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MPN Voice

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Grounding? And other natural remedies?

Curious about results from "grounding." Grounding refers to absorbing the natur...

Thank you and latest blood results

Thank you for sharing your experiences with Ruxolitinib. I have now completed ...

Low saturation with PV and Jakavi 20

I have had PV since two years. Rux started december '23. Good results with HB an...
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Don’t Go It Alone

Hi I’ve just had the experience of going to an important consultant appointme...

Recent visit with my MPN Dr

(See end for context of this plot) I've been on Rux since Apr '23. At my rece...
EPguy profile image

Pegasys side effects

I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pa...
Dusty777 profile image

PV Research study

There was a full page article in my local newspaper to be part of an Phase 3 inv...
ERei profile image

Hydrea

Am on HU and had a small lump come up on my face had it removed and just had le...
Chel1 profile image

just a question

this might sound silly but I got diagnosed in 2022, with ET an jac2 am on pegsy ...

Pegasys Journey

ET/JAK2+. I started Pegasys 45mcg 14wks ago and my platelet count was stabilise...
Carol0925 profile image

Interferon alpha

I got diagnosed with ET Jak2 positive back in November and 42 years old. I've ha...

Day 0 SCT

So today I got my stem cells, fresh from my brother who had them harvested this ...

Not whining!

I'm not whining and idk how others feel but getting this diagnosis was like...o ...

REPLIES TO MY POST RE ACCESS TO BLOOD TEST ON INE.

I am overwhelmed by all the extremely helpful replies to my query from my “ bloo...
azaelea profile image

IVIG with CALR ET

Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in th...
George1976 profile image

ET and Dizzyness

Hi All - I have been experiencing dizzy spells for at least as long as I have be...
Fjdjdjdjd profile image

Newly Diagnosed with ET

Hi all, Im new to the forum. My Haematologist suggested I have a look. I’m 48...

Recent blood results

Hello, I am Jak 2 PV recently on Peg 45mcg fortnightly. Feeling okay just itchin...
kamiilos profile image

Ruxalinitib for MF2

I would love to hear anyone’s experience with Rux. How soon did you notice a dif...
artydutch profile image

Access to Blood Test results on line.

Hi everyone, I am wondering if anyone in the UK can tell me if there is any othe...
azaelea profile image

Hydroxycarmide

Quick question, how long does it take hydroxycarmide to leave the system?Thanks...

Other PV People's average dose of Peginterferon Alpha-2a?

Hi All, A brief overview of me, I was diagnosed with JAK2 & PV in November afte...
PVKween profile image

Allele Test for PV by Blood?

I went to my Hematologist today and asked whether there was an allele blood test...

New to this

Have just found out I have blood cancer. Platlets were 750 , after taking hydrox...
mag123ben profile image

First Injection of Pegasys

I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wedn...

At last Guys date

Post arrived a miracle in it self ,and then in the stack of letters a hospital.N...
Spanelmad profile image

results

I was advised to ring if not heard about Allele burden results in 2 weeks. jus...
Mostew profile image

Mood stabilizers?

Hi, can anyone please tell me if ET is contraindicated with mood stabilisers? I ...
Helps- profile image

Open letter

Hi all: I want to thank all who have posted regarding their experience with MPN...
Kiruna profile image

Hair thinning

I have been taking hydroxyurea for two years and noticed my hair is thinning on...
Winchie profile image
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