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What is the rate for someone with ET to progress to myelofibrosis?

I have slight increase in platelets and mild splenomegaly. My hematologist gave ...

Dr. removed hydrea and placed on baby aspirin only

Have E.T. for the past 11 yrs. On Hydrea and counts fluturate up and down,l Coun...

Symptom tracker

Hi all. Hope you’ve had a good day. Doctor has suggested I write down my symptom...

recurrent infections

Hi was just wondering if anyone had any advice - I have for the last 2 years hav...

Is it normal for someone with ET to have blasts percentage 1%-2% in the bone marrow?

Is it normal for someone with ET to have blasts percentage 1%-2% in the bone mar...

Foot infection

Have had a foot infection for over 3 weeks have had 4 different types of antibio...

What "JAK2 heterozygous" means? Is JAK2 the same as JAKv617?

What \"JAK2 heterozygous\" means? Is JAK2 the same as JAKv617?

Gloomy spells

Is it normal to get gloomy spells and depression? How to cope up with this helpl...

Weight loss

Is weight loss common with ET? I realised I was losing weight last year before I...

ET with JakV176 "possitive" 3 years after beeing JakV167 "negative"?

Is it possible for someone to be JakV167 possitive, 3 years after initial mutat...

What does a bone marrow biopsy result show for ET?

Hi There- I have been diagnosed with ET and had a BMB to help confirm it. My He...

One Year On

Well, it's a Year to the day that I received my ET Jak2+ diagnosis. I can still ...

Vitamin c and fibrosis

Can anyone offer incite as to whether vitamin c promotes fibrosis via collagen d...

Updown Blood counts

Hello Everyone, Recently i have experience updown blood counts,i had continued t...

Travelling with Pegasys

Hi everyone I've just started on Pegasys. I'm thinking ahead to holidays abroad...

HU Journey

Well after doing well on 500mg of HU.ive had a bit of a bump today my platelets ...

Hydroxy

I’ve had ETfor four years. Been on hydroxy and aspirin. This week after having...

Polycythemia without any symptoms

I was diagnosed with Polycythemia last December positive for Exon 12 genetic mut...

Feeling rough - high BP?

Hi Sorry for the long post, I have MF, diagnosed January 2018 currently taking P...

Dry sticky eyes.

Hi all, I just wondered if anyone taking hydroxy has trouble with sticky and wat...

Hairfall with HU

Hi. Does anyone experienced hairfall with HU?

Mouth Ulcers

Morning all, I have et jak2 + diagnosed 2011 age 57, I’m on aspirin, and anagr...

Myelofibrosis - changing dose of rux and epo helps the fatigue

Hi I thought it was time I wrote an update post, as well as replying to others...

Solutions to itchiness?

Hi there, Wondered if any of you out there have found any solutions to the dread...

Sore stiff joints

I was diagnosed ET Calr last year with platelets above 1200. Now taking Anagrali...

Surgery and Hydroxy

Hi my MPN family, I have not been to well lately, feeling full on the smallest ...

Falling red blood count.

This is trinigirl. I am having a problem with my red blood count. With every blo...

I’m really scared... high wbc count and elevated platelet count...

Hi! I recently went the the doctor for a normal checkup... My blood work was 150...

Doxycycline and Pegasys

Hi wonderfully informed people of HealthUnlocked, I was prescribed Doxycycline...

Aspirin

Does it matter if you forget to take your aspirin for a couple of days?
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