie504 days agoPOPULAR
Good morning to all interested parties,
Well, I had my hospital appointment yesterday and despite taking Curcumin since last August my platel...
My Spleen is no longer welcome!
Chelle_4 days ago
Hi guys, I've not been here too much, I have been over on the liver pages. But I thought I would give you an update. So I have been waiting ...
11 Replies1 Like
Baileyboys5 days ago
Hi all, my husband has just recently been diagnosed, he is 50 and we have 2 young children and he has an older daughter. Our minds are spinn...
Paul1234565 days ago
Got my BMB results and dx is PV or MPN-U. Not come across MPN-U before?
Does anyone else here have this condition? Wondering what the treatme...
MPN & Pregnancy
Cathy4265 days ago
Hello, Does any one know of any successful pregnancies while having MPN. ET. JAK2+? I am now 27 years young but 5years ago before I was diag...
Indigo429165 days ago
I have ET, MPL515L +, had a recent blood smear showing red blood cell count as, teardrop, target cells, and other defective rbc's....
paddy675 days ago
Hi, I am new to the forum having been diagnosed with PV in May 2017 . My treatment up till now has only consisted of Asprin, however followi...
Myoproliferative Neoplasm Essential Thrombocytosis JAK 2
Annastaunton7 days ago
I am a long term MPN patient, Myoproliferative Neoplasm Essential Thrombocytosis JAK 2 mutation positive. I have taken Hydrea and aspirin f...
Aching at night
Kwebb7 days ago
Is it common that joint and muscle aches increase at night when in bed ? Mine keep me awake.
Nozboz7 days ago
I had a meeting with my consultant on Wednesday after having some more tests.
I have been diagnosed With Polycythemia JAK2 for over seven...
Need bone marrow biopsy
Howudoinaz7 days ago
I had some blood work done consistently over 3 months which showed increasing white cell counts and consistent high level Platelets. Hemato...
Paul1234568 days ago
Searched the archives but mixed messages?
Some say we can’t have it since live vaccine and others have had it no problem.
Met a couple of very...
amhann8 days ago
Ha, result!!! thanks again to shiftzz (+ rock on Rachel with the hope we can get an official book) Took my home made version of a ‘blood boo...
5 Replies3 Likes
Do we PVers (or others with MPN) need liver function tests
lizk19938 days ago
Hi all, had latest visit at hospital this week and doctor says pleased with how things going and I don't need another blood test or hospital...
I'm new and would like help
Imogen829 days agoPOPULAR
I'm new to posting on any boards, I'm on hydroxycarbamide, nearly 2 months now and and feeling nausea every day - I am very anxious. What c...
Cathy4269 days ago
Has anyone with MPN jak2 positive ET seEn a nutritionist or holistic dr? I feel like I need to change my diet to lower platelets but I have ...
Jak2 positive and MPN
My name is Catherine 26 years young. Diagnosed with Jak2 positive, mpn, ET. I was diagnosed after having my son premature at 29 weeks. I ha...
8 Replies1 Like
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